How do you feel about "invisible" autistics?

Page 6 of 10 [ 156 posts ]  Go to page Previous  1 ... 3, 4, 5, 6, 7, 8, 9, 10  Next

BTDT
Veteran
Veteran

User avatar

Joined: 26 Jul 2010
Age: 61
Gender: Non-binary
Posts: 7,719

29 Jul 2016, 3:25 pm

Perhaps if enough older women told their stories with the complaint that they can't afford an official diagnosis, that the professionals who should know better would learn how to diagnose autism in females.



anagram
Veteran
Veteran

User avatar

Joined: 4 Nov 2012
Gender: Male
Posts: 1,433
Location: 4 Nov 2012

29 Jul 2016, 3:37 pm

somanyspoons wrote:
Well I just had a person in my professional life tell me that autism happens when someone steals your soul. And she was NOT KIDDING.

Image

that reminds me of an instance once when i was temporarily sharing a house with strangers in another country, which happens to be the country my ancestors came from. this girl (party-girl type) asks me where i'm from. i tell her where i'm from. she looks shocked and confused, then intensely stares at me and my face and my arms and my face again for several seconds, and then utters, "but... you're white!". well, you don't say!

wise as a pudding past its expiration date, subtle as godzilla in a bright pink bathing suit. i thought i was supposed to be the autistic one in the room... :lol:

she was later dubbed as "the brains" by the owner of the house. good laughs


_________________
404


somanyspoons
Veteran
Veteran

Joined: 3 Jun 2016
Age: 49
Gender: Male
Posts: 995

29 Jul 2016, 5:29 pm

BTDT wrote:
Perhaps if enough older women told their stories with the complaint that they can't afford an official diagnosis, that the professionals who should know better would learn how to diagnose autism in females.


Doctors have a long history of ignoring the unique needs of females. Its a nice idea, but I suspect its going to take more than telling their stories. The sad reality is that doctors will go there when research is done. And research will be done when money is allocated.



kraftiekortie
Veteran
Veteran

Joined: 4 Feb 2014
Gender: Male
Posts: 87,510
Location: Queens, NYC

29 Jul 2016, 5:31 pm

Doctors might have a "long history" of ignoring female concerns.

But even doctors can grow. And they grow through education.

We all can't be Dr. Martin Luther King---but we can at least emulate him in some ways.



anagram
Veteran
Veteran

User avatar

Joined: 4 Nov 2012
Gender: Male
Posts: 1,433
Location: 4 Nov 2012

29 Jul 2016, 5:48 pm

kraftiekortie wrote:
We all can't be Dr. Martin Luther King---but we can at least emulate him in some ways.

or rosa parks. one doesn't exist without the other. i read a little about her life story the other day, i found it fascinating


_________________
404


ASS-P
Veteran
Veteran

User avatar

Joined: 9 Feb 2007
Age: 65
Gender: Male
Posts: 8,980
Location: Santa Cruz , CA , USA

29 Jul 2016, 6:46 pm

...What's the story ?






kraftiekortie wrote:
I do okay, not great, most of the time.

However, I still get in trouble because I misinterpret subtle things.

The other day, something happened in a courtroom. I wasn't supposed to be there. The court officers were trying to use subtle hints to get me out of the courtroom. I didn't get the hints. I got in slight trouble.


_________________
Renal kidney failure, congestive heart failure, COPD. Can't really get up from a floor position unhelped anymore:-(.
One of the walking wounded ~ SMASHED DOWN by life and age, now prevented from even expressing myself! SOB.
" Oh, no! First you have to PROVE you deserve to go away to college! " ~ My mother, 1978 (the heyday of Andy Gibb and Player). I would still like to go.:-(
My life destroyed by Thorazine and Mellaril - and rape - and the Psychiatric/Industrial Complex. SOB:-(! !! !! !! !! !! !! !! !! !!


kraftiekortie
Veteran
Veteran

Joined: 4 Feb 2014
Gender: Male
Posts: 87,510
Location: Queens, NYC

29 Jul 2016, 6:48 pm

I don't want to air it in public.

But nothing major came out of it.



btbnnyr
Veteran
Veteran

User avatar

Joined: 18 May 2011
Gender: Female
Posts: 7,359
Location: Lost Angleles Carmen Santiago

29 Jul 2016, 7:57 pm

It is fine for people to tell their stories of not being diagnosed and still not being able to afford diagnosis, obstacles to getting assessed, etc. As long as they don't say they are autistic without official diagnosis, they are not misrepresenting anything. It is fine to say they suspect they have autism, but have trouble getting assessed.


_________________
Drain and plane and grain and blain your brain, and then again,
Propane and butane out of the gas main, your blain shall sustain!


goatfish57
Veteran
Veteran

User avatar

Joined: 12 Nov 2015
Gender: Male
Posts: 621
Location: In a village in La Mancha whose name I cannot recall

30 Jul 2016, 5:35 am

Why does it matter? Their pain is real.


_________________
Rdos: ND 133/200, NT 75/200

Not Diagnosed and Not Sure


somanyspoons
Veteran
Veteran

Joined: 3 Jun 2016
Age: 49
Gender: Male
Posts: 995

30 Jul 2016, 10:42 am

goatfish57 wrote:
Why does it matter? Their pain is real.


Don't take the bait!

This person goes from thread to thread, derailing it by claiming that only people diagnosed with Austism have autism, and causing fights. At this point, its really more of a trolling, although I suspect what we have is an autistic person being rigid and hyperfocusing. But really, it seems to be all he can think about, and arguements certainly aren't going to change his opinion. It will, however, change the tone of this thread, and completely monopolize it if you let it.



goatfish57
Veteran
Veteran

User avatar

Joined: 12 Nov 2015
Gender: Male
Posts: 621
Location: In a village in La Mancha whose name I cannot recall

30 Jul 2016, 11:51 am

Thanks for the heads up


_________________
Rdos: ND 133/200, NT 75/200

Not Diagnosed and Not Sure


teksla
Veteran
Veteran

User avatar

Joined: 29 Jul 2015
Gender: Female
Posts: 783

30 Jul 2016, 7:36 pm

somanyspoons wrote:
goatfish57 wrote:
Why does it matter? Their pain is real.


Don't take the bait!

This person goes from thread to thread, derailing it by claiming that only people diagnosed with Austism have autism, and causing fights. At this point, its really more of a trolling, although I suspect what we have is an autistic person being rigid and hyperfocusing. But really, it seems to be all he can think about, and arguements certainly aren't going to change his opinion. It will, however, change the tone of this thread, and completely monopolize it if you let it.

Do you mean me (the OP) or the guy who posted before you?


_________________
Diagnosed with
F84.8 (PDD-NOS) 2014
F33.1 Major Depressive Disorder, recurrent, moderate.


somanyspoons
Veteran
Veteran

Joined: 3 Jun 2016
Age: 49
Gender: Male
Posts: 995

30 Jul 2016, 9:03 pm

teksla wrote:
somanyspoons wrote:
goatfish57 wrote:
Why does it matter? Their pain is real.


Don't take the bait!

This person goes from thread to thread, derailing it by claiming that only people diagnosed with Austism have autism, and causing fights. At this point, its really more of a trolling, although I suspect what we have is an autistic person being rigid and hyperfocusing. But really, it seems to be all he can think about, and arguements certainly aren't going to change his opinion. It will, however, change the tone of this thread, and completely monopolize it if you let it.

Do you mean me (the OP) or the guy who posted before you?


Sorry. I meant the person to which you were responding.



goatfish57
Veteran
Veteran

User avatar

Joined: 12 Nov 2015
Gender: Male
Posts: 621
Location: In a village in La Mancha whose name I cannot recall

31 Jul 2016, 7:03 am

Me a troll? I hope not.

I do like bridges.

Image


_________________
Rdos: ND 133/200, NT 75/200

Not Diagnosed and Not Sure


ZenDen
Veteran
Veteran

User avatar

Joined: 10 Jul 2013
Age: 82
Gender: Male
Posts: 1,730
Location: On top of the world

31 Jul 2016, 10:52 am

btbnnyr wrote:
It is fine for people to tell their stories of not being diagnosed and still not being able to afford diagnosis, obstacles to getting assessed, etc. As long as they don't say they are autistic without official diagnosis, they are not misrepresenting anything. It is fine to say they suspect they have autism, but have trouble getting assessed.


Hi btbnnyr (is that funny "cat talk?" :D ),

I self-diagnosed at age 69. And I'm very happy I finally did so....you might even be happy for me if you knew me. In fact, if you knew all of the folks here who self-diagnosed, you might feel the same way about them as well.

But you feel, I can not say what I know to be true? Even if it helps ease the hurt I felt for my entire life??? Why is that? Don't you feel I have a right to ease my pain using what I know to be true??? What if I'm only 90% correct, and the other 10% came from another reason(?)...do you feel this would diminish the validity of my belief?

I'm not using up valuable public resources needlessly....please explain how my having a more peaceful life diminishes your life...and how do you think that's un-reasonable?

Do you feel my or other's claims may, somehow, increase the trials of the "professionally diagnosed" aspies on our forum (besides yourself)??? Can you explain and show examples???

I don't treat your position as "bait" but instead as a seriously held concern, that you would share with others. Let's discuss other alternative points of view and their value to the "claimer" and to society. :D

P.S. If it hasn't happened to you then it's hard to explain the absolute certainty that comes with suddenly (much comes flooding in after the first moments of realization) having all those slights, lack of friends, etc., etc....., all those things you never understood....literally HUNDREDS of situations, questions, scenes from your life.....throughout your childhood (and adult life for most here) ALL FALL INTO PLACE AT ONCE.

I don't want to speak for all self-diagnosed adults on this forum but many folks here have described finding out in the same (or nearly the same) words. If you've never had this happen to you then you may have trouble understanding this situation. Let's talk. :)



goatfish57
Veteran
Veteran

User avatar

Joined: 12 Nov 2015
Gender: Male
Posts: 621
Location: In a village in La Mancha whose name I cannot recall

31 Jul 2016, 11:01 am

Yes, an epiphany moment. The magic when the book of knowledge opens up and you get a quick look.


_________________
Rdos: ND 133/200, NT 75/200

Not Diagnosed and Not Sure