Self-diagnosed people: why have you not obtained...

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hanyo
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01 Jan 2012, 5:36 am

goodwitchy wrote:
Also, I don't know if I'm going to stay with my current psychiatrist. I've only seen him once so far (last week) and he wouldn't prescribe Valium for me, but that's what works the best for me when I have a meltdown.


I had a chance to try valium a few times. Sometimes my heart skips beats and taking a half a valium when that happened would make it stop skipping and make me feel like what I imagine normal people feel like most of the time.



goodwitchy
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01 Jan 2012, 12:20 pm

hanyo wrote:
goodwitchy wrote:
Also, I don't know if I'm going to stay with my current psychiatrist. I've only seen him once so far (last week) and he wouldn't prescribe Valium for me, but that's what works the best for me when I have a meltdown.


I had a chance to try valium a few times. Sometimes my heart skips beats and taking a half a valium when that happened would make it stop skipping and make me feel like what I imagine normal people feel like most of the time.


Yes, I'd love to be as calm as I am on Valium all of the time, but I was only taking Valium when I really needed to prevent myself from flipping out. If I take Valium for more than one day in a row, the calming effect is not as strong.

I've also used generic diazapam, which works to calm me down, but brand Valium actually also has a very slight mood uplifting effect for me, so that would be my medication of choice. I think my doctor (who doesn't know me) was concerned I was just looking to score some drugs.

I am high-strung and I have a terrible temper, although I am not really violent. The worst thing I've done at my job is slam my phone down and sometimes I curse. I guess to an NT that would be a sign of an unstable person.



MindWithoutWalls
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01 Jan 2012, 2:57 pm

169Kitty wrote:
MindWithoutWalls wrote:

I can only go somewhere that will do all of three things: do the assessment, deal with adults, and take Medicaid.


If your insurance covers psychological services they probably cover neuropsychological testing too. That's the route I'm going on. I'm on medicare.


Well, my problem isn't that Medicaid won't cover it. It's finding someone who is willing to take Medicaid (and also do both the other things on the list). The one place I've found so far said they'd do it and then seemed to plan, before I even set foot in the door, not to do the very assessment I'd said I was going for and that they claimed they'd do.

I think the psychologist was incompetent. My reasons are recounted in my blog, so I won't go into them here. I'm very angry about it. But I'm working out how to handle that and still exploring my options. I may have come up with one or two more places to try calling.

As for what good it would do me, one of my blog posts is a list of reasons why I think it would be worth my while to get diagnosed, and other posts in my blog mention stuff, too.


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Trainbuff
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01 Jan 2012, 11:32 pm

Lack of money and no heath insurance.

I would like get a official diagnosis, but I don't have the resources to do so.



Jp896
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02 Jan 2012, 3:38 am

Quote:
Lack of money and no heath insurance.

I would like get a official diagnosis, but I don't have the resources to do so.


There are reports on other forums of people being diagnosed through Vocational Rehabilitation Offices. I'm currently seeking diagnosis through this route as I ,like you, don't have any money.



impulse94
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02 Jan 2012, 1:49 pm

I went to a CBT who just pulled out a book and said "Here." It was for diagnosing AS children (which I am definitely not). I lasted three sessions with her, and never even got to discuss some serious issues.

Later I found a guy who specialized in ASD. He wanted to bring my family into it to inquire about my history. I said absolutely not -- I prefer not to dwell on the past (although nothing really traumatic there). Combined with the price and the fact that I instantly disliked the guy (a rare occurrence) I did not go back to him.

I am content with my own research and conclusion for the time being.



registrateMe
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02 Jan 2012, 8:51 pm

here in sweden there is a wating list and you have to wait very for a very long time to get an asperger syndrome evaluation (many years) unless you can pay a lot of money for it.

I also heard that you had to involve your parents to get a diagnosis so that is another reason I have avoided it (I am not very close to them so that would have been very awkward).

I am also slightly paranoid as well and worry that a diagnosis can be used against me in some way in the future (to get a job, insurance, loans etc).



lennyk
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02 Jan 2012, 9:02 pm

I haven't gotten an official as there aren't aspergers experts in my country
and I've pretty much scored as classic AS case in all tests I've done
wish I could change things and stop being a social idiot



Obres
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02 Jan 2012, 11:53 pm

missmarigold wrote:
noname_ever wrote:

Also, what problems could an official dignosis of Asperger's cause me in the future?


I wish I could see into the future and answer that for you....but it seems that people in this thread have only mentioned problems, not benefits.
the #1 reason seeming that health insurance could be impossible to get or much more $$.


Yes, this.

The better question would be, why would anyone get a diagnosis unless they were severe enough and seeking something like disability assistance?



mglosenger
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03 Jan 2012, 1:41 am

I just don't see the point. It would cost me money, effort, etc, and if the person with the degree disagreed with me, it would be annoying :) If they agreed, then, what's the point, I already knew.

I've tried various DSM-recommended type medications in the past, both prescribed and self-administered, and none of them really worked. And behaviorally I've figured things out enough on my own by now.

When it comes to the soul, doctors just don't do it for me.



felinesaresuperior
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03 Jan 2012, 4:44 pm

can't afford an official diagnose right now. had to pay the vet huge amounts of money i don't have (the cat died anyway but at least i did my best and won't feel guilt). will get a diagnosis soon as i can. it's very important to me and i just can't wait and saving every dime just for that. very high on my list.



winslow
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03 Jan 2012, 7:17 pm

I talked to my shrink about it, he said at my age (41) diagnostic testing for AS isn't always valid as I have developed coping mechanisms over the years that would skew the results. But based on a long conversation plus a report I prepared so I wouldn't forget anything he had no problem agreeing with my self diagnosis.



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03 Jan 2012, 7:30 pm

felinesaresuperior wrote:
can't afford an official diagnose right now. had to pay the vet huge amounts of money i don't have (the cat died anyway but at least i did my best and won't feel guilt).

I am sorry for your cat.


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JadeChaos
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03 Jan 2012, 9:11 pm

Two reasons. One, I saw SIX doctors in a very short period who were too incompetent to diagnose a watermelon sized tumor on my ovary that almost killed me. Thank the universe for the seventh. Two, for the same reason I refused to join Honor's Society in High school. I jump through hoops for nobody, except cats.

I can't imagine anyone claiming AS to seem "cool" and different. Its more like finally understanding why your siblings eyes sparkle and emote but everyone thinks you are pissed off, stoned and mean/aloof all the time, even when on the verge of tears. Its wanting to want to connect to people in the way they do, calling on the phone, seeing in person, really desiring a deep meaningful loving relationship with many people. Instead of many pets, and maybe one person you could take or leave. Wondering if its ptsd, an inner healing thing, if your broken. If you ever won't be broken. When I was a kid in '89 1st grade they put me in special ed certain I had autism, tested me declared me gifted and just a weirdo and stuck me in with the advanced class. Any weirdness or behaviour issues was called ADD, shy, idiosyncratic and pushed aside. By high school I learned to paste on a smile all the time. A few weeks ago I met an asperger guy who demanded I get tested so I started reading on it. Everything fits now. I feel like I did when I discovered drama, this might be the mother ship so to speak.
finding yourself should be reason enough I think.


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Fiebre
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03 Jan 2012, 9:26 pm

I don't think I'll ever be officially diagnosed... In my country it can be a problem finding a doctor who actually uses AS as a diagnosis, seems to me that they somehow leave it out of the picture. And it's more or less the same where I am now or maybe even worse because of the language barrier which I'm pretty sure would complicate the communication.