Page 7 of 10 [ 154 posts ]  Go to page Previous  1 ... 4, 5, 6, 7, 8, 9, 10  Next

WorldsEdge
Velociraptor
Velociraptor

User avatar

Joined: 13 Dec 2009
Age: 60
Gender: Male
Posts: 458
Location: Massachusetts

12 Feb 2010, 9:16 am

InaWoodenHouse wrote:
Well what do you know, NLD hasn't been included anywhere in the DSM. Again. ARGH!


I was wondering about that, but just figured I wasn't finding it.

I'm also kind of surprised that there are no changes of any kind proposed for AD/HD. Some of the stuff I'd read lead me to think there was something radical in store there, at least spinning off ADHD-Primarily Inattentive into its own category. Nope. Nothing.


_________________
"The man who has fed the chicken every day throughout its life at last wrings its neck instead, showing that more refined views as to the uniformity of nature would have been useful to the chicken." ? Bertrand Russell


Janissy
Veteran
Veteran

User avatar

Joined: 5 May 2009
Age: 57
Gender: Female
Posts: 6,450
Location: x

12 Feb 2010, 9:54 am

millie wrote:
I'm impressed with the learning processes for ASD kids that Stephen Gutstein advocates. His view is to teach the parents in the home to be the therapists, to slow things down and to develop unspoken and more subtle modes of communication through a reduction of verbal exchanges in the home and through a whole host of strategies that are caring and more compassionate and understanding that the current ABA and purely CBT models that are around. The child can begin to learn more about real world social exchanges and the subtleties of the non-verbal world, working through these with the family and the parents as the primary teachers of these new skills. Therapy guides come into the home and also, a lot is videotaped so that parents can actually refer back to the specific problem areas of their kids, and ASLO their OWN problem areas in terms of successfully helping their children with some new strategies that may make their lives a little less painful and sad. It is slow and kind and gentle. My HFA nephew is responding well to it and his mum (my sister) is just wonderful in her approach to him. None of this "look at me and I'll give you a lolly" behaviourism stuff.


Thanks. I googled that and it looks like good stuff. I often feel like I'm trying to re-invent the wheel trying (and frequently failing) to teach my daughter this stuff. At school they use Social Stories which are pure scripts. She wants me to give her a script and for it to be predictable that if she says "X", the other person will always say "Y". This works for the first 10 seconds of the conversation. If she says "Hi" the other person always says "Hi". If she says "How are you?" the other person always says "fine". But the utility of scripts ends there. And she's completely lost about what to do next so she just avoids the issue by only talking to either adult relatives (who will patiently listen to her special interest rather than having a give and take conversation because they and I love her) or teachers. I'm at a loss on how to help her get out of the scripted box. She's never had formal ABA therapy because that just looked to me like it reinforced the rigidity and scripting rather than helped it. This guy looks like he may have an alternate path away from scripts. Where she is right now is not a happy place to be. I;'ve never seen an unhappier child.



Woodpeace
Velociraptor
Velociraptor

User avatar

Joined: 26 Mar 2008
Gender: Male
Posts: 474
Location: Lancashire, England

14 Feb 2010, 4:38 am

Amanda Baggs has written a deeply perceptive analysis of the proposed changes to the DSM for autistic disorder: http://ballastexistenz.autistics.org/?p=601 .



pensieve
Veteran
Veteran

User avatar

Joined: 18 Nov 2008
Age: 38
Gender: Female
Posts: 8,204
Location: Sydney, Australia

14 Feb 2010, 4:59 am

Woodpeace wrote:
Amanda Baggs has written a deeply perceptive analysis of the proposed changes to the DSM for autistic disorder: http://ballastexistenz.autistics.org/?p=601 .

That is great. Aspificating snobbery. I love it and Amanda is so so right.


_________________
My band photography blog - http://lostthroughthelens.wordpress.com/
My personal blog - http://helptheywantmetosocialise.wordpress.com/


pascalflower
Blue Jay
Blue Jay

User avatar

Joined: 13 Feb 2010
Age: 47
Gender: Male
Posts: 94
Location: Phoenix,AZ

14 Feb 2010, 6:45 am

I wonder how you guys would feel if they had taken the opposite action and put autism under Asperger. "Autism" is a bit of a misnomer, because the word was formed by cursory observation that the afflicted child was more concerned with himself rather than others. But in my opinion, that is a false way of looking at it. I think Asperger was more accurate in noting that the person actually lacks certain social skills that prevents him from understanding others.

I would think that Asperger is the actual condition and autism is really a special case thereof.



Aimless
Veteran
Veteran

User avatar

Joined: 1 Apr 2009
Age: 67
Gender: Female
Posts: 8,187

14 Feb 2010, 7:14 am

Woodpeace wrote:
Amanda Baggs has written a deeply perceptive analysis of the proposed changes to the DSM for autistic disorder: http://ballastexistenz.autistics.org/?p=601 .


I think the "powers that be" need to read that. I agree about the snobbery but I particularly like what she says about the arbitrary divisiveness of the criteria neglecting the fundamental things autistics share. She has articulated something I've wondered about for a long time. I wonder if she's ever thought about writing a book?


_________________
Detach ed


justMax
Veteran
Veteran

User avatar

Joined: 23 Nov 2009
Age: 44
Gender: Male
Posts: 539

14 Feb 2010, 7:33 am

I find it helps people understand it better when I explain what autism actually is, and how I'm on the spectrum even though they're all certain that I'm Einstein's reincarnation.

Naturally I'm going to play up the strong sides, in part because I wasn't as aware of the weaknesses I possessed (or more accurately, assumed they were more broadly shared, and people had simply learned how to deal with this stuff better yet didn't tell me how), and in part because I like being known as the guy to ask about science or math questions.

Don't Aspies already state that they're at least mildly autistic?

Isn't claiming a mild diagnosis of Asperger's, which itself is a milder form of autism, a little redundant and silly? Now you could just state you show signs similar to those of AS, and if you actually register on the spectrum explain that appropriately or not.

Doesn't this seem like an ideal way to distinguish the stereotypical "I wanna be a unique butterfly but I'm akward so I'll say I'm an aspie" online from those who actually suffer the impairments required to be diagnosed properly?


It doesn't bother me, if HFA is the category that I can point to in a book and say "that's what I have", then so be it. Right now it's AS... what's the problem?



pandd
Veteran
Veteran

User avatar

Joined: 15 Jul 2006
Age: 51
Gender: Female
Posts: 2,430

14 Feb 2010, 11:33 am

pascalflower wrote:
I wonder how you guys would feel if they had taken the opposite action and put autism under Asperger. "Autism" is a bit of a misnomer, because the word was formed by cursory observation that the afflicted child was more concerned with himself rather than others. But in my opinion, that is a false way of looking at it. I think Asperger was more accurate in noting that the person actually lacks certain social skills that prevents him from understanding others.

I would think that Asperger is the actual condition and autism is really a special case thereof.

Hans Asperger described the condition he observed as an "Autistic pathology". He never described it as Aspergers Syndrome. Both he and Leo Kanner independently used the word "Autism" to describe what they were independently observing.



TPE2
Veteran
Veteran

User avatar

Joined: 20 Oct 2008
Gender: Male
Posts: 1,461

14 Feb 2010, 12:38 pm

pandd wrote:
pascalflower wrote:
I wonder how you guys would feel if they had taken the opposite action and put autism under Asperger. "Autism" is a bit of a misnomer, because the word was formed by cursory observation that the afflicted child was more concerned with himself rather than others. But in my opinion, that is a false way of looking at it. I think Asperger was more accurate in noting that the person actually lacks certain social skills that prevents him from understanding others.

I would think that Asperger is the actual condition and autism is really a special case thereof.

Hans Asperger described the condition he observed as an "Autistic pathology". He never described it as Aspergers Syndrome. Both he and Leo Kanner independently used the word "Autism" to describe what they were independently observing.


But, in many ways, it is Asperger/HFA who is the "pure" form of the condition, and it is LFA who is a commorbity between autism and cognitive delay (if you follow the criteria of spliting HFA and LFA by IQ > or <70).

Then, I think that, evem from a scientifi point of view, to name the whole spectrum Asperger Spectrum Disorder instead of Autism Spectrum Disorder makes some sense.



Callista
Veteran
Veteran

User avatar

Joined: 3 Feb 2006
Age: 41
Gender: Female
Posts: 10,775
Location: Ohio, USA

14 Feb 2010, 2:17 pm

I'm not sure that's the case. Autistic IQs are notoriously hard to measure; so it's not even very easy to figure out which people are autistic and developmentally delayed in the first place. And then you have the chicken and egg question, of course: Are they developmentally delayed because they're very autistic? Or are they very autistic because they're developmentally delayed? It's not like they have two different brains, one for each diagnosis! Autistic people are developmentally delayed at a much, much higher rate than the general population, so there has to be some sort of connection.


_________________
Reports from a Resident Alien:
http://chaoticidealism.livejournal.com

Autism Memorial:
http://autism-memorial.livejournal.com


pandd
Veteran
Veteran

User avatar

Joined: 15 Jul 2006
Age: 51
Gender: Female
Posts: 2,430

14 Feb 2010, 4:31 pm

I do not know about this purity point thing, and frankly do not see the point of it.

Asperger Syndrome has never not been an Autism. Autism is a descriptive word, Apserger is just a name. Asperger himself decided that Autism was an appropriate description of what he observed. If Kanner had used a different name in his published reporting,, then Lorna Wing would probably have called Aspergers Syndrome "Autism" or "Autistic Pathology" when she wrote her thesis.



Danielismyname
Veteran
Veteran

User avatar

Joined: 2 Apr 2007
Age: 43
Gender: Male
Posts: 8,565

14 Feb 2010, 11:23 pm

There's a direct link between the severity of autistic symptoms and IQ level; they've known this for a long time, and it hasn't changed either. The lower the overall IQ, the greater the ASD symptoms (for the most part anyway).



wildgrape
Toucan
Toucan

User avatar

Joined: 28 May 2009
Age: 74
Gender: Male
Posts: 262

15 Feb 2010, 6:55 am

Danielismyname wrote:
There's a direct link between the severity of autistic symptoms and IQ level; they've known this for a long time, and it hasn't changed either.

Assertions of this nature run the risk of misinterpretation, and can be highly prejudicial. It stands to reason that autists with low IQ would generally exhibit more severe ASD symptoms because they would not comprehend triggers, or the benefits of self-control (to the extent possible). The potential fallacy, and serious injustice, would be to conclude from this that the more autistic one is, the lower is one's IQ. Is this what you are suggesting? Btw, how did "they" measure the IQ's of severely affected autists?



Callista
Veteran
Veteran

User avatar

Joined: 3 Feb 2006
Age: 41
Gender: Female
Posts: 10,775
Location: Ohio, USA

15 Feb 2010, 2:02 pm

Hey, "direct link" refers to a correlation--it doesn't say anything about which causes which. Daniel's right; there's a link. Which way the link goes, no one knows. For that matter, why does it have to go either way? It could just be that both things are caused by whatever genetic factors create the whole autistic phenomenon.

Autistic people are more likely to be developmentally delayed. Developmentally delayed people are more likely to be autistic.


_________________
Reports from a Resident Alien:
http://chaoticidealism.livejournal.com

Autism Memorial:
http://autism-memorial.livejournal.com


bdhkhsfgk
Veteran
Veteran

User avatar

Joined: 22 May 2009
Age: 32
Gender: Male
Posts: 3,450

15 Feb 2010, 2:15 pm

Callista wrote:
Autistic people are more likely to be developmentally delayed.


Could you explain that for me?



Callista
Veteran
Veteran

User avatar

Joined: 3 Feb 2006
Age: 41
Gender: Female
Posts: 10,775
Location: Ohio, USA

15 Feb 2010, 5:17 pm

Sure. Grab a bunch of people on the autism spectrum. Measure how old they are when they learn things--walking, putting on your clothes, cleaning your room, adding up some numbers, writing a story, etc. Compare them to a similar group of people who aren't on the autism spectrum. When someone is far enough behind average in multiple areas to cause problems, then that's developmental delay. (If it's just in a small number of areas, then it's a specific learning disability.) There are more people with developmental delays in the autistic group than the non-autistic group.

There is also a lower average IQ in the autistic group, but IQs don't really mean much when it comes to describing autistic people because it's extremely hard to measure IQs properly, and the IQs don't mean very much because of the big scatter in skills that's common on the spectrum. IQ is considered a criterion for developmental delay, though, so I have to mention it.

Autistic development isn't just a matter of higher rates of developmental delay; it's not that simple. The best way to define autistic development is more like "highly unusual" than "delayed". You will find, along with the developmental delays, and often in the same people who have the developmental delays, unusually high skill levels in specialized areas. When these specialized areas are in academics, you often see "giftedness" and a high score on IQ tests. Autistic development is often very uneven from one area to another--behind in one area, ahead in another is practically routine. So you can't really predict much based on developmental delays, especially in little kids.


_________________
Reports from a Resident Alien:
http://chaoticidealism.livejournal.com

Autism Memorial:
http://autism-memorial.livejournal.com