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Greentea
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01 Dec 2009, 7:16 am

Social Worker: Do you have a formal diagnosis?
Me: Yes, here's the letter.
SW: Are you in treatment for your AS?
Me: No, there's no treatment for AS.
SW: Of course there is. And you have to join some AS clinic for treatment.
Me: Again, there are no AS clinics because there's no treatment for AS.
SW: You don't understand me. When someone has a headache-
Me: AS is not an illness. There's no treatment for it.
SW: But if you have a cold, you go to a doct-
Me: For the fourth time: there is no treatment for AS because nothing can change the AS neurology.
SW: You need Psychiatric help.
Me: No, I don't. I'm not mentally sick.
SW: I'm just trying to explain to you what AS is, for your benefit!
Me: You can't explain to me anything new about AS because you don't know the most basic about it: it's not an illness, can't be treated and can't be cured.
SW: Social Security will deny you help if you don't prove to them that you're in treatment to get better.
Me: If Social Security are such ignorants about AS as to demand I prove I'm recovering from AS, then there's nothing I can do about them. But you yourself should not believe such stupid things as that there is treatment.
SW: (changes the subject)


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Greentea
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01 Dec 2009, 7:28 am

That's the conversation that took place today when I went for my first interview to receive social benefits.


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DaWalker
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01 Dec 2009, 7:35 am

Very familiar with the run around game.
Unfortunately you will have to play for them to pay.

It's technically referred too as - AMA (Against Medical Advice) :?



Greentea
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01 Dec 2009, 7:40 am

I don't agree with you. I don't believe anyone forces you to declare yourself "mentally sick" and "in recovery from AS" as a condition to give you social security.


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Apple_in_my_Eye
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01 Dec 2009, 8:04 am

Ugh they sound like idiots. I wonder if they tell that to amputees, or blind people? or anybody else with a stable, 'unfixable' disability?

"You need to be in treatment to grow a new leg, because otherwise it just proves that you're not serious about recovering. You probably just want to stay sick. My cousin, he grew a new leg, and then another as a spare that he put in the freezer. You should be like him; you're just lazy."

Maybe there's a voodoo doctor on the corner, who handles such treatment, that he forgot to mention...



DaWalker
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01 Dec 2009, 8:14 am

Greentea wrote:
I don't agree with you. I don't believe anyone forces you to declare yourself "mentally sick" and "in recovery from AS" as a condition to give you social security.
Best Wishes

Apple_in_my_Eye wrote:
Ugh they sound like idiots. I wonder if they tell that to amputees, or blind people? or anybody else with a stable, 'unfixable' disability?

"You need to be in treatment to grow a new leg, because otherwise it just proves that you're not serious about recovering. You probably just want to stay sick. My cousin, he grew a new leg, and then another as a spare that he put in the freezer. You should be like him; you're just lazy."

Maybe there's a voodoo doctor on the corner, who handles such treatment, that he forgot to mention...
Next time he'll have a leg to stand on. ;)



Janissy
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01 Dec 2009, 8:16 am

Next time (if there is a next time), make the social worker earn her salary and ask her for the address of one of these treatment clinics. Then the social worker has to either admit she was just guessing and doesn't actually know of any such place or she will flip through all her resources, discover there is no such place and maybe rethink blithely saying that.

I can think of something there might be a market for- maybe I should do it. Body language interpretation classes. I could teach people what all the little movements mean so they wouldn't have to spend decades wondering what that eyebrow wiggle meant and other similar things.



zer0netgain
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01 Dec 2009, 8:23 am

The job of the social worker is to deny your benefits. Do you think the government really wants people getting benefits?

Since most "psychiatrists" don't know how to Dx AS properly, I'm not surprised at the ignorance of that social worker.



Greentea
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01 Dec 2009, 9:00 am

Oh Janissy, she just insisted that there are such clinics and that it's MY responsibility to find them. She only stopped it when I said that I myself act as support for Aspies in my country and abroad through the internet because there is NO treatment. I almost told her that I'm the Israel Chapter Director of Asperger Women Association International and that I'm connected to Tony Attwood, but I had mercy on her.

The only possible and useful treatment for Aspies is to reveal to us the secrets that form the basis of the NT society, such as white lies, convened euphemisms, etc. But nobody in the world will do that for us, it doesn't exist, it's denied us as if we Aspies weren't deserving of what NTs know. The only NTs who ever tackled this crusade in the whole of history are in my thread here on WP - the NT/AS OPEN HOTLINE". First and only time in history that people gave us the true treatment we rightfully deserve. It's the only clinic that's worth it for us, and yes, I'm in treatment there - heck, I'm even the founder! :evil:


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Greentea
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01 Dec 2009, 9:10 am

Not to mention, if there was a clinic that treated AS, the treatment would cost a fortune, and I'm here applying for their damned $500 a month because I don't have a place to live or food - so how could social security demand that I be in ongoing treatment in such a clinic for thousands of dollars a month?!

Not to mention, too, that until I get social security to recognize my AS, I'm not eligible for any kind of help (or treatment, if there was any) in this country, so how could I possibly be undergoing treatment?!

I wish I'd told her all this!

My heart goes out to all Aspies who have to go through this kind of s^^^ too. It's humiliating and a waste of time.


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Greentea
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01 Dec 2009, 9:17 am

Apple, what you mention is exactly what I tried to make you guys understand in the "misconceptions" thread - in a couple years, when I go to this social worker again, but with a diagnosis of "extremely mild autism" instead of "severe Asperger's", she'll be the boss in our dialogue and I won't have any way to prove to her that my condition is severe and that it has no treatment - since my diagnosis will say "extremely mild", she'll tell me to "just get over it".


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CockneyRebel
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01 Dec 2009, 9:47 am

I would not be caught dead, walking into one of those stupic clinics. It's almost as bad as nearly having obsession pills forced upon you.


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01 Dec 2009, 9:58 am

I like Janissy's suggestion, but I would be careful.

You might like to point out that as of now no effective treatment exists for AS and the chances of getting a genuine cure for AS are lower than those of finding a cure for AIDS. You might want to ask the social worker if she holds the same view of people who have AIDS or an incurable cancer who as a result of their physical condition are unable to hold down a job.

Some of the "cures" for AS which I have seen might well be far worse than AS.


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Diagnosed under the DSM5 rules with autism spectrum disorder, under DSM4 psychologist said would have been AS (299.80) but I suspect that I am somewhere between 299.80 and 299.00 (Autism) under DSM4.


Greentea
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01 Dec 2009, 10:07 am

One of the things I told her was: "I don't recognise my boss in the street and so I pass them by without saying hello. What treatment clinics do you know for prosopagnosia?"


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Janissy
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01 Dec 2009, 10:42 am

Greentea wrote:
The only possible and useful treatment for Aspies is to reveal to us the secrets that form the basis of the NT society, such as white lies, convened euphemisms, etc. But nobody in the world will do that for us, it doesn't exist, it's denied us as if we Aspies weren't deserving of what NTs know. The only NTs who ever tackled this crusade in the whole of history are in my thread here on WP - the NT/AS OPEN HOTLINE". First and only time in history that people gave us the true treatment we rightfully deserve. It's the only clinic that's worth it for us, and yes, I'm in treatment there - heck, I'm even the founder! :evil:


You say "denied". I say "untapped market". I wonder if this is something I could actually do as a class????? Currently I'm a physical therapist but there is a smidgen of overlap. Being a physical therapist means I'm already comfortable working with people who are under stress. Maybe just an hour on Saturdays for one of those Adult Ed organizations that have people teach classes in stuff like Creative Writing or How to Use Microsoft Word. This could work...Gotta go!! !



Greentea
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01 Dec 2009, 11:38 am

Not an untapped market, more like NTs can't stomach having to become conscious of some uncomfortable unsaid social rules in order to explain them to aspies. They don't like it as a job, and find it hard even to do it to help their aspie children. I don't blame them, I too wish I could know them unconsciously without having to look some ugly truths in the face...


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