Approaching doctor about Auditory Processing Disorder (APD)

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Orbidsku
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03 Feb 2010, 11:35 pm

[Edit: I should say hello and that I like this forum a lot, much more interesting conversations here than pretty much any other forum I've visited - thanks to anyone who takes the time to read this.]

(tldr;? Go straight to the question in bold if too long to read - Sorry for the length)

I'm never sure on how to to go about explain anything, so I'll just jump straight in.

At 21 years of age I discovered APD when researching dyslexia at one point - Before this I didn't know what was "wrong" with me.

I assumed all my social problems just stemmed from shyness (what ever the hell that means), and I'd one day get over it. - Upon discovering this, it was blatantly obvious to me that I have this condition (always a sceptic I shall say it seems so to me - could be something I am unaware of that has similar traits) and these problems were not going to just go away, it is something I would have to live with.

After a year of building up the courage, I brought it up with my GP (doc) when seeing him about something else. He said he was unfamiliar with the condition and that he didn't know what further action to take. He asked me to find out for him and he would see what he could do. I then researched further on who would deal with something like this, and came to the conclusion that even many audiologists may not be able to properly diagnose as it was not widely recognised at the time in the UK, and Northern Ireland is so small it would have much fewer specialists. I e-mailed professionals from different parts of the UK for names/places that they could recommend in my country (Northern Ireland). I never got any responses, I was disheartened and gave up feeling that it was pointless as, as far as I was concerned, no one knew about the condition that had shaped my personality/life.

Cut to now - 6 years later. I recently got tested for a learning disability after bringing concerns up with the disability advisers at my college (spelling/grammar/writing speed, etc.) and it was found that there was a large discrepancy (47 points) between my verbal and non-verbal I.Q (normal and very superior respectively) on the wechsler adults intelligence scale. Just as how one would expect it to be, if one had auditory processing disorder.

I believe this condition does and has affected me quite dramatically during my life, school was horrendous as I could not bare to be in a noisy classroom, working in those condition were a nightmare. I ended up dropping out of school due to stress and did not obtain enough qualifications to be able to apply to University. I am currently doing a uni access course that will get me into a good university next year (doing psychology, how surprising :P), before that happens I would like to be diagnosed; so if any problems do come up, I will have a valid reason for asking for a quiet room to do exams in, or whatever I can't foresee now.

Now to the question: How does one go about getting a referral for something like this? How do I explain it to the GP? Do I go to my GP? What is the procedure if I do? Is there any more information I can provide to help answer the question?

For anyone who has more knowledge on APD, do these results below seem typical for someone with APD? I assume the results overlap with Asperger's because so many people with Asperger's seem to also have APD. (I am pretty sure I do not have Asperger's, as I am good at reading body language, reading facial expressions and ascertaining someone's intent/emotional state. Although I seem to have a lot of trouble physically expressing such things through my own body language at times.)

Quote:
Aspie-quiz

Your Aspuie score: 136 of 200

Your neurotypical (non-autistic) score: 68 of 200

You are very likely an Aspie

[IMG]
img.photobucket.
com/albums/v336/nudles/graph.jpg[/IMG]

Quote:
Your result for The Broad Autism Phenotype Test ...

Autistic/BAP

You scored 89 aloof, 90 rigid and 86 pragmatic
You scored above the cutoff on all three scales. Clearly, you are either autistic or on the broader autistic phenotype. You probably are not very social, and when you do interact with others, you come off as strange or rude without meaning to. You probably also like things to be familiar and predictable and don't like changes, especially unexpected ones.
Your Analysis (Vertical line = Average)

You scored 89% on aloof, higher than 24% of your peers.

You scored 90% on rigid, higher than 44% of your peers.

You scored 86% on pragmatic, higher than 42% of your peers.

You scored 3% on diagnosis, higher than 20% of your peers.



Callista
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03 Feb 2010, 11:43 pm

APD? A neurologist and an audiologist. Regular hearing loss (which comes in many forms) has to be ruled out; and then you'd have to be evaluated for APD.


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Pyroaquatic
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03 Feb 2010, 11:49 pm

Do you have to have the captions on the television?

If I do not I have no idea what they are saying 50 to 75 percent of the time. I can hear everything else fine but it is lost on me. I do not like online tests for there is a bias.

A Third Party is needed to confirm, Orbidsku.



Orbidsku
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04 Feb 2010, 12:13 am

Callista wrote:
APD? A neurologist and an audiologist. Regular hearing loss (which comes in many forms) has to be ruled out; and then you'd have to be evaluated for APD.

Hi Callista,

Thank you for your reply Callista. I am aware of the details of how it is diagnosed as I have researched extensively throughout the last 6 years.

Pyroaquatic wrote:
Do you have to have the captions on the television?

If I do not I have no idea what they are saying 50 to 75 percent of the time. I can hear everything else fine but it is lost on me. I do not like online tests for there is a bias.

A Third Party is needed to confirm, Orbidsku.


Hi Pyroaquatic,

I do use captions frequently, yes, but I have to have the sound muted or I get jumbled between what I hear from the TV and what I hear in my head from reading the subtitles. I am slow at reading and it tires me, so I mostly use earphones when watching TV and alone.

I've never taken an on-line test to see if I have APD - I discovered this through the American Speech and Hearing Associations mission statement on (C)APD+adult APD support groups etc. which led to extensive research from official sources. The tests scores above were more of an aside, certainly not something I would use to diagnose anything at all.

How do you mean a third party is needed to confirm? As in a family member who has observed me as I grew up? Or do you just mean I need a professional for a diagnosis? A professional clearly is what I hope to see.

-Thanks for the responses guys. I appreciate it.



crownarmourer
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04 Feb 2010, 2:48 am

Orbidsku my wife has CAPD as she was born deaf however thanks to surgery where they gave her new ear drums a rare procedure she got 35% hearing. Unfortuately because of the speech delay she has CAPD which mimics apergers. There is a fine line here.
I myself have asepgers but can't stand loud noise or can not focus on a person speaking to me with loud background noise.



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04 Feb 2010, 9:57 am

I am being tested fro APD as part of psychometric testing for AS/ADD/ADHD......

I also have vestibulopathy....which doesn't help.

Good luck getting answers.......let us know how you go.


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starygrrl
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04 Feb 2010, 10:13 am

Honestly this is the first time I heard APD come up on this board. It does seem to be related to autism, but it sounds like it is more closely related to HFA, (where as NLVD is more closely related to AS).

It is pretty much the mirror opposite of NLVD. Kind of interesting.



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04 Feb 2010, 2:29 pm

Actually back in school they said I had this on my IEP. I don't know how I feel about that though. I think I can listen when I want to listen.



Orbidsku
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04 Feb 2010, 5:31 pm

crownarmourer wrote:
Orbidsku my wife has CAPD as she was born deaf however thanks to surgery where they gave her new ear drums a rare procedure she got 35% hearing. Unfortuately because of the speech delay she has CAPD which mimics apergers. There is a fine line here.
I myself have asepgers but can't stand loud noise or can not focus on a person speaking to me with loud background noise.


Would that be a cochlear implant? I can only imagine the degree of APD compared to mine, in a person who was congenitally deaf, must be awfully frustrating sometimes. (Not because of how she acts, how other people do.)
Background noises are horrible, makes socialising a club/crowded room etc. next to impossible at sometimes.

Michhsta wrote:
I am being tested fro APD as part of psychometric testing for AS/ADD/ADHD......

I also have vestibulopathy....which doesn't help.

Good luck getting answers.......let us know how you go.


Mics


Vestibulopathy, that certainly would not help. I will post back on how it goes, thanks for your post.

starygrrl wrote:
Honestly this is the first time I heard APD come up on this board. It does seem to be related to autism, but it sounds like it is more closely related to HFA, (where as NLVD is more closely related to AS).

It is pretty much the mirror opposite of NLVD. Kind of interesting.


A VLD (verbal learning disorder), rather than a NVLD, yeah I can see where you are going with that. Both restrict and shape how one interacts with others. Although I would not say the mirror opposite, only in the case of the expected IQ results; which displays it as a liner dichotomy, where I would describe the real world realities as a non-liner spectrum.

An AS diagnosed friend of mine jokingly refers to it, in my case, as auditory Asperger's; maybe because we happen to see eye-to-eye in our major philosophies on life, in many respects. Who knows.

Jacoby wrote:
Actually back in school they said I had this on my IEP. I don't know how I feel about that though. I think I can listen when I want to listen.


It's an array of so many different things, you may or may not have it. I imagine it can easily be misdiagnosed when other attention/perception/etc. differences are present, and at the same time, easily overlooked for the same reasons.

Thanks for the replies guys, they have given me things to think about. I made out a mind-map the other day when I was first making plans to approach my Doctor. I'll include a write up of it in case anyone is curious as to how APD can possibly affect someone. Remember, it also varies from person to person.

Notes that I wrote:
Quote:
Frequently say: "what?", then understand what was said seconds later - sometimes even minutes or hours/days later it will just "come to me".

Quote:
Frequent problems recalling words - Or explaining words, even if I know very well what the word means.

Quote:
Difficulty having conversations with people unless I am looking directly at their face/lips.

Quote:
Difficulty following a list of verbal instructions.

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Very disorganised - Forgetful.

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Most of life - childhood to early adulthood problems with speaking "too low", without being able to perceive this volume problem. Much less common now as I have always been trying to compensate.

Quote:
Unable to tolerate "background noise", e.g., the sound of a ticking or buzzing clock - light switch/electrical buzzing - Fluorescent lights if need to concentrate/sleep. (apart from rain, the sound of rain relaxes me more than anything).

Quote:
Frequently misinterpret what people say: e.g.: "Hand me that pen." might be heard as "Jan made a den." and tone may be misinterpreted as aggressive when it was not.

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Conversations can frequently be difficult to follow if there is background noise - when others are having no problems at all - has become normal to compensate by reading body-language, visual cues, etc. to ascertain meaning and/or feign understanding to avoid embarrassment or social complications.

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Usually need instructions to be written as I can easily forget verbal instructions.

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Developed anxiety for phone people, as problems are magnified - has caused distress in previous jobs. (All these features are also stress inducing when working in a job with customers face-to-face. e.g.: frequently asking customers to repeat themselves can lead to frustration on the part of the customer and distress on my part for the frequency of it and the fear of it).

Quote:
Horrendous short-term auditory memory.

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Confuse similar phonemes

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Can find group situations confusing - much easier one-one. (This sometimes caused debilitating shyness as a child.)

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Can't even work/read in a library as it is too distracting

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Problems finding synonyms / antonyms.

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Difficulty working as part of a group - can be disorienting / confusing.

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Hard time taking notes in classes and lectures.

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Social interaction does not come naturally - find 'greetings' and the like to be forced and 'fake' - social anxiety.