Adult diagnosis: do doctors really know what they are doing?

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Adamantium
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12 Aug 2015, 2:15 pm

ASPartOfMe wrote:
Some clinicians such as Atwood diagnose based on behavioral traits instead of impairments.


I'm pretty sure this is not actually the case.
You can see this on his website now:
Quote:
Some adults referred for a diagnostic assessment may have the signs but not the clinically significant impairment in functioning necessary for a diagnosis.

http://www.tonyattwood.com.au/index.php/about-aspergers

This does not say anything about the worth of the individual with aspergers. It is not a reason to feel worthless.



btbnnyr
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12 Aug 2015, 2:25 pm

ToughDiamond wrote:
btbnnyr wrote:

In my view, identity-based diagnosis is when someone who can't identity concrete impairments sees autistic traits in themselves, perhaps from incidentally reading about autism, then researching it a lot, thinking of autism as an identity that they think they should be labeled with, and don't like it when doctors don't view autism as identity and don't label them with autism. But they can't be diagnosed or referred by doctors due to their traits also being common personality traits, them behaving within normal variation, and not identifying concrete impairments. This is why I suggested that people who do want referral come up with a short list of impairments, which will help the process more than a long detailed list of common traits.

I see, thanks. Was there ever a time when they would give an identity-based diagnosis?


No, diagnosis has always been impairment-based, not identity-based, but some people seem to desire that it be identity-based when they would not be diagnosed or are not referred for assessment otherwise.


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12 Aug 2015, 5:24 pm

DeepHour wrote:
kraftiekortie wrote:
How many people actually seek out an "autistic" identity? Not that it's a shameful thing--but I don't see people lining up to go on the autistic bandwagon?

I think people are seeking something tangible to explain their autistic-like symptoms.


^ Your last sentence is very apt, and I agree with the sensible general approach you tend to bring to this issue, Kraftiekortie.

There is a persistent, recurring suggestion from some quarters in this forum that an Autistic Spectrum diagnosis is in some way sought out as a 'cool' thing to have. I don't really get that.

I think that some think others haven't suffered as much as they have and become defensive -- those who haven't suffered as much much be fakes, they think. Others are probably lost in the desire for black-and-white truth.

For the former, there are 2 obvious problems: not everyone talks about their bad times even if they've lasted for decades, and the human brain naturally makes all sorts of half-assed assumptions to fill gaps in incomplete information. I.e. someone here once thought I was a college physics professor because I talked about physics more than much else (I think it was that, anyway). I have a BA in physics, been on $486 SSDI for the last 10 years, and never had a salaried/professional job. And, forget relationships, friends or the like, but I don't talk about that stuff.

Also, I hate to say it, but life experience in world matters. Many things I thought when I was in high school I know to be false, now. And, it may actually be cool to seem to have depression or bipolar in high school, but the reality is that most adults find it very important that they aren't diagnosed with anything that's in a book with the words "mental disorders" in it's title. And, if a neighbor or coworker is, they're probably not going to like it (and will gossip or maybe even call child protective services or some other loathsome thing). Maybe it's cool in Silicon Valley or at the 'skunkworks,' but for the rest of adult world it isn't.



kraftiekortie
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12 Aug 2015, 5:29 pm

If a diagnosis is "identity-based," it's an erroneous diagnosis.

I find that a ridiculous concept, frankly.



Rocket123
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12 Aug 2015, 10:13 pm

btbnnyr wrote:
Were there no social impairments that played a role in your diagnosis then?
What the psych write in the report to justify diagnosing you or support the autism criteria?
Did the psych observe social impairments in you that you don't consider important yourself?

For someone autistic, I would have thought that it would be super easy to come up with at least social impairments, if not workplace or education ones.

The psych report includes many references to social impairments including: “long history of social discomfort”, “lack of social awareness”, “weak social skills”, “lack of social or emotional reciprocity”, “impaired social perception”, “non-automatic social perception”, “family history of social ineptitude”, etc.

Yet, from my perspective, the social stuff is not currently my biggest problem. Rather, my biggest issues are with obsessive worry and dysphoria.

I suppose, when I was younger, I used to lament about my inability to be “normal” socially. But, I have since accepted who/what I am (just like I have accepted that I will never be good at athletics). Which is why I wrote (earlier in thread), that I would never say my impairments in social interaction cause me problems.

With that being said, I can imagine a situation when the social stuff could, again, become the bigger issue. Oh wonderful. Something new to worry about.



ASPartOfMe
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13 Aug 2015, 12:15 am

Adamantium wrote:
ASPartOfMe wrote:
Some clinicians such as Atwood diagnose based on behavioral traits instead of impairments.


I'm pretty sure this is not actually the case.
You can see this on his website now:
Quote:
Some adults referred for a diagnostic assessment may have the signs but not the clinically significant impairment in functioning necessary for a diagnosis.

http://www.tonyattwood.com.au/index.php/about-aspergers

This does not say anything about the worth of the individual with aspergers. It is not a reason to feel worthless.


As much I as like Attwood he is covering his ass on that one. Impairment is a wholly negative term. Attwood usually starts off by saying 'Congratulations,you have Asperger’s syndrome" and often emphasizes the positive elements and deemphasizes the negative. He nearly 100% of the time uses the term "Aspie" which is an identity based term.

Getting back to impairment while basing a diagnosis wholly on negatives should not decide a persons worth IRL it is pushes some people to feel that way or more strongly that way.


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13 Aug 2015, 12:49 am

My dad (def asp), who got alzheimer, as was said. We(children) would have wanted exams, because he was exposed to toxics during all his life, and we too, for that matter, well his neurologist couldn't be bothered.



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13 Aug 2015, 12:55 am

In my experience, yes.



mpe
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13 Aug 2015, 2:40 am

ASPartOfMe wrote:
Social differences/impairments overrated?. In my fantasy word it is. In the real world it should be overrated but instead is the most important aspects others judge you by. A massive disadvantage for me.

Presumably by those who desire little or no social interaction. Such people do exist.
However those who desire social interaction can find that their quality of life is hugely impacted (in a negative way).



Mrs catlady
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13 Aug 2015, 2:54 am

The short answer is no. Not really.
I work in health care and I have an autism diagnosis and I have learned 3 truths
1. There is no such thing as a normal person
2. Having/ not having a diagnosis of something doesn't mean the thing isn't there and doesn't change the symptoms.
3. Doctors are also just people. Sometimes they make mistakes. Sometimes they just wing it. Sometimes it all works out.
You know more about your autism than any professional who is paid to know. Sod other people and their thoughts.



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13 Aug 2015, 3:10 am

Mrs catlady wrote:
You know more about your autism than any professional who is paid to know.


Until told about it, I knew nothing about my autism.

"Yeah, I'm fine at socializing, I just don't want to do it." (I didn't want to do it, but that's beside the point.)



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13 Aug 2015, 4:02 am

I know more about Asperger's than any professional. NTs can't understand it and they think it's an illness that can be cured. Therefore, doctors recommend talk therapy for improving social skills, unaware that it's ineffective.


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Peejay
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13 Aug 2015, 5:36 am

Mrs catlady wrote:
I work in health care and I have an autism diagnosis and I have learned 3 truths
1. There is no such thing as a normal person
2. Having/ not having a diagnosis of something doesn't mean the thing isn't there and doesn't change the symptoms.
3. Doctors are also just people. Sometimes they make mistakes. Sometimes they just wing it. Sometimes it all works out.
You know more about your autism than any professional who is paid to know. Sod other people and their thoughts.


I agree, we are all winging it some of the time, including professionals who are asked to make decisions from limited info and with an incomplete and ever changing diagnostic toolkit.

Re Impairement based diagnosis = all well and good........ except:
today I`m fine, yesterday I was not........ oh what a shame... today was the day I went to be assessed, never mind eh..
I`ll just go home and shut up, stop complaining, just keep struggling on for the next 30 years with no inkling as to why some things are so difficult for me.

Re labeling ... in spite of certain inferences here, these difficulties are not a game I play for fun, I don`t want a label because I think it is cool..... what kind of idiot would want that!

As mentioned, a diagnostic label for me would give me an opportunity to explore and develop myself on my life`s journey rather than be sitting in the dark thinking that 40+ years of failed social interactions means I am simply a messed up human. We should be careful not to disparage this approach
I have tried so hard for so long to change and I don`t seem to be able to do it.... so this is where a label comes in as a positive explanation/anchor/frame of reference and could at least help me have some peace of mind and start on the road to `acceptance`......

Perhaps the real acceptance for people like me is to not actually expect a clear and helpful answer at all as there isn`t one...................... just do my own thing and label myself in any way that is useful to my self development.



Dillogic
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13 Aug 2015, 6:49 am

Peejay wrote:
Re Impairement based diagnosis = all well and good........ except:
today I`m fine, yesterday I was not........ oh what a shame... today was the day I went to be assessed, never mind eh..
I`ll just go home and shut up, stop complaining, just keep struggling on for the next 30 years with no inkling as to why some things are so difficult for me.


Generally, disability is based on your best, as it's expected you'll fluctuate.



Adamantium
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13 Aug 2015, 7:08 am

Dillogic wrote:
Peejay wrote:
Re Impairement based diagnosis = all well and good........ except:
today I`m fine, yesterday I was not........ oh what a shame... today was the day I went to be assessed, never mind eh..
I`ll just go home and shut up, stop complaining, just keep struggling on for the next 30 years with no inkling as to why some things are so difficult for me.


Generally, disability is based on your best, as it's expected you'll fluctuate.


No.

Think about it.

Disability is based on your not being able to do things on average--on what is typical for you.

It's not about your edge case performances, but your typical performance. Your worst and best days don't count unless they are similar to most of your days.
Just because you once or occasionally got through a conversation, this doesn't mean you can engage on conversation with normal social reciprocity. Just because you once were at a loss for words doesn't mean you are nonverbal.



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13 Aug 2015, 7:33 am

Adamantium wrote:
Disability is based on your not being able to do things on average--on what is typical for you.


Sorta. Your behavior will always average out and be taken into account, but:

Your highest point must meet whatever is defined as disability for that condition (autism in this case). If your highest point exceeds that, then it's shown that you're actually capable of something above the disability and you probably don't have that disability.

If I were to say, some days I can reciprocate social and emotional verbal and nonverbal cues in a passable manner, but some days I can't, you wouldn't say I have autism. I'm going to have to fail at that to whatever extent is defined for autism (a failure at it means I can't do these things in a passable manner ever).

Hence, your highest point decides these things.