Uta Frith's comment
neilson_wheels
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Maybe I misread it, maybe we both did. Rigid thinking, me?
The point I meant was "diagnosis and the DSM" not just "diagnosis and concepts of......", bringing the DSM into things always seems to steer the argument one way, or it did last time I was on here.
I think this is pretty much what it means to require support.
Some people seem to take the extreme view that the idea is that if you are not dead without help, you are fine. But I believe the diagnostic criteria and the medical thinking behind those criteria, take a more nuanced view. If your ability to function socially and work is impaired because of your symptoms, then you have a problem of clinical significance.
I agree but my experiences have so far been to be assessed for "classical" autism by one "professional" and then told by another that I was too highly functioning to be diagnosed. I really don't feel like trying third time lucky.
Quite possible, for me it does not matter whether I'm categorized as an AS, a BAP or something else, for others here I see that it is important and I'm not trying to demean that at all. I just want to highlight the hundreds of shades of grey in between.
I have a lot of comments to make on here, but first,to put the recent posts into perspective, a person who is autistic may not need help because of his surrounding circumstances in that a situation is not stressful, such as he has money or because of circumstances fell into a good job, but then all kinds of things could go wrong, so these various diagnostic criteria may be fine in terms of getting help from the outside for a person who is not able to function, but this should not define who is autistic. For instance, to give an episode from when I was forty years old and living in a rented duplex as a single mother with a ten year old child: There were two doors, one mine and one to the unit of the couple next door, and that guy (who I really had nothing against up till then) one day painted his door a very vivid kelly green and it jarred my delicate color sense so much that I freaked out and actually scraped the paint off his door. Needless to say my child and I were evicted and miraculously with the help of my boyfriend at the time found this great place where I have been living for over forty years....and I'm lucky I didn't get evicted from here as I had all kinds of problems with very noisy neighbors, and there was all kinds of serious drama around that, but then my parents died and I got some money (all gone now:-) and rented the place above this one, so now I have dead quiet most of the time. If that had not happened, then anything could have gone wrong and I would have gotten assistance, but the problem is things can go very wrong before a person can get assistance or in ways they cannot get assistance, and if I went to a therapist it is unlikely I would have mentioned the incident about scraping the paint off the door and other such things, like how I cut the red stripes out of blankets:-).
People have a choice of looking at being autistic around getting aid and around how society treats you, etc., and this is one aspect, but they also have the choice of focusing on understanding your own mind. That is an entirely different venture. of course a person can do both, but generally the former supercedes the latter. Imo Uta Firth is not going to help autistic people do the latter. I know some think she is doing so, but from my perspective that is an illusion. Yes, it might maybe help a little bit to know that autistic people are detail oriented and then to look at oneself and see, yes, I am detail oriented, and so try to work on that, not that most people even probably can or do work on it, and I do not even know if they should, but in short it is all just doing further detailing inside of detailing. To really understand oneself is something else. It has the potential to transform your mind and even to change the physical brain, yes, change it, and it will ultimately affect other minds and brains, also, because all people are interconnected. But there is a tendency to look at oneself looking at details without realizing one is making it into a detail. Now how does that dynamic work? If you see how the actual dynamic works, then that opens a door. but if you say you are just like this---this is how you are and other people should accept that, then that is a different ballgame. Yes, maybe other people should accept that, though I am not sure they always should, but the point is that ones own mind is stuck in a box, and I think this particular psychologist is encouraging autistic people to be stuck in that box. She is framing things in certain ways so as to make a very simplistic picture, and I think she's doing it this way because it supports her personal special interest and her profession.
None of this means that a person should not accept himself as he is, but the problem is accepting ones own wrong thinking and believing it is true, so making all of it literal in a way that it really is not and then imposing this limited view on oneself and other people and expecting them to accept it and even getting angry if they do not
From a clinical point of view probably what she is doing has some value but I think many people are way overestimating that value.
I think the subject is fascinating, though. To anyone who is following this thread, are you learning anything about yourself from it? To me having a bug up my b*tt about this person, Uta Firth, would not be interesting. There would have to be some kind of learning around it that would give the experience value. I do think we all have these various bugs, though, and that these bugs in some way move us and move society. Often we are just bitten up, but there is a way to consciously use that kind of experience. Look what happened when people tried to kill certain bugs with ddt--the bugs eventually became immune to it and just came back again, even stronger than before..
That is terrible. So you had an Autism diagnosis but wanted and Aspergers diagnosis and the diagnostician said you were subclinical? That is weird and confusing and a sign of how urgently we need better diagnostic tools. I look forward to the day when real metrics like genotyping and MRIs result in reliable diagnoses. I don't think that's just a fantasy.
I agree with you on this.
neilson_wheels
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I struggle with your assessment. As autism is still not fully understood, very far from it in my opinion, then there is no other option than to keep detailing the details. The trouble then is you end up with so much information that it is hard to interpret anything useful from it.
Research continues and it will need to carry on to make the discoveries that you seem to want. I don't think there is one single person who will crack the enigma, so it requires the work of many to find the solution. If you have found a way to transform your mind and change your brain that's fantastic but can you explain that to a room of psychologists?
Sorry but I don't know if having a "bug up the butt" is a good thing or a bad thing?
neilson_wheels
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That is terrible. So you had an Autism diagnosis but wanted and Aspergers diagnosis and the diagnostician said you were subclinical? That is weird and confusing and a sign of how urgently we need better diagnostic tools. I look forward to the day when real metrics like genotyping and MRIs result in reliable diagnoses. I don't think that's just a fantasy.
Thanks and yes pretty rubbish. These were two separate events, the first was after a moment of clarity as described on page one:
At least it got me in the loop of some degree of medical care for other issues that were not being treated. The second comment was made much later and after I had waited a number of months to have an assessment only for the centre to be closed due to funding cuts.
My only real immediate concern with whether to pursue a diagnosis is that my father who is most likely on the spectrum and yet undiagnosed wants to leave his body for medical research use. While a confirmation would make little difference to either him or myself, it could ultimately help others after they have had a chance to look at his brain.
Also agree that metrics would be the best option, but also very interesting to see the research on babies that show those with autistic responses do not always receive a confirmed diagnosis later in life.
People can have social problems without being autistic, like being shy, like having social anxiety. And attributing personality traits to autism is different than having autistic traits.
Also my post was about how NTs try to make autism relatable. I'm also saying that they don't, but that think they do because of a misapprehension of the condition.
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Last edited by Acedia on 09 Apr 2014, 1:58 pm, edited 2 times in total.
I agree on this. All people - including autistics and NTs - are supposed to do some adjustment to the surrounding society in which they spend their lives. This is why I find it striking that the box-experiment - mimicking unreasonable behavior - suggests something is wrong with autistic people in this regard. What could be the connection to theories like central-coherence, theory of mind, and sensory sensitivities? Does it mean that being somewhat detached from the environment results in more concrete, logical thinking?
My opinion on this is that she's not supposed to provide immediate clinical advantages for autistics. The film was aimed at the general public, providing a content that was tailored to them. The question is, does it any good for autistic people? They are so diverse that I'm afraid there isn't a simple, neat answer to this question.
One question that was raised in the film was this one: How come some children with autistic traits don't develop the disorder while others (with seemingly the same level of traits) do? There could be dozens of contributing factors to autism in each case and it might be next to impossible to cover all of them with metrics.
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Like when autistic people rock back and forth, NTs assume they are doing it because they are anxious, this is because they can relate to that, even if the rocking that people with autism do is mechanical and sustained, and doesn't even look like the subtle rocking people do when sad or anxious.
Many people on here post things like they think they might flap, but then go on to describe normal physical expressions of emotions. People confuse their interests and hobbies with the narrow and circumscribed interests people with autism have. And people confuse the normal sensory annoyances they have, like the hatred of certain sounds, with the sustained sensory problems that people with autism have.
Although there is another thing that people do here, which is demarcate particular behaviors done in particular ways as the only way autistic people would do them. Like, autistic people can and do rock in response to anxiety, and can and do flap in ways that might be perceived as "normal expressions of emotions" at least in description but perhaps not so much in reality. Or talking about sensory issues might be confused with "normal sensory annoyances" even if the description is not intended to communicate that, and the experience is quite atypical.
I think this is at least partly related to the aspect of selective attention sometimes called the "Baader-Meinhoff phenomenon"-
http://www.psmag.com/culture/theres-a-n ... non-59670/
It is often best to have outside perspectives to check your perceptions at this stage.
When I was wondering about this I realized that a former boss had been dropping hints that she believed I was on the spectrum for years, though I had been too obtuse to pick up on that. I called her to verify this impression and she told me many things that she (also diagnosed with Aspergers) had observed. In many cases, they were behaviors that I was quite unaware of.
Yes, I did similar. I asked multiple people both on and off the spectrum and the consensus was that I was pretty "spectrummy."
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People can have social problems without being autistic, like being shy, like having social anxiety. And attributing personality traits to autism is different than having autistic traits.
Also my post was about how NTs try to make autism relatable. I'm also saying that they don't, but that think they do because of a misapprehension of the condition.
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Also, people can have severe social impairments that are not autistic (although many may resemble autism). Personality disorders, for example, often feature such impairments.
The bolded bit so much. That really frustrates me.
People can have social problems without being autistic, like being shy, like having social anxiety. And attributing personality traits to autism is different than having autistic traits.
Also my post was about how NTs try to make autism relatable. I'm also saying that they don't, but that think they do because of a misapprehension of the condition.
---
Also, people can have severe social impairments that are not autistic (although many may resemble autism). Personality disorders, for example, often feature such impairments.
The bolded bit so much. That really frustrates me.
This is very interesting. This mechanism is one of the primary ways that people understand other people so it isn't going away anytime soon. One problem is that it becomes a sort of aggressive projection. "I know what you mean, you really mean X," they say--when it isn't what you mean at all. But it is what they would have meant if they had said such a thing, so they think they know, because they are trying to relate.
One of the things my boss said to me when she was trying to let me know that she thought I was on the spectrum came in response to my saying "I used to think that most people thought like me, but then I realized most people don't think like me." She looked at me with a strangely intense expression and said with great emphasis, "No, they really don't think like you." Being clueless at the time, I had no idea what she meant.
It's hard.
Also, about foxfield's quote, the DSM 5 criteria are actually about the causes too. Specifically criterion E. "These disturbances are not better explained by intellectual disability (intellectual developmental disorder) or global developmental delay. " this goes to cause, not just effect.
Re the box with the sliding top experiment, I saw this program on Nova today about these experiments with cockatoo's, a bird that is very smart and can solve problems, such as pick locks, and the people running one experiment needed to wear sunglasses so the bird wouldn't pick up clues from the movement of their eyes....is it possible the autistic children somehow picked up clues that they were not supposed to do the tapping part before they opened the box::-)))? And you don't need eye contact to pick up those kind of clues...subtle muscles movement and/or voice tone is plenty ample. Imo, we can assume the psychologists probably did not want them to do the tapping part, asif the autistic children did not tap, this would support their hypothesis...
From the Nova program, " Chimps, crows and parrots share that they live in groups...."The key is not the physical nature of these animals but the environment that has made them the way they are" ..."complex social lives may create better problem solvers"...crows make 3 kinds of tools,,some of them complex multi-step tools...,and pass the knowledge of how to make them to their offspring...
Perhaps having more than one kind of brain in the same human group would give this group a better chance to survive then all in the group being exactly the same....in very simple conditions this might work differently in regard to an interdependent group brain than it does today.
Last edited by littlebee on 11 Apr 2014, 2:17 pm, edited 1 time in total.
That's very interesting, but I think that the children who did not tap on the box were better problem solvers, and that's why they didn't tap. Tapping didn't solve the problem of getting the boat out of the box.
It's a matter of being interested in how things work and understanding how things work, as opposed to being interested in the social dynamics of doing things.
Edit again:
The autistic kids were probably not very good at picking up cues from the experimenters in the first place.
The world does need two kinds of people.
I threw in the crow stuff since I just watched it and it seems in some way it could be relevant...but I kind of think what you think,which is what I wrote originally. The point about the sunglasses is that these experiments aren't that pristine at all, and open to many interpretation and much bias in the experimental set-up and the tabulating and conveying of data. Also, it should be mentioned that that knowing how to get adults to like you is a form of problem solving...there are different ways to look at the same thing...which is why I think having two kinds of brains in a tribe, each specialized in different ways, could aid in the survival of that tribe....
I would think any young scientist-to-be would want to test if there was a cause-effect relationship between tapping on the box and a boat appearing inside the box.