How come so many people here treat AS like a race/club?

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MotherKnowsBest
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23 May 2012, 4:42 pm

Sora wrote:
Diamorphine wrote:
Sora wrote:
Diamorphine wrote:
To be honest, if I were mentally disabled


Confuzzling. What's your definition of mental disability/mentally disabled which is often used synonymously to "mental disorder"?

Don't you have a type of ADHD or something?

What do you think ADHD as according to the DSM-IV/ICD-10 is exactly?


Yes, I have severe ADHD. But when I said mentally DISABLED, I meant an IQ of below 50. A person with untreated ADHD isn't disabled, their life just sucks more than anyone elses. A person with an IQ below 50 won't be able to survive on their own, therfore qualifying as "disabled".


Okay, thanks for clearing that up.

Why an IQ of 50 however? Does your personal definition of disability differ that much from the official definition(s)?


Yes it does. The official definition of intellectual disability is an IQ of less than 70. Someone in the 70-80 range would find life difficult.

The way IQ works is they test a huge number of random people of the same chronological age. Then the results are 'standardised' ie fiddled with, so that on a Gaussian (bell) curve the average is 100 with the majority falling within 30 of either side and 5% at either end outside of these parameters.

The general population is then measured against this.



League_Girl
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23 May 2012, 4:47 pm

People who have an IQ in the 71-84 range are called slow learners and its not even considered a disability nor do they qualify for special ed. teachers don't even have to give them accommodations because there is no law to protect them. So they are left to struggle through life and school. I think it should be a disability and it sucks to fall through the cracks. But yet they ca still have a learning disability such as dyslexia or still have other disabilities like autism. Then they would qualify for help.



MotherKnowsBest
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23 May 2012, 5:18 pm

Quite right League Girl. It's like an autism diagnosis, there's that one point where they rule yes or no and people close enough to that measure to need help but not quite close enough are left to struggle.



friedmacguffins
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23 May 2012, 6:37 pm

I get caught up in the moment, and completely forget that I have a different way of thinking. As someone who does tend to systematize things, it gives me comfort to know I am not in a state of random chaos; my traits occur for a reason.

I believe that some degree of social utilitarianism is most convenient, but cannot say who is better suited between the AS and the NT. The NT is social, but the AS is utilitarian. Social people report having more difficulty acting appropriately when keeping order, for order's sake, rather than for sentimental reasons.



Matt62
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23 May 2012, 7:10 pm

I have disclosed my suspected ASD to one of my supervisors. Fortunately, she has a relative with AS, so it was not a huge disaster. But my employer now wants to know about ALL my health conditions. I am not sure about this, they want written statements on what I get treated for. Unfortunately, my IBD problems stretch back into 1992 (when I got that dx) so finding anything on that will be difficult.
OK, starting to digress too much here, I must say that it went better than I had hoped for. I seriously was not going to say anthing. But I also added as an adult, they are sill working on the autism thing.
Most of the time, my challenges do not effect my work performance much, if at all. There have been a couple of situations though, where I seriously have difficulties. Usually involving crowds or noisy infants. Sensory overloads are still possible for me, even at 50.
Hopefully, in time, ASDs might not be viewed any differently than wearing glasses. But its a long stretch until that day..
SweetLeaf: You do realize your depression is influencing everything you think & feel right? Been there, done that. But some day, hopefully soo, your world may not look as dark as it seems. It does get better.

Sincerely,
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23 May 2012, 7:22 pm

I've been admonished for not making suitable eye contact or affirming other people, in spite of exceeding quotas, by ten times, when left alone. When engaged, I completely forget what I was in the middle of doing, so would take several minutes to regain my composure.



Sora
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24 May 2012, 6:36 am

League_Girl wrote:
People who have an IQ in the 71-84 range are called slow learners and its not even considered a disability nor do they qualify for special ed. teachers don't even have to give them accommodations because there is no law to protect them. So they are left to struggle through life and school. I think it should be a disability and it sucks to fall through the cracks. But yet they ca still have a learning disability such as dyslexia or still have other disabilities like autism. Then they would qualify for help.


That's such an extreme. We have it the other way round which is probably just as extreme.

In Germany, students with an IQ somewhere in that range are automatically considered special ed and put into special schools either for the "learning disabled" or schools for people with a diagnosis of mental retardation and/or with severe multiple disabilities that require 24/7 care.

It's rare for someone with such an IQ score to be accepted into regular ed (even if they worked their way up and want to graduate the lowest/easiest regular ed school form to have a chance at getting a job after school, for example) unless their IQ is unknown and/or they went under the "radar". It's not so rare that kids who happen to have their IQ tested for some reason and scored in the 85-90 range end up in special ed as well.


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edgewaters
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24 May 2012, 6:53 am

Diamorphine wrote:
I know you're trying to not let your AS diagnosis limit yourself by saying it's not a disease, but it's incredibly counter-productive to start treating it like an exclusive club or race. It's as much of a race/club as schizophrenia, ADHD, and cancer.


Actually communities do form around things like schizophrenia and cancer. Simply put, people can relate with others dealing with the same issues. When the individuals also suffer from discrimination, something cultural is likely to form. This is just an inescapable facet of human nature - it begins as soon as there is communication.

Going so far as to think of it as a race or imposing standards by which to exclude others is something that is not inescapable, but it doesn't seem to be a common problem around here to my eyes. There are a few - as there are in any group, really - but they seem to be a minority.



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24 May 2012, 7:43 am

Ganondox wrote:
The thing is that antipsychotics are not safe; they have serious sideffects like a decrease I'm cognitive functioning. There is reasons to not want to take them besides pride.


Agreed. My wife has schizoaffective disorder, and was on some pretty strong meds for awhile. She eventually decided to stop them, and just stay on the antidepressant, because the schizo meds would pretty much make her useless. And when you have 4 young children, there's no time to be useless. Sure, she'd stop hearing voices as much, but that's probably due to the fact that she couldn't stay awake. The antidepressant keeps her stress and anxiety down, which keeps the voices at bay.


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ooOoOoOAnaOoOoOoo
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24 May 2012, 8:30 am

fleurdelily wrote:
ooOoOoOAnaOoOoOoo wrote:
Some people are natural questioners. They question their own diagnosis. They question others self diagnoses. Since Autistics are all different from one another, they might even question others actual diagnoses. Perhaps people who question do not realize how it looks to others?


They're free to question. They're not free to be condescending. They have to learn to have some regard for the journey of self-discovery that others are on. Questioning is good. Judging a person who is vulnerable and stuggling is NOT.

It's not easy telling when someone is struggling over the internet sometimes, or know someone is upset, etc. Sometimes, it just seems like someone is wondering something about themselves and is looking for feedback. When someone posts such a topic, some respond with the suggestion it's better, in their opinion, to get a professional diagnosis. The professional diagnosis is just another opinion from another perspective about an individual. No one has to agree or disagree with it. The person receiving the diagnosis is not branded for life just because one professional has determined something about them.
This is what is happening on WP. People are just offering opinions. It's up to the individual to decide how much weight each opinion carries.



Tyazii
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24 May 2012, 8:32 am

I agree with you. But I'd like to point out that "race" is a myth. There is more difference between me and the average person, than there is between all of the "races" of people.



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24 May 2012, 8:39 am

The term "ethnic group" is more accurate. A different race sounds like an alien from another planet.



soutthpaw
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24 May 2012, 9:21 am

Maybe a sub-culture bound by common experiences, similarities, interests, thought processes. or we could just call it Autistic Fandom :lol: .. definitely not a club cuz we can't just "leave" it whenever we want. :lol:


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wokndead
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24 May 2012, 9:40 am

soutthpaw wrote:
Maybe a sub-culture bound by common experiences, similarities, interests, thought processes. or we could just call it Autistic Fandom :lol: .. definitely not a club cuz we can't just "leave" it whenever we want. :lol:


Exactly.
"Forget this club, you guys, I'm out. Oh... right... nevermind. I'm still here..." :lol:


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24 May 2012, 11:21 am

Sora wrote:
League_Girl wrote:
People who have an IQ in the 71-84 range are called slow learners and its not even considered a disability nor do they qualify for special ed. teachers don't even have to give them accommodations because there is no law to protect them. So they are left to struggle through life and school. I think it should be a disability and it sucks to fall through the cracks. But yet they ca still have a learning disability such as dyslexia or still have other disabilities like autism. Then they would qualify for help.


That's such an extreme. We have it the other way round which is probably just as extreme.

In Germany, students with an IQ somewhere in that range are automatically considered special ed and put into special schools either for the "learning disabled" or schools for people with a diagnosis of mental retardation and/or with severe multiple disabilities that require 24/7 care.

It's rare for someone with such an IQ score to be accepted into regular ed (even if they worked their way up and want to graduate the lowest/easiest regular ed school form to have a chance at getting a job after school, for example) unless their IQ is unknown and/or they went under the "radar". It's not so rare that kids who happen to have their IQ tested for some reason and scored in the 85-90 range end up in special ed as well.



I used to score in the borderline range and I still qualified for special ed because of my speech problems and other things. So it was obvious through tests I had something. When I scored an 88 at age ten (which is average), I still qualified for help and the doctor who did the report said based on my other scores in other area, I am in the average or above average range so my overall IQ score was not accurate.


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Quite right League Girl. It's like an autism diagnosis, there's that one point where they rule yes or no and people close enough to that measure to need help but not quite close enough are left to struggle.



I recently heard of borderline autism and it's where the person has autistic characteristics but not enough to be on the spectrum but they have enough to struggle with it so they are treated like they have it. Mmmm. Why do these people get help but not slow learners?



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24 May 2012, 11:52 am

soutthpaw wrote:
Maybe a sub-culture bound by common experiences, similarities, interests, thought processes. or we could just call it Autistic Fandom :lol: .. definitely not a club cuz we can't just "leave" it whenever we want. :lol:


Damn! *tosses resignation letter in the trash*