What do you hate the most about having autism/aspergers ?

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raisedbyignorance
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22 Jan 2011, 2:45 pm

Getting called the quiet girl constantly
Knowing that someone is gonna chew you out about something any minute
Feeling traumatized after someone b*****s at me
Never being able to carry a normal phone call conversation with friends
Never having friends to actually hang out with outside of school
Constant...relentless...teasing of me
Constant...relentless...criticizing of me
Always unconsciously driving away people instead letting them in
The inability to not smile naturally in public (and having it pointed out to me repeatedly)
Not being able to express my feelings of hurt in the same matter as everyone who gets upset with me
The inability to grasp responsibility and atonement in a natural matter
Never being able to come up with a proper response to conversation on-the-spot
Can't have fun at parties without getting plastered
Never being able to get along with people that I live with
Having people who I thought would relate to me be the ones to constantly ridicule and criticize me
The inability to live an independent life
The inability to reciprocate feelings on a romantic level without feeling overly smothered
Living in a world where no one will take you seriously
Getting laughed at for taking things seriously
Getting laughed at for anything and everything seriously really
Being on a sketch comedy show for three years and finding out that you can NEVER be funny unless it's completely unintentional
Always having my intentional humor offend someone instead of making them laugh
Having a grumpy response to people no matter what I do (NTs are never easy on you when you look the least bit grumpy)
Having nobody go easy on you for your differences
Bringing out the hypocritical behavior of NTs
Always being the exception when it comes to how people are treated
Always being told that I deserve my negative treatment because of this or that (by friends)
Getting demeaned and insulted by people I know (this by friends at well)
The lack of cognitive intellect
Cant cooperate with people (team projects etc) without exploding at someone
Sucking at sports that I'm being forced to play every freakin gym class
Poor ability to keep a good hygiene or at least care for myself
Poor ability to care about wardrobe or looks (at the decency level not the popularity level)
Having obsessive compulsive scab picking (causes alot of scarring throughout my body)
Always finding boring what most people find very entertaining
Cant keep my mind focus or the lack of patience I have on social outings (includes when I hang out with AS friends though not as badly as with NTs)
Struggling in school
Lacking the ability to be a performer or actor in theater (a major passion and dream of mine in high school that never came to be)
The lack of appreciation and award I get for working my hardest on things that are extremely difficult for me but comes easy for most NTs
The social anxiety (everytime I'm out in public, someone is pointing out something about me and I cant stand it)
People who don't believe that I'm way above 21 (well that's just the public in general)
Constantly lost in my thoughts or pacing
Knowing that something I say or do is gonna pissed somebody off
Being too stupid to fight for myself when others are at me
The lack of support I get from my friends on a frequent basis
Getting yelled at repeatedly by family for my natural desire for social isolation

I'm sure there's more but all of these things have only pushed me to be even more isolated from others to the point that I really do just want to kill myself and get the hell outta here.



jamieboy
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22 Jan 2011, 3:39 pm

raisedbyignorance wrote:
Getting called the quiet girl constantly
Knowing that someone is gonna chew you out about something any minute
Feeling traumatized after someone b*****s at me
Never being able to carry a normal phone call conversation with friends
Never having friends to actually hang out with outside of school
Constant...relentless...teasing of me
Constant...relentless...criticizing of me
Always unconsciously driving away people instead letting them in
The inability to not smile naturally in public (and having it pointed out to me repeatedly)
Not being able to express my feelings of hurt in the same matter as everyone who gets upset with me
The inability to grasp responsibility and atonement in a natural matter
Never being able to come up with a proper response to conversation on-the-spot
Can't have fun at parties without getting plastered
Never being able to get along with people that I live with
Having people who I thought would relate to me be the ones to constantly ridicule and criticize me
The inability to live an independent life
The inability to reciprocate feelings on a romantic level without feeling overly smothered
Living in a world where no one will take you seriously
Getting laughed at for taking things seriously
Getting laughed at for anything and everything seriously really
Being on a sketch comedy show for three years and finding out that you can NEVER be funny unless it's completely unintentional
Always having my intentional humor offend someone instead of making them laugh
Having a grumpy response to people no matter what I do (NTs are never easy on you when you look the least bit grumpy)
Having nobody go easy on you for your differences
Bringing out the hypocritical behavior of NTs
Always being the exception when it comes to how people are treated
Always being told that I deserve my negative treatment because of this or that (by friends)
Getting demeaned and insulted by people I know (this by friends at well)
The lack of cognitive intellect
Cant cooperate with people (team projects etc) without exploding at someone
Sucking at sports that I'm being forced to play every freakin gym class
Poor ability to keep a good hygiene or at least care for myself
Poor ability to care about wardrobe or looks (at the decency level not the popularity level)
Having obsessive compulsive scab picking (causes alot of scarring throughout my body)
Always finding boring what most people find very entertaining
Cant keep my mind focus or the lack of patience I have on social outings (includes when I hang out with AS friends though not as badly as with NTs)
Struggling in school
Lacking the ability to be a performer or actor in theater (a major passion and dream of mine in high school that never came to be)
The lack of appreciation and award I get for working my hardest on things that are extremely difficult for me but comes easy for most NTs
The social anxiety (everytime I'm out in public, someone is pointing out something about me and I cant stand it)
People who don't believe that I'm way above 21 (well that's just the public in general)
Constantly lost in my thoughts or pacing
Knowing that something I say or do is gonna pissed somebody off
Being too stupid to fight for myself when others are at me
The lack of support I get from my friends on a frequent basis
Getting yelled at repeatedly by family for my natural desire for social isolation

I'm sure there's more but all of these things have only pushed me to be even more isolated from others to the point that I really do just want to kill myself and get the hell outta here.


Reading this has actually made me grateful that i hardly ever leave the house. So, it really is never going to be alright, huh? :(



Major_G
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22 Jan 2011, 8:41 pm

What I find most frustrating are...

corroonb wrote:
The difficulty with non-verbal communication and socialising. I find this the most difficult aspect of having AS. It's very frustrating not knowing what to say, when to say it, who to say it to, how to say it. Everything has to be thought through, very little is natural and spontaneous, it's a bit exhausting at times with depression and OCD thrown in on top.

...this
quesonrias wrote:
People judging that because I am unorganized and have difficulty completing tasks on time, that I'm incompetent and unintelligent (I don't say it often, but I'm extremely capable and very smart, dang it!! !)

People minimizing when I say I have difficulties with certain areas

...and this.

EricS wrote:
What is face blindness?

Face blindness is when someone can't recognize another person just from their face. You know how you look at your mom or dad or uncle & know who they are right away? People with face blindness can't. There are ways around it, though. People with face blindness will usually recognize people's voices, clothing, or hairstyles.

LizzasaurusRex wrote:
Fiere wrote:
Heh, my dislike is simple, having both selective mutism (Yeah, I have the inability to talk to people I don't know, viscious circle much?) and aspie syndrome I can't talk when I want to and have an inabillity to voice my true thoughts. I often find it irritating that I cannot express my own intelligence, and no one will give it a second thought that I may be more intelligent than my sister, though don't take it that I think I am.

Having said all that, I can also see the kind of person I would have been without aspie syndrome, and I can never say how thankful I am from that point of view ;)


I have selective mutism, too. I hate going shopping alone. When I go with my friends or parents I usually get them to talk to the employees, but when I'm by myself, I usually just end up wandering around if I can't find something and then eventually leaving. Also I get extreme anxiety at the beginning of the school year. Luckily this year, one of my good friends is in all the same classes as me. I have no trouble talking around my friends, but at times when I don't have friends in my classes, I'm known as "the shy girl who never talks".

To people with selective mutism - what if someone speaks to you first? Can you speak to them then?



Bloodheart
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22 Jan 2011, 8:52 pm

I hate that I just don't understand friendship and fun.

I hate seeing others have fun, like on Facebook seeing photo's of friends with other friends all leaning in and laughing on photo's, I just don't understand how they do that, what it is that has made them do that, or why. I don't like that people assume I'm being boring because I can't join in. I'm getting close to my 30's now, during my 20's I should have been having fun, socialising, partying, being crazy...I wasn't able to. Worse still I'm scared of one day looking back, maybe at a time when I've learned better how to interact with others, and knowing I missed out. That is my tragedy.

I don't like the stereotype that we are looser's.

Many of us can survive well without friends, sometimes we might get lonely and want friends, but a lot of us just can't make friends that easily. Normally when someone has few friends it's because they're boring, freaks, annoying, or nasty, we're grouped in with those people, social rejects.



Last edited by Bloodheart on 23 Jan 2011, 12:36 am, edited 2 times in total.

ryan93
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22 Jan 2011, 10:21 pm

*insert bloodhearts post.

eloquently put :)


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MrEGuy
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23 Jan 2011, 12:13 am

1. The constant fear that I'm missing the punchline to some social interaction.

2. The constant fear that if I explain a problem to another person, they will freak out on me for being mean instead of focusing on fixing the problem. Defensive behavior laid down as a means of protecting the ego scares me s**tless, because so many people do it.



Yensid
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23 Jan 2011, 1:31 am

I hate the inability to socialize and make friends.

I hate having such trouble with small talk.

I hate being alone all the time.

I hate being described as a loser.

I hate that I sometimes believe that I'm a loser.



CockneyRebel
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23 Jan 2011, 10:02 am

My flashbacks. I don't have them when I'm busy, only when I have to spend long periods of time alone.


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b9
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23 Jan 2011, 11:17 am

Quote:
What do you hate the most about having autism/aspergers


having to go to social events. i can not get out of going to some social events and i absolutely am unable to cruise through them. i had to go to a funeral and then a burial and then a wake and i stepped on so many toes and made so many enemies. i do not want people who think i am a bad person to think about me.

everyone else says things i am not interested in or able to process and they wind up developing a negative opinion about me.

i could not care less what other people think about me, but it is hard to escape the opinions of people i am forced to socialize with when i have no car to go back home and escape.

i dislike being crammed into a social circle that i can not understand or interact with.

what i dislike about being autistic is that the world demands that i be involved with them.



daspie
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23 Jan 2011, 12:00 pm

foobabe wrote:
Whilst I don't have ASD I am mom to 2 great kids (AS and AS/ADD).
I am sad for them when they don't get invited to parties or out to play and when I see school "friends" giggle about them behind their backs.
Those things make me sad/angry
I feel like ASD is preventing them from enjoying the typical things kids their age take for granted.

Not sure I really answered your question ':oops:'

I aslo hate it when people say "oh like Rain Man" when you talk about autism/aspergers

Please make them physically strong to avoid getting bullied.



LizzasaurusRex
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23 Jan 2011, 1:12 pm

Major_G wrote:
Can you speak to them then?


It really just depends. Sometimes all I can do is just smile and nod, but depending on the situation, I can open up easier.



Autumnsteps
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23 Jan 2011, 3:10 pm

Finding it so hard to deal with change that I haven't initiated. I think it makes me look selfish and controlling to people and that's not the case at all :?



Jet102fm
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23 Jan 2011, 4:12 pm

I decided that I am going to have an overall positive outlook on life. I did use to feel my Asperger's was limiting me, though now I know that I can overcome my limitations. The only thing I have to hate about having Asperger's is that effort you have to put in to be able to "work."



loftyD
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23 Jan 2011, 6:28 pm

everything



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23 Jan 2011, 7:09 pm

Jet102fm wrote:
I decided that I am going to have an overall positive outlook on life. I did use to feel my Asperger's was limiting me, though now I know that I can overcome my limitations. The only thing I have to hate about having Asperger's is that effort you have to put in to be able to "work."

We need more people having this positive outlook on life.


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Verdandi
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23 Jan 2011, 7:19 pm

Yeah, I'm not upset about having limitations or having Asperger's. I am annoyed when my sensitivities are triggered, or when I have more trouble getting something done than I feel like I should. But what really annoys me is that I didn't know and how it's affected my life in pervasive ways - like trying to exceed my limits repeatedly because I "should have been able to" do those things, and the burnout/backlash that came as a consequence.