you say theres no severity levels with autism but

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skibum
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24 Feb 2023, 10:17 am

Urselius wrote:
skibum wrote:
This isn't a competition. We shouldn't be making it one.

Each Autistic person's needs are equally valid and should be met.


1) No it isn't. It is a discussion or dialogue. It was posited that being a 'high functioning' autistic was a privilege in comparison to the situation of 'more overtly affected' autistics and I refuted this. This is as old as Socrates.

2) Yes indeed.
It is a discussion and a dialogue. The reason I said that it should not be a competition is that many people want to make it one. Not you, particularly, but many people do.

I also agree that being "high functioning" is not a privilege. In fact, saying that it is, is one of the most ridiculous things that I have ever heard. That's almost as ridiculous as the blind community saying that being able to see is a privilege or the deaf community saying that being able to hear is a privilege, or wheelchair users saying that being able to walk is a privilege, or people with Cystic Fibrosis saying that people who can breathe normally are privileged. These people who claim that being "high functioning" is a privilege don't understand the definition of the word "privilege."

For those of you who don't know the actual definition, it means: a special right, advantage, or immunity granted or available only to a particular person or group

So, I did quote you, not because of what you said, but because of the person saying that being "high functioning" was some kind of privilege. I was just in a hurry and didn't have time to do the editing to fix the quote marks and isolate that sentence.


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24 Feb 2023, 7:41 pm

Caz72 wrote:
i feel there is levels of severity across the autism spectrum because im 50 but still havent/cant learn new many social skills but many autistics half my age understand more social things than me

and im exposed to social interaction every day at work with the public but i still cant seem to learn social rules although i do mask but theres a lot of social things i still dont understand that other autistics half my age do

so is this proof that there is severity levels of autism like people who are on the mild end of the spectrum are more likely to learn social rules quicker and even be born with some until it becomes natural while others of us just cant get the hang of it even after a lot of experience in life?


Actually, Autism has LOTS of levels! It is simply that primarily, they try to fit you into one of three categories. The other stuff can be all over the place. Even IQ is broken up, generally into 4 categories(Logic, Math, Vocabulary, and Spatial). When people speak of IQ, they generally refer to a COMPOSITE average. But you may have someone that seems to be a GENIUS with spatial images, and another may not have a CLUE, and BOTH could have a 100 composite IQ!



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24 Feb 2023, 8:38 pm

Being so autism is a social disorder, it makes sense to base severity levels on how the person develops socially. I don't mean introversion Vs extroversion, because that's more down to personality that ranges differently from each person, applying to NTs too. But I mean the development of social skills.
Children and adults who had no speech delays as a child but still exhibit autism traits are usually diagnosed with Asperger's syndrome (or were diagnosed, since some genius decided to abolish that diagnosis). I still think they should have kept the Asperger's diagnosis but changed the name to Social Communication Sensory Disorder. I'd be more willing to tell people that rather than autism or Asperger's syndrome (being so I don't fit the criteria for autism much but still have social awkwardness but don't want to have a disorder named after a Nazi).

Lastly, people with mild autism (Asperger's syndrome) are more likely to be missed and diagnosed later on (unless you're Joe90 :roll: ) or even misdiagnosed with something else such as depression, anxiety or bipolar.

I suppose it's too hard to really explain in words where the differences lie but there are differences in everyone on the spectrum and no two people are the same. There is no binary severity levels but I believe everyone on the spectrum has their own individual severity level. If everyone on WP were all in a care home (yes, a little abstract but is just an example) would we all be receiving exactly the same care, or would some of us receive the care only catered to our needs? For example some autistic people require one of them keyboard things to communicate, some only require one sometimes, and some of us never need one. I'll never need one in my life, unless something happened where I lost my voice, or if I went completely deaf or something. But that wouldn't be related to ASD.


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24 Feb 2023, 11:55 pm

I have more issues related to communication and language aspects than just social... Not because I care less of it.

'Social' might be easier for me, it's just that I actually have issues with communication and language.
And that communication and language issues ends there -- no amount of practice of language and usage in interactions seem to remedy it, unless I get professional help.

My social issues do not end with just social issues -- it leads back to communication and language issues.
And a good half of my social issues are mostly executive function, interfering with how I should compensate consciously and manually learn and perform whatever's instinctively picked up for NTs.

My main issues are beyond social. Social is mostly collateral and circumstantial for me.

This is another aspect that I cannot relate to most aspies, in the same way that I cannot relate to anyone with social anxieties, in the same way I cannot relate to anyone with NVLD and saying they cannot understand nonverbal cues, in the same way that I cannot relate to alexithymics and how they thought aren't able to feel or sense in an interpersonal sense.


I'm a full blown autistic. Just functioning enough without an aide.
I'm just someone with good enough self help skills, a great social passer with more than socially appropriate social habits therefore without needing to mask (no stims to suppress, no obsessions to impulsively spilled, no need to pretend I feel neutral at best when I'm not overwhelmed to begin with thanks to high thresholds) and get away with plenty of socially reckless things.
I can relate more to 'being trapped in my own body' as a person despite not even being clumsy or have ADHD or not particularly sickly. That just rarely ever brought up.


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skibum
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25 Feb 2023, 4:54 am

Joe90 wrote:
Being so autism is a social disorder, it makes sense to base severity levels on how the person develops socially. I don't mean introversion Vs extroversion, because that's more down to personality that ranges differently from each person, applying to NTs too. But I mean the development of social skills.
Children and adults who had no speech delays as a child but still exhibit autism traits are usually diagnosed with Asperger's syndrome (or were diagnosed, since some genius decided to abolish that diagnosis). I still think they should have kept the Asperger's diagnosis but changed the name to Social Communication Sensory Disorder. I'd be more willing to tell people that rather than autism or Asperger's syndrome (being so I don't fit the criteria for autism much but still have social awkwardness but don't want to have a disorder named after a Nazi).

Lastly, people with mild autism (Asperger's syndrome) are more likely to be missed and diagnosed later on (unless you're Joe90 :roll: ) or even misdiagnosed with something else such as depression, anxiety or bipolar.

I suppose it's too hard to really explain in words where the differences lie but there are differences in everyone on the spectrum and no two people are the same. There is no binary severity levels but I believe everyone on the spectrum has their own individual severity level. If everyone on WP were all in a care home (yes, a little abstract but is just an example) would we all be receiving exactly the same care, or would some of us receive the care only catered to our needs? For example some autistic people require one of them keyboard things to communicate, some only require one sometimes, and some of us never need one. I'll never need one in my life, unless something happened where I lost my voice, or if I went completely deaf or something. But that wouldn't be related to ASD.
Autism is much more than just a social disorder though. Many people think that it is just a social disorder. But the social issues are just one aspect of Autism. Autism is extremely complex and there are many facets. That is why the diagnostic criteria measures at least six different areas, not just social functioning. Many things that are tested in a comprehensive Autism diagnosis have nothing to do with being social.


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25 Feb 2023, 5:04 am

2ukenkerl wrote:
Caz72 wrote:
i feel there is levels of severity across the autism spectrum because im 50 but still havent/cant learn new many social skills but many autistics half my age understand more social things than me

and im exposed to social interaction every day at work with the public but i still cant seem to learn social rules although i do mask but theres a lot of social things i still dont understand that other autistics half my age do

so is this proof that there is severity levels of autism like people who are on the mild end of the spectrum are more likely to learn social rules quicker and even be born with some until it becomes natural while others of us just cant get the hang of it even after a lot of experience in life?


Actually, Autism has LOTS of levels! It is simply that primarily, they try to fit you into one of three categories. The other stuff can be all over the place. Even IQ is broken up, generally into 4 categories(Logic, Math, Vocabulary, and Spatial). When people speak of IQ, they generally refer to a COMPOSITE average. But you may have someone that seems to be a GENIUS with spatial images, and another may not have a CLUE, and BOTH could have a 100 composite IQ!


Mine is all over the place.

Verbal- very high
Fluid - very high
visual spatial -( low) average
Working memory - high
processing speed - (high) average.

To a psychiatric profession that all too often expects, nay demands, evenness of cognitive performance that has historically got me branded as being a person with a significant 'character defect' . It's only since moving to be near my daughter, and her explaining things to mental health services here before the move was made, that such thinking has been kicked into the long grass - where it has always belonged.

The adaptive functioning <IQ gap in my case is significant. You wouldn't have a clue that that was the case during a short verbally dominated interaction with me. It's like having a hidden disability within a hidden disability. It requires good observation covering a variety of settings to get an accurate picture of how things are.

A classic example of how things can be missed, and wrong thinking even more deeply entrenched . Last and longest hospital admission (22 months or so), I was sent, to the OT centre, to do a cookery course. All went reasonably OK till I was asked to peel potatoes with a knife. I genuinely struggled. That however was taken as my being 'obstructive', and I was kicked off the course. A chance for something useful to be learnt totally missed. Damage done by false characterisation = incalculable. The initial psych assessments, if done with an acceptable level of thoroughness , should have flagged up poor coordination, odd gait, poor manual skills due to fine and gross motor skill deficits. To put it simply- DYSPRAXIA .