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Shebakoby
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12 Sep 2009, 1:23 am

Tell me about these things. My mom has occasionally said I should go into one. The only "Group Homes" I am aware of are of two varieties: Those that are for kids who were kicked out of foster care, or those for extremely disabled people (i.e. Downs Syndrome, wheelchair cerebral palsy, etc).

I am in Canada. I do not know how much it costs to be in one of these things. While I'll gladly hear from anyone who knows anything about group homes anywhere including the USA, anyone who can tell me about Canadian group homes that cater to people with AS would be greatly appreciated.



Followthereaper90
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12 Sep 2009, 1:34 am

i have no idea about canada just one advice , get your own apartment dont go Group Homes since u sure save LOT of money and trouble also those 2 exsambles are just line start and end there are also several other varieties


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Shebakoby
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12 Sep 2009, 2:38 am

Followthereaper90 wrote:
i have no idea about canada just one advice , get your own apartment dont go Group Homes since u sure save LOT of money and trouble also those 2 exsambles are just line start and end there are also several other varieties


So even in Finland group homes are expensive?



Tracker
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12 Sep 2009, 2:44 am

Group homes are mainly for people who cannot take care of themselves. Generally because they are mentally ret*d, or have some other serious condition affecting their ability to function like quadriplegia, or blindness.

Since they are staffed by people who are care givers, they have to pay for the care giver's salary. This means that they are more expensive then just renting your own apartment.

So, unless you have serious issues that affect your ability to function independently, they really cost too much for no benefit.



Shebakoby
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12 Sep 2009, 3:10 am

Well currently I have what they thought was Fibromyalgia. Now it is diagnosed as Lyme Disease. It gives me fairly acute pain 24/7. If I were to move out of the house NOW, with treatment of the Lyme itself not even begun yet (still killing babesia co-infection) I would have trouble taking care of my own place.

I do not know how long this will last.



Friskeygirl
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12 Sep 2009, 3:13 am

there are special needs group homes in most cities in Canada, try looking online at Canadian Mental Health Association



Followthereaper90
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12 Sep 2009, 4:33 am

Shebakoby wrote:
Followthereaper90 wrote:
i have no idea about canada just one advice , get your own apartment dont go Group Homes since u sure save LOT of money and trouble also those 2 exsambles are just line start and end there are also several other varieties


So even in Finland group homes are expensive?
yes about 2000€/year i live in one this one is meaned more like "second home" i cant get my own apartment until i finish my school :roll:


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Zsazsa
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12 Sep 2009, 8:08 am

Group homes are just another "institution," a replacement for the BIG state government hospitals that warehoused the mentally
disabled before de-institutionalization forced many of these people out into the streets and where many are still "homeless." Many state governments did NOTHING to provide adequate care for these people kicked out of the state hospitals. Groups homes are very limited in number across the USA.

Groups homes cost a tremendous amount of money, too unless you are fortunate enough to get Medcaid, Medicare or some other government assistance to pay your costs of living there.

For many families, group homes provide an adequate residence for their severely disabled family member. For those mildly
disables individuals, a group home can be pure "hell." If you can learn to live on your own, with support from family, your therapist and friends, an apartment is the better place to go...and a lot cheaper.

Best of luck to you!



ChangelingGirl
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12 Sep 2009, 9:01 am

The expense depends on the healthcare system wher eyou live. In the Netherlands, if you have a disability/condition that makes it impossible for you to live independently, you will get the cost of a group home paid for by the government, and you will only pay a few hundred euros a month (if you're on disability or otherwise low-income, you will pay more if you have more money). You can also get into something where you pay the group home yourself and get money from the govt. This is generally more expensive because the group home will charge extra for rent, meals, etc. that are covered under the long-term care funding if you choose to go into a group home that is paid by the govt directly.

However, of course, you can only get into a group home if you have a significant enough disability. Asperger's alone usually doesn't count. I have been able to get an "indication" (approval of funding) that I could use to liv ein a group home if waiting lists weren't so huge (the money is now used to pay my mental institution placement), but I already tried living independently and landed on the locked psych ward, so I guess that's why I hav eno problem getting funding (but then again, I'll need to be re-evaluated in Dec and laws have been made more strict, so I'm pretty sure I'll lose par tof my funding).

By the way, someone suggested blindness is a qualifying disability, but here it is not. I may have had more trouble getting funding if I weren't blind, but my "indication" says psychiatric disability (autism, but they don't know that's a dev disability, apparently) is the reason for my services.



Followthereaper90
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12 Sep 2009, 9:42 am

what i most wonder about grouphomes is why they still save money they get it lot anyway, like in night shift when there are only 2 ppl :roll:


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ChangelingGirl
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12 Sep 2009, 11:06 am

Followthereaper90 wrote:
what i most wonder about grouphomes is why they still save money they get it lot anyway, like in night shift when there are only 2 ppl :roll:


In the Netherlands it seems to be because the money goes to managers and other bureaucracy.



bhetti
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12 Sep 2009, 11:12 am

why does your mom want to make you live somewhere else when you're recovering from Lyme disease?



Shebakoby
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12 Sep 2009, 11:56 am

bhetti wrote:
why does your mom want to make you live somewhere else when you're recovering from Lyme disease?


I keep asking her the same thing. I tell her she's getting ahead of herself. But she retorts that she's not getting ahead of herself and goes all pessimistic and says I should try to be on my own before it's all finished because 'what if you never get better?' She's been pushing this because I'm 36 years old and she is anxious to get me out of the house not just on the basis of it seems 'wrong' for a person that old to still be living with parents but also the following:

-she can't stand the state of my room. Well it must be a mess, right? Ummm...no. There are quite a few things on display, but overall this room is not a mess. It's merely 'cluttered', not messy. She's a bit OCD with 'tidyness' and she pesters me endlessly to 'tidy' my room. However she does not like doing this even though she feels compelled to do so. SO she thinks me living somewhere else will prevent her from doing that. BTW her using the word 'tidy' drives me crazy.

-she nags me about my weight constantly. I am 5'7, hovering around 235-240 pounds. She thinks I should weigh myself every day, and will criticize me if I eat french fries...which I eat very rarely! Or anything made of potato, which I also do not eat often. I mostly hate bread and will not eat it, though I will eat buns if they are not whole wheat (which tastes bitter and gross to me). I am this heavy because I drank a lot of ginger ale to settle my stomach over the years and could not exercise.

-she constantly nags me about my future and that I should think about it. Well I do, but my AS brain can't go anywhere with that because the Lyme is inhibiting some of my thinking functions and memory. She suggests I take a course but I can't figure out which one I want to take. I HATE schoolwork so the prospect of more schoolwork is very unappealing.

So this is why she brings up group homes. I don't think she realizes how much they cost...or whether they are in fact suitable for my needs. Ironically, even though I'm here at my parents' place and paying rent, she insists I must do things like clean up the kitchen. And I'm the ONLY one that knows how to 'fix' the TV if she's turned it off wrong (like accidentally turned the Cable box off but not the TV...or vice versa...or if they get Blue Screen of Death after watching a DVD or Video). And I do a fair amount of the cooking, although if I do that I can't clean up right away. She cannot stand a "dirty" kitchen...if one bowl is left out of the dishwasher because there's no room she frets about it being out. I can't stand loading the dishwasher while she's around because she'll "correct" my placement of things. Or she'll pull something out and put something else in. It's at that point I throw up my hands and retreat to my room.



Claradoon
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12 Sep 2009, 12:15 pm

I'm in Quebec, Canada. We have semi-independent apartments. I haven't seen one but my friend's mother lives in one and she says it's just like any other apartment, but there's a nurse in the building 24/7 and help with shopping and meals. It's subsidized by the government so she just pays a normal rent. The ones that are not subsidized cost a fortune. To get into a subsidized one, you need to start with a social worker, I think. If you're in Quebec, go to your CLSC (community health centre). There's a waiting list of course.



Shebakoby
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12 Sep 2009, 12:50 pm

Claradoon wrote:
I'm in Quebec, Canada. We have semi-independent apartments. I haven't seen one but my friend's mother lives in one and she says it's just like any other apartment, but there's a nurse in the building 24/7 and help with shopping and meals. It's subsidized by the government so she just pays a normal rent. The ones that are not subsidized cost a fortune. To get into a subsidized one, you need to start with a social worker, I think. If you're in Quebec, go to your CLSC (community health centre). There's a waiting list of course.


I'm in British Colulmbia. As a person on disability I have a 'case worker' but I have never talked to the person and I don't even know who they are or how to reach them.



bhetti
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12 Sep 2009, 1:05 pm

is there such a thing as "assisted living" there? it's popular here for older folks who are still independent but need some help. if something like that is an option, maybe it would work since you're clearly disabled. it sounds like you make plenty of contribution but there's only so much you can do having Lyme disease on top of AS.