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DJRAVEN66
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11 Jan 2012, 9:11 pm

first of all im HFA and i work with kids and adults like her son that have a complex case. people with complex cases are very hard to deal with at times and if you don't know the person all that well it's even harder. so if you don't konw this family personly don't bash them ok. I WORK WITH PEOPLE LIKE THIS EVERY DAY 16 HOURS A DAY 6 DAYS A WEEK. so yes i deal with the same things she deals with on a dayle basses.



Verdandi
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11 Jan 2012, 9:37 pm

DJRAVEN66 wrote:
first of all im HFA and i work with kids and adults like her son that have a complex case. people with complex cases are very hard to deal with at times and if you don't know the person all that well it's even harder. so if you don't konw this family personly don't bash them ok. I WORK WITH PEOPLE LIKE THIS EVERY DAY 16 HOURS A DAY 6 DAYS A WEEK. so yes i deal with the same things she deals with on a dayle basses.


She's busily bashing a whole lot of people she doesn't know personally.

She's not wrong to point out the lack of support, but to blame it on people who have no institutional impact on how autistic people of any severity are supported is completely misguided.

This thread also reminded me: I am grateful youtube didn't exist when I was growing up. I had a severe fear/hatred of cameras, and the thought of putting videos of me online without my permission is just deeply disturbing.



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11 Jan 2012, 11:27 pm

Guys, let's not bash this woman, okay? However wrong she may be, it feels wrong to go and gang up on her like this.


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Verdandi
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11 Jan 2012, 11:47 pm

I don't recall bashing her, but I do recall getting frustrated and annoyed with her generalizations about autistic people who don't meet her standards, and saying so.

I still don't get why people take that sort of thing as flaming or bashing.



Callista
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11 Jan 2012, 11:50 pm

Verdandi wrote:
I don't recall bashing her, but I do recall getting frustrated and annoyed with her generalizations about autistic people who don't meet her standards, and saying so.

I still don't get why people take that sort of thing as flaming or bashing.
I don't know that it really is, explicitly; I guess I just get the feeling of unfairness when we're talking about it and she's not here to talk about her side of it. I think, if she were here, I'd be pretty likely to try to knock down her ideas in a debate, like I'd do with anybody's that I disagree with; but it just feels kind of wrong, like we're talking behind her back or something.

Honestly, it's really just a feeling I get. Maybe it's just that people talk about me when I'm not there, and I hate that, and don't want to do it to anyone else, even on the Internet.


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Verdandi
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12 Jan 2012, 12:02 am

Callista wrote:
Verdandi wrote:
I don't recall bashing her, but I do recall getting frustrated and annoyed with her generalizations about autistic people who don't meet her standards, and saying so.

I still don't get why people take that sort of thing as flaming or bashing.
I don't know that it really is, explicitly; I guess I just get the feeling of unfairness when we're talking about it and she's not here to talk about her side of it. I think, if she were here, I'd be pretty likely to try to knock down her ideas in a debate, like I'd do with anybody's that I disagree with; but it just feels kind of wrong, like we're talking behind her back or something.

Honestly, it's really just a feeling I get. Maybe it's just that people talk about me when I'm not there, and I hate that, and don't want to do it to anyone else, even on the Internet.


My understanding is (and it could be wrong) that youtube shows referrer links, so people can go look.

I don't like talking behind people's backs, but discussing publicly aired views on a public forum doesn't feel like that to me.

I do see what you mean, however.

Mostly I wanted to say I am glad I didn't grow up in the youtube age.



Tuttle
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12 Jan 2012, 12:26 am

Verdandi wrote:
I don't recall bashing her, but I do recall getting frustrated and annoyed with her generalizations about autistic people who don't meet her standards, and saying so.

I still don't get why people take that sort of thing as flaming or bashing.


From what I've read, you're one of the people who's acting more reasonable who also doesn't hide her disagreement. Too many people are talking about how she's a bad parent who doesn't know how to take care of her child or doesn't love her child.


If she's truly said those things about people who are high functioning, she really needs to get corrected. The services available for both high functioning and low functioning people are not nearly as many or as available as they should be. She's seeing a particular part, and its a problem that she's taking it out on higher functioning people to some degree, but that doesn't mean she doesn't love her son. I'd definitely want to explain to her how much we are lacking as well in support, and how much we do have to deal with, and how much we are autistic as well. Those comments of her do really bother me.

On the other hand, I don't blame her for being annoyed at wrong planet. Someone who has to take care of someone who needs constant attention reading about how people are arguing that autism isn't really a disability, its just a difference, and that people just need to understand them better, would be really frustrated. I'm frustrated and quite bothered by her saying someone like me isn't really autistic, but I'm not at all frustrated at her for not liking the WP community as a whole.

A lot of what it comes down to is simply, she doesn't have the resources she should have to help her take care of her son. I think at least most if not all of us can agree on that. She makes some statements which she really shouldn't, she posts videos which are controversial, but at the heart of it, its a mother who needs more than she's being given to give her son the best life he can have.


I don't want to bash her. I want to teach her. I want to let her know what my life is like. I want to let her know the areas I can relate to her son in, and let her know that I acknowledge he will likely always have difficulties I don't have. I want to let her know that no really, I do know what its like for someone to have hypersensitive senses. I do know what its like to be unable to control myself and meltdown. I do know what its like to be unable to take care of myself, speak, or move for periods of time. I do know what its like to have difficulties communicating. And let her know that despite these, I am lucky to be someone who has graduated college and that I'm aware that I'm able to do things her son cannot.

I want her to actually interact more with people who are higher functioning so she can learn from them.