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Nexus
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21 Nov 2006, 9:57 pm

Besides, maybe if the general public was educated to realize that we're human beings too and our state of mind is who we are and you can't change that, the government wouldn't need to spend so much money to force education, and at the same time, we live freely and treated fairly by society. I mean if society wasn't so superficial or ignorant about us, the stress of living in general would instantly fall to near-zero for most of us and we'd be better off.

I mean it's sick to imply a cure because it's like destroying a fundamental part of an Autistic person's personality (you're mentally killing who they are). There's nothing wrong with us, it's society that has the problem about our existence. To imply we need to be cured in any way, because we all are 'suffering', to me is like how Hitler implied that anyone non-Aryan was inferior and needed to be incinerated or gassed. Same thing, instead one's mental genocide, the other physical genocide.


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MagicMike
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21 Nov 2006, 10:09 pm

I want a cure, at least because there are most likely people out there that want a cure. I am happily willing to trade my excellent vocabulary and ability to memorize historical dates for the ability to socialize and realize my emotions and stuff.



SteveK
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21 Nov 2006, 10:18 pm

OK, Nexus....

But if they made things more comfortable for AS people, the LFA and HFA would be better ALSO. If they started TEACHING people, and trying to have everyone live up to their potential, even some of the worst LFAs might end up doing OK. Frankly, the US has paid a LOT of money to hold people down! "Teachers" are paid to literally do NOTHING! There are 12th graders that couldn't read the first grade primer that used to be STANDARD in the US.

When you stop and think! What would WE be like? What would HUMANS be like? What would this WORLD be like? What would any of it be like if some people didn't have that SPARK that caused some humans to study things and react in such a way?

Just look at einstein! ALL stories have one little thing in common! Einstein was a NOBODY! Nobody thought he would ever do anything. One day something clicked, and he became known worldwide. If he had not encouraged the US to build the bomb, the nazis or Japanese would probably have done it first. GRANTED, that spark got us into that to begin with. If not for that spark, the human race probably would have vanished long ago. A lot of LFAs may just not have that spark. Even a lumberyard covered in kerosene won't light up unless there is at least a spark.

After all, isn't that what makes the average AS person so smart? Maybe a little more kerosene, and an earlier spark?

Steve



SteveK
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21 Nov 2006, 10:20 pm

Gee Mike,

I'm NOT! Maybe we should figure out how to make everyone ELSE AS!

Steve



MagicMike
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21 Nov 2006, 10:22 pm

Hi Steve. Not every person with AS is alike. Some people embrace it with pride, and others wish they could be normal. I happen to fall into the latter camp.



KBABZ
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21 Nov 2006, 10:25 pm

I have no trouble accepting the fact that you would like a cure. People have a right to do what they want with no hesitation. I'm personally in the 'I'm happy as-is' camp, but I don't mind if you're in the other one. SteveK, on the other hand...


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Remnant
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21 Nov 2006, 10:44 pm

SteveK wrote:
A candle that burns twice as bright may burn half as long. 8-( Even NTs have depression. I had depression and, although nobody seems to understand chemical depression, they never said it may have been because of some other disorder. ALSO, there are TONS of treatments for depression, and most have SUICIDE as a possible sideeffect! IRONIC, HUH! I think my depression was due to dietary problems. Since I started supplementing certain amino acids, the depression seems to have reversed. Yesterday I felt REALLY happy! The past couple months have been among the best. I'm going to have to check that out. STILL, my current big problem would probably never have happened if I was always treated as I earlier was, and wanted to be. It was just DUMB LUCK that ANYONE could have! People wonder how I could have such a problem when most seem to have it happen much later. Research a little, and you find 4 things!

1. Almost NO relation to age outside of increase of life experiences making older people more likely.
2. Some marfan and similar sufferers have this problem, and most happen in the 20s!
3. Some are at increased risk because of a minor birth defect that may never be detected earlier.
4. Some have a minor infection 20-40 years BEFORE the event! In other words, I could have caught a cold when I was 2 or 22 that would affect me NOW!

NO mention of depression, lifestyle, or AS or any autism increasing risk!

Steve


OK, maybe if I had read the right message somewhere else, I would already know what problem you are talking about. PM me if you would, or answer here, please.



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21 Nov 2006, 10:48 pm

KBABZ,

I hope you're joking. Your statement could be meant 3 ways. Hopefully, it was just a joke. I am not against mike. Frankly, the senseless obsession with sports even towards violence, and the struggle for personal luxury at all costs, and the games, are things I can do WITHOUT. I wish it was gone. I'm sure mike would agree if he thought more about it.

That said, I would love to be better in the areas I am worse in. Heck, I'd give up a lot of the worthless trivia for that. But give it all up? NO WAY!

BTW KBABZ... If you mean the statement as a slight against me, please tell me why. I have probably been supportive in like 90+% of my posts. I don't feel I have been insulting(outside of 2 threads). Even THEN, it is debatable.

Remnant,

I was simply saying that dumb luck caused my aortic valve to act like a bicuspid, even though it was tricuspid, and it created a timebomb that eventually dissected my aorta. My point was simply that my one and only expensive problem had nothing to do with AS but, if I could have lived as I wanted, I would probably have never had the problem!

Steve



Last edited by SteveK on 21 Nov 2006, 10:57 pm, edited 1 time in total.

willow
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21 Nov 2006, 10:54 pm

I just feel like people tend to view the "debate" as how it relates to them, personally. please, can't you see beyond yourself and your viewpoint?

I am thrilled that my sons hug me and tell me that they love me. over the weekend, I saw a child with severe autism...he sat on the ground and stared blank-faced into the air, until someone spoke of lawn mowers (a favorite of his). then he grunted to show his pleasure.

does that child not deserve the right to be "cured"?

do you honestly think, in his grunting, that he is content with his communication? happy? feels loved?

I can see both sides...I truly can.


the *easier* side, is here. where people with AS can say NO. because you HAVE a voice.
but yourself in their shoes, if you can.

I don't think anyone should be forced to do anything. but I believe that everyone should have a choice, if the choice is possible.


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Remnant
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21 Nov 2006, 11:01 pm

MagicMike wrote:
Hi Steve. Not every person with AS is alike. Some people embrace it with pride, and others wish they could be normal. I happen to fall into the latter camp.


This is just as good a cue as any.

The people here seem to have a lot of kinship with me and my sister. High IQs, a complex style of talking, diverse interests and abilities, and we have been convinced to live at lower levels than our native capabilities should allow.

Much of this is the way the world works. Morons make it into higher paying jobs for various reasons, and that's because there are very few truly intelligent people who make a living by slitting other people's throats to relieve themselves of the competition.

If we have "peculiar" tendencies, we also have the tendency to think with parts of our brains that are not used by so-called normal people, or not so often. What do normals do when they have to do math? Talk about peculiar behavior. They get headaches, they get frightened and angry, they may actually hit themselves. Welcome to my world, Norm. Tapping one's self on the head does seem to help mental focus, possibly by entraining brain waves or by dislodging self-defeating cycles of thought. How much of our so-called symptoms are learned behaviors and physical symptoms caused partly because of the way people treat us and partly because we do different things. Think about it. The chess player or the mathematician uses his or her brain differently from the football jock.

"Curing" autism doesn't seem right when I look at it this way. I would like to know how many of us are geniuses AND among those who seem to be ret*d, how many of them are like Dibs in that book, Dibs: In Search of Self. A kid could be a genius and completely shut down so that measurements of intelligence are difficult to impossible. A perfectly normal mind could be that way because the person is responding badly, or normally, to a bad situation.

We need our geniuses more than ever before. I think if we lose autism we will lose our geniuses.



Remnant
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21 Nov 2006, 11:05 pm

SteveK wrote:
KBABZ,

Remnant,

I was simply saying that dumb luck caused my aortic valve to act like a bicuspid, even though it was tricuspid, and it created a timebomb that eventually dissected my aorta. My point was simply that my one and only expensive problem had nothing to do with AS but, if I could have lived as I wanted, I would probably have never had the problem!

Steve


Interesting. What would you have done to make the problem better?

Does this problem cause blood to leak into the chest cavity?



SteveK
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21 Nov 2006, 11:18 pm

Well, I HAVE admittedly been talking about people with AS that were similar enough that, even HERE, they wonder if they belong. Few, or no, tics, verbal communication problems, etc... Heck, if you saw me, or heard me, you'd wonder why I am here. Yet I certainly am different, and it isn't just in my relatively hidden lack of social skills.

One girl here acted like she had lots of problems, With a little work, they could all vanish, and may even vanish just over time. In the end, she may end up having something to just laugh about, and be happy for it all.

I'm sure NOBODY would argue against curing "fragile X", and similar problems. The TICS, and lack of verbal capability are certainly bad. Look at the term autism, etc... and you'll find that wasn't the main deal.

BTW You'll notice I said TICS. I don't know why, but the idea of stims don't seem that bad, etc... The method, theory, and description almost seems like a kind of pacing. Most seem to be relatively subtle. Again, nobody pointed mine out. Drowning Medusas seemed overly complex, etc... but, when pressed, she seemed to indicate THEY were subtle. And HEY, it is almost like tapping to the beat of music. Not distracting, maybe comforting, and voluntary.

Steve



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21 Nov 2006, 11:22 pm

Sorry about that Steve, that was a mis-interpretation there. It's probably because of your uses of capitals, making it seem like you're shouting or overemphasizing what you're saying, which is most likely not the way it's intended. I apologize for my mistake. I prefer using italics to capitals unless I really want to emphasize what I'm saying.


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SteveK
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21 Nov 2006, 11:52 pm

I would have kept my own distance, changed hours to get more done in less time, etc... I even told my boss that 9-3 was my best time. I would have made concessions, etc... Heck, my mother once got involved with some health care thing, and got sick. She INSISTED on hugs(I saw no sense, etc, but capitulated), I ended up getting a nasty cough, and found out we had both been exposed to TB. THAT could have been the trigger!

ALSO, I would have been less tempted to move away from califonia, etc.... Less stress and more control.

NO, this was my AORTA! a little pin prick could have caused blood to spray all over, and I would have been dead in MINUTES! I had the operation to replace that part of my aorta before it totally split. Once it splits totally, you are basically DEAD!

Steve



Remnant
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22 Nov 2006, 12:20 am

Well, I asked because I didn't know. I need my heart looked at but I hate being messed with and I don't have medical insurance.

I wouldn't know that a pinhole in the aorta would do that unless someone who did know told me.



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22 Nov 2006, 12:39 am

Sorry if I overemphasized.

I actually called 911 for myself. 8-( You don't generally find this in a checkup, because it happens so fast. If a GOOD doctor checked MANUALLY, or I had something like an echo cardiogram, they COULD have maybe found the bad valve earlier. Alas, most people don't know what to listen for, and most tests are automatic. 1 in 5000 cardiac problems is like mine. Most of the rest are myocardial infarctions.

BTW at least if you are in the US, get SOME sort of insurance. It turns out there is a SCAM in the industry. They will charge you typically twice what they would if you had insurance.

$100000 charge without insurance means you pay $100000

$100000 charge WITH insurance and it may be lowered to $50000! If the insurance pays 80%, they pay $40000, and you pay $10,000!

Steve