/sigh... when will I learn my lesson?

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anxiety25
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10 Feb 2010, 12:08 pm

So... I joined a parents site that was supposed to be a support group for parents of children who have autism.

Well, one would think I would have learned my lesson the time before... and before that... and maybe before that.

I really don't know why I bother anymore, but I go through these periods of being completely blissfully unaware of what is going on with people and all this ever does is wind up stirring up a ton of "why" questions.

The people there.... were nutty. They were insane! It started off okay, then the vaccination debate junk came up, of course, and I expected the group owner to put a stop to it, or try to look at it objectively, at least, in her responses.

But no, she joined right in with the finger pointing and all... basically the whole "you're right, I'm wrong" stuff, with ban threats included towards those who didn't support her opinion.

I left the group yesterday, but I can't help but to realize how different I am from others a lot of the time... and of course, after seeing that much negativity around the word "autism", I feel kind of... broken. Not like, in a way where I want to be "fixed" or "cured", but I just feel misplaced.

Being the voice of reason at times, or trying to be, leaves a very blank and even more invisible feeling when it comes to trying to help out, or get involved, and ultimately just backfires.

It just makes me realize, that a lot of normal people are just very irrational because they do a lot of things based on emotion. Not all of them are so bad, I'm sure, and of course, I doubt it's an all-day long affair... but these moments stick out in my mind as "this is what I want you and my kids to be!", because they ultimately define what is "normal" or "acceptable" for them. Personally, I want no part of it.

Thanks for listening to my ramblings... and I'm not sure if this post even makes a ton of sense... I just really needed to vent, and while my boyfriend is very supportive, he doesn't "get it" in the full sense.


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League_Girl
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10 Feb 2010, 12:45 pm

Sounds like mod abuse. Threatening to ban you just because you don't agree with them. :x

Maybe there should be a ASD parenting board and it be for parents on the spectrum :D



anxiety25
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10 Feb 2010, 12:47 pm

Yes, /agreed about the mod abuse.

Her group though, so I guess she can do what she wants.

I'd like to make a group like that one day... but am always too sidetracked by other things to be able to keep up with it, haha.


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lelia
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10 Feb 2010, 3:22 pm

We have a parent's group on WP? It happened here? That surprises me.



anxiety25
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10 Feb 2010, 3:55 pm

lelia wrote:
We have a parent's group on WP? It happened here? That surprises me.


No, it didn't happen on here. It was on Cafemoms.


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makuranososhi
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10 Feb 2010, 4:27 pm

lelia wrote:
We have a parent's group on WP? It happened here? That surprises me.


No, it did not happen here - at least as far as I can tell.

Quote:
So... I joined a parents site that was supposed to be a support group for parents of children who have autism.

Well, one would think I would have learned my lesson the time before... and before that... and maybe before that.

I really don't know why I bother anymore, but I go through these periods of being completely blissfully unaware of what is going on with people and all this ever does is wind up stirring up a ton of "why" questions.

The people there.... were nutty. They were insane! It started off okay, then the vaccination debate junk came up, of course, and I expected the group owner to put a stop to it, or try to look at it objectively, at least, in her responses.

But no, she joined right in with the finger pointing and all... basically the whole "you're right, I'm wrong" stuff, with ban threats included towards those who didn't support her opinion.

I left the group yesterday, but I can't help but to realize how different I am from others a lot of the time... and of course, after seeing that much negativity around the word "autism", I feel kind of... broken. Not like, in a way where I want to be "fixed" or "cured", but I just feel misplaced.

Being the voice of reason at times, or trying to be, leaves a very blank and even more invisible feeling when it comes to trying to help out, or get involved, and ultimately just backfires.

It just makes me realize, that a lot of normal people are just very irrational because they do a lot of things based on emotion. Not all of them are so bad, I'm sure, and of course, I doubt it's an all-day long affair... but these moments stick out in my mind as "this is what I want you and my kids to be!", because they ultimately define what is "normal" or "acceptable" for them. Personally, I want no part of it.

Thanks for listening to my ramblings... and I'm not sure if this post even makes a ton of sense... I just really needed to vent, and while my boyfriend is very supportive, he doesn't "get it" in the full sense.


It appears to reference another resource and not WP.


M.


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pensieve
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10 Feb 2010, 6:40 pm

Ugh, I was on an ADD site (parents section) and one member brought up the vaccine and autism link. And I linked the article about how the study has been retracted. But of course she didn't believe me and said something like 'I know the vaccine are one way autism and ADHD are caused.'
I just ignored it. I could argue until my fingers bled and they wouldn't change their mind.

But yes how wrong for a mod to abuse their power like that. I know of a forum where the mods abuse people. It's in their rules to not single out a person and abuse them, but many mods break this rule.


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anxiety25
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10 Feb 2010, 7:25 pm

pensieve wrote:
Ugh, I was on an ADD site (parents section) and one member brought up the vaccine and autism link. And I linked the article about how the study has been retracted. But of course she didn't believe me and said something like 'I know the vaccine are one way autism and ADHD are caused.'
I just ignored it. I could argue until my fingers bled and they wouldn't change their mind.

But yes how wrong for a mod to abuse their power like that. I know of a forum where the mods abuse people. It's in their rules to not single out a person and abuse them, but many mods break this rule.


Yeah, I think this one was going above and beyond abusing it... but I also think she had an EXTREMELY biased opinion, and was just so emotionally driven behind it, that it created a really bad combination in the abuse of power.

I asked them, if they are so incredibly focused on the cause, how can they be of much support to their children, seeing as they are so "broken" and need to be "fixed". Nobody responded to that-just bypassed it and went on to the next post they could argue about, haha.

It's really weird.

They also seem to worship Jenny Mcarthy there... now, I don't get that. Just because she is a celeb and had a child with autism, doesn't make her any more of an expert on it than they are, themselves. She is merely another person in the world with an autistic child. I thought about it, but I didn't say any of that... I'd rather just leave on my own before stating too much of my mind there and getting the boot, haha.


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