Why Are Aspies Suspicious Everyone Is Lying About Autism?

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Jacoby
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10 Aug 2016, 10:19 am

AdamLain wrote:
Jacoby wrote:
I would define autism spectrum disorder by it's impairment, not by perceived awkward or quirky traits with no deficits socially or otherwise. I think it has to have clinical significance if it cannot be clinically diagnosed because criteria is not met as opposed to simply lacking the means(big distinction here) then I don't think you should identify that way, how can one feel solidarity with usurpers? I think a lot of people crave labels for god knows what reason, I apologize if that offends some people but I'd rather be the one without a disability.


Honestly it doesn't matter how you define Autism Spectrum Disorder, because you aren't a licensed Psychiatrist. Sorry, just saying.


Then why does it matter to you folks so much? I'm just giving an answer to the question asked. Again, I understand some people lack the means and I wouldn't hold that against them but I don't understand if you lack the reason to begin with.



EphraimB
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10 Aug 2016, 10:22 am

I get very mad when I see someone with ASD behave normally. It makes me look very bad. I though things were simple that people that have ASD behave similar to me. Looks like i'm wrong. I want to find people that behave similar to me. I wish autism would be a more accurate diagnosis.

Scenario in camp this past summer:
First week:
Me (after saying something immature): I disserve a pat on the back
Another kid in my bunk with Asperger's Syndrome the same age as me: You disserve nothing of that kind

Second week:
Me (randomly): I disserve a pat on the back
The same kid in my bunk with Asperger's Syndrome the same age as me: You disserve nothing of that kind
Me (in a weird voice): Why?
The same kid in my bunk with Asperger's Syndrome the same age as me: You don't do anything "pat on the back" worthy

Third week:
Me (randomly): I disserve a pat on the back
The same kid in my bunk with Asperger's Syndrome the same age as me: You disserve nothing of that kind, you piece of garbage
Me (angry, trying to get him back): You're skin color is the same color as a piece of garbage
The same kid in my bunk with Asperger's Syndrome the same age as me tries punching me and I try getting him back. My counselor tries to stop the fight and he calls the Division Head. The Division Head talks to me outside. Meanwhile, The same kid in my bunk with Asperger's Syndrome the same age as me takes out his pocket knife, but, the counselor confiscates it.

Fourth week:
Me (randomly): I disserve a pat on the back
The same kid in my bunk with Asperger's Syndrome the same age as me: You don't disserve anything, you immature brat


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My neurotypical (non-autistic) score: 70 of 200
I'm very likely neurodiverse (Aspie)

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RabidFox
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10 Aug 2016, 10:23 am

I never heard of this until I joined this forum.

To me, I find it extremely strange that anyone would "fake" autism. I know that people can become confused and think they have it even when they don't, but people getting into it like it's some kind of special power... Well, that's new to me. I was really upset when I learned that I have autism. I didn't want to be "special", I didn't want to be "helped", I didn't want the "label". It actually made me really angry.



ASPartOfMe
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10 Aug 2016, 10:44 am

Let me discuss the women who was driven off of WP by doubters. Her username was
kingdomofrats. She was a great teacher about severe autism and autism in general. I will never claim I know what it is like to be severly autistic because of her but what I do know I learned from her. I learned from her what ableism from autistics to other autistics looks like. When she run across elitist posters saying they are anti cure but it is ok for the low functioning autistics, I like identity first language but person first language is the right thing for the low functioning she confronted them firmly but respectfully. She identified as severe autistic and would call out anybody who said otherwise as the bullies they are. As much or more then any poster here she had good reasons to hate on and stereotype aspies but she accepted us as fully autistic.

I miss her and more importantly this board is a noticibly inferior place without her as there is no severe autistic representation now and even more importantly no severly autistic person with Neurodiversity movement views. I try to carry on her mission of accepting all autistics as autistics deserving of respect but I am not as good as her.


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RabidFox
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10 Aug 2016, 10:55 am

ASPartOfMe wrote:
I miss her and more importantly this board is a noticibly inferior place without her as there is no severe autistic representation now and even more importantly no severly autistic person with Neurodiversity movement views. I try to carry on her mission of accepting all autistics as autistics deserving of respect but I am not as good as her.


I find it disturbing that people are driving others away. Doesn't the moderation do something to prevent these things from happening? I would think that users would get in trouble for attacking other users. It sounds like the bullying was never addressed properly.



League_Girl
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10 Aug 2016, 11:06 am

Maybe there should be a new rule added to the list, no questioning members diagnoses.


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League_Girl
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10 Aug 2016, 11:09 am

To me faking autism implies the person full well knows they do not have it but still claims they do. If they are unsure if they have it or not despite the diagnoses or symptoms they have, I wouldn't call it faking it. If they think they do have it because of distortions, I wouldn't call it faking it. Just as long as you are honest about your diagnoses and your history, I don't see why it would be faking it.


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Daughter: NT, no diagnoses. Possibly OCD. Is very private about herself.


underwater
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10 Aug 2016, 11:16 am

Jacoby wrote:
AdamLain wrote:
Jacoby wrote:
I would define autism spectrum disorder by it's impairment, not by perceived awkward or quirky traits with no deficits socially or otherwise. I think it has to have clinical significance if it cannot be clinically diagnosed because criteria is not met as opposed to simply lacking the means(big distinction here) then I don't think you should identify that way, how can one feel solidarity with usurpers? I think a lot of people crave labels for god knows what reason, I apologize if that offends some people but I'd rather be the one without a disability.


Honestly it doesn't matter how you define Autism Spectrum Disorder, because you aren't a licensed Psychiatrist. Sorry, just saying.


Then why does it matter to you folks so much? I'm just giving an answer to the question asked. Again, I understand some people lack the means and I wouldn't hold that against them but I don't understand if you lack the reason to begin with.


I can't speak for everyone, but I assume that one of the reasons people hold back is a basic lack of trust in the human race. Going for a diagnosis means opening up about some really painful personal stuff to a complete stranger. Talking about things on WP is another matter - there is anonymity, and people understand your challenges. Another reason to keep quiet is the belief that they can handle their problems on their own, simply because they are used to doing it, or they are well supported either by family or by having enough money to design their lives.

I weigh the pros and cons of going for diagnosis. I have recently started seeing a psychologist. I may or may not talk about autism with them. I need time to get to know this person, to see if they are reliable. I've met one psychologist in the past who seemed to be a dangerous and manipulative person. I walked out of the first session without telling him anything, and I am glad I did. I've met a lot of nasty characters in my life - they seem to take one look at me and assume that they can do what they want with me. I've had to fight back a lot in my life. I assume others have had a similar experience.

A lot of US people live in such fragmented communities that they don't quite understand what happens in societies with a lot more social control. I would like to point out that Dr. Løvaas, the father of ABA therapy, is from my country. The idea that everybody should be shoehorned into normalcy is very much alive and kicking where I live. And the defintion of normalcy is extremely constrictive.

It matters to me that people are kind to each other on a support forum. Otherwise the forum loses its purpose and becomes another Internet battle ground. It matters that people who had a lot of bad experiences in their lives be shown some understanding and respect.

I've had a lifetime of being shoved out of groups, and so have a lot of other people here. I hate the hypocrisy of people who complain they are being excluded IRL and then go on to exclude others based on some arbitrary standard of "autisticness".


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Deinonychus
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10 Aug 2016, 12:19 pm

Quote:
It matters to me that people are kind to each other on a support forum. Otherwise the forum loses its purpose and becomes another Internet battle ground. It matters that people who had a lot of bad experiences in their lives be shown some understanding and respect.


This matters a lot to me, too. Discussion and even civil disagreement about issues is great. But I come here to escape the usual internet ugliness that happens on some social media. I have no desire to defend the diagnosis that I received.


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RabidFox
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10 Aug 2016, 12:36 pm

League_Girl wrote:
To me faking autism implies the person full well knows they do not have it but still claims they do. If they are unsure if they have it or not despite the diagnoses or symptoms they have, I wouldn't call it faking it. If they think they do have it because of distortions, I wouldn't call it faking it. Just as long as you are honest about your diagnoses and your history, I don't see why it would be faking it.


Well, that's why I put the word fake between quotes. I didn't mean strictly faking autism. I meant it as another term for "hype", I suppose. I'm not always good at using the right words, but, from what I gather, there are people that strongly believe that they have autism, yet, according to other people, they are not actually diagnosed and they are very unlikely to actually have autism.

I'm not saying that this is my view. Like I said, this is all new to me. It's just what I am picking up on in people's posts is that some people are very angry about it and want to run people like that off the forum. At least that's what it sounds like people are saying. This is my first time being on an autism support forum, so I am still learning about people's views on autism.



kraftiekortie
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10 Aug 2016, 1:15 pm

This Forum is not just for people with autism.

It's also for the parents, children, brothers, sisters, relatives, friends, etc. of people with autism.

It's also for people who are interested in learning about autism.

There's no "proof" needed of a diagnosis in order to be a member of this Forum.



League_Girl
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10 Aug 2016, 1:31 pm

This place is also for people who have other disorders too such as mood disorders, anxiety, ADHD, NVLD, etc.


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RabidFox
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10 Aug 2016, 1:32 pm

kraftiekortie wrote:
This Forum is not just for people with autism.

It's also for the parents, children, brothers, sisters, relatives, friends, etc. of people with autism.

It's also for people who are interested in learning about autism.

There's no "proof" needed of a diagnosis in order to be a member of this Forum.


Oh yes, I know that. I was merely talking about the other people that keep saying certain people shouldn't be here. It just confuses me why there are people that think that. I'm happy to read posts by anyone on the subject. I came here wanting to find such a place.



kraftiekortie
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10 Aug 2016, 1:36 pm

Most people here couldn't give a rat's butt whether somebody is "self-diagnosed" or "officially diagnosed."

And that's the Tooth :wink:



RabidFox
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10 Aug 2016, 1:46 pm

kraftiekortie wrote:
Most people here couldn't give a rat's butt whether somebody is "self-diagnosed" or "officially diagnosed."

And that's the Tooth :wink:


That's good to know. It's just when I read certain posts, it makes me feel anxious because I feel like there are people that don't want me to be here. I mean, I might have an actual diagnosis, but I'm very different than most of the other autistic people here.

And when I said "faking autism", all I was doing was referring to what I felt like some people were saying. I don't actually believe that at all.

I hope no one is misinterpreting me, because I'm very nervous right now. I don't understand speech very well and I just want to make sure no one thinks that I'm thinking things like that. I'm a very open minded person.



kraftiekortie
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10 Aug 2016, 1:49 pm

Don't be nervous, sir.

You're cool and dandy...and the ladies find you foxy.

"Foxy" meant good-looking in the 70s. And I think people still have that conception of the word "foxy."