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sylvr
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25 Apr 2010, 11:01 pm

So a few weeks or so ago I got a book from the library called (something like) "How to be Yourself in a World that is Different: an Adolescent's Guide to Asperger's Syndrome". Because I think I have it, I wanted my mom to read it so I left it in her room. For days I saw it was untouched. Kind of disappointing. Then the other day I saw it in the front hall (which indicates things to go out of the house) so I managed the courage to ask "what did you think of the book?"

She replied "You don't have asperger's." "Why not?" "Because you don't have a special interest that you always talk about." "I don't have long-lasting special interests, but I'll decide I am interested in something, it could be very suddenly, and read up on everything I can about it. And then I am done" (It does work that way too, right? I'm new to all this still... :oops:) "Well Asperger's is a part of ADHD." "Mm... no it's not. It's a form of autism" "Well you're not autistic." "Alright..." "But you think you have Asperger's?" "Yes.. " "well then I'll read the book again" so HOPEFULLY she picks up on things this time, rather than dismissing what I think. Also I have much quirkier behaviour than my sisters; they're very similar. I'd think she'd notice that. And I tend to rock back and forth when I am seated; does that count as a stimm? I mean, I self-diagnosed my ADHD and it turned out to be correct. Also, if it's not AS I don't know what it is. I believe I meet the criteria, though in some cases barely. :s I just want to find a reason for the different way that I act.

I am not sure why I am making a thread. I guess because I am happy about this. Even if a diagnosis doesn't change much, it's closure for me because for so long I felt that ADHD diagnosis hasn't been encompassing all of me. And at least I think it seems to be a diagnosis more acceptable to relatives... :(



pumibel
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26 Apr 2010, 1:36 am

Do you mean you think Aspergers will be more acceptable to your relatives? I wouldn't count on it because you never know what they think about autism as a whole. They may actually start treating you worse than before, especially if their vision of autism is limited to Rainman.

What is best for you s to get the right diagnosis, and if this breakthrough with your mom makes you happy, then it is a good thing. Congrats!



CockneyRebel
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26 Apr 2010, 7:45 am

I'd be careful about the autism diagnosis. I was treated like Rain Man, until I moved out. If I would have known, that I was going to be treated like Rain Man through my 20s and into my 30s, I would have moved out, when I was 20, instead of 32.


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peterd
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26 Apr 2010, 8:25 am

That is a problem with diagnosis - people react to that rather than to you, and feed you what they think would be right for someone with the problem you're being diagnosed with.



sylvr
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26 Apr 2010, 5:36 pm

I am unfamiliar with this Rainman. Is it youtube-able? And by 'more acceptable' I mean that... well this is how it went:

1) Sylvr fails her first year of university, because of what appears to be unorganization and unmotivation, even though I went for something I love doing (instrumental music).
2) Sylvr gets diagnosed with ADHD immediately, a few months after school ends.
3) Relatives* (seem to) think it's just an excuse for her to 'not really fail because something is different about her brain', so that means she just doesn't have to try as hard next time.

*More Dad's side. I don't know if this is relevant but anyway: Dad's family is Catholic. Mom's is Christian. Dad converted, thereby ruining his mother's visions of him marrying a Catholic girl and their kids (me & sisters) going to Catholic School. So Dad's mom has always been somewhat critical, yet very loving, of my mother and my immediate family.

And so I think that people's reaction to Asperger's, being a part of autism, is deemed more acceptable and 'real'. Like I'm so tired of hearing people's opinion that "ADHD is just an excuse for poor parenting, and a way to keep your wild kids sedated with drugs. But hey, autism is real!"

I'm still me, but now there's an explanation for me being me!

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if this breakthrough with your mom makes you happy, then it is a good thing. Congrats!

Thanks! It's a good thing, but since we don't seem to get along well day-to-day (today was bad 8O) I am not sure how well anything will progress. But at least she knows my feelings now...



Cryforthemoon
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26 Apr 2010, 6:42 pm

Rainman was a movie with Dusiton Hoffman. Long story short he had Autism in the movie but was also really really really smart. A few things one if you really do have it go over it with you're mom, dad, sister(s) and then if you can see someone about it. Hold off on telling the relatives.

For me my mom, dad, sister, and me we all me have aspergers more then just the ADD. I have a lot more things that fit aspergers. I have and still have the special interests. I was the outcast from even the outcasts. I was just all around different from ever one. I would have meltdowns when I was a kid and so on and that was not coming from the ADD.

As for telling the rest of my family. Beside my brother-in-law I told my mom that I will be the one to tell the family when and where I want to. That means besides my mom, dad, sister, and brother-in-law no one else in the family needs to know. I'm still myself. Having aspergers, ADD, Dysleixa or whatever else dose not change you as a person. They make and shap you into who you are. So no matter if you have it or not just be you're self.

But to be honest when I get tested even if it turns out I don't have it or that I'm so old that it does not show up to be a problem does not matter to me. Nor does it matter to my parents or sister. Don't make a really big deal about the label because that's all it is. Yeah I have Dysleixa I don't let it stop me from writing or reading. It's just a label and that's all.



pumibel
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26 Apr 2010, 7:33 pm

sylvr wrote:
I am unfamiliar with this Rainman. Is it youtube-able? And by 'more acceptable' I mean that... well this is how it went:

1) Sylvr fails her first year of university, because of what appears to be unorganization and unmotivation, even though I went for something I love doing (instrumental music).
2) Sylvr gets diagnosed with ADHD immediately, a few months after school ends.
3) Relatives* (seem to) think it's just an excuse for her to 'not really fail because something is different about her brain', so that means she just doesn't have to try as hard next time.

*More Dad's side. I don't know if this is relevant but anyway: Dad's family is Catholic. Mom's is Christian. Dad converted, thereby ruining his mother's visions of him marrying a Catholic girl and their kids (me & sisters) going to Catholic School. So Dad's mom has always been somewhat critical, yet very loving, of my mother and my immediate family.

And so I think that people's reaction to Asperger's, being a part of autism, is deemed more acceptable and 'real'. Like I'm so tired of hearing people's opinion that "ADHD is just an excuse for poor parenting, and a way to keep your wild kids sedated with drugs. But hey, autism is real!"

I'm still me, but now there's an explanation for me being me!

Quote:
if this breakthrough with your mom makes you happy, then it is a good thing. Congrats!

Thanks! It's a good thing, but since we don't seem to get along well day-to-day (today was bad 8O) I am not sure how well anything will progress. But at least she knows my feelings now...


I get what you are saying now. I have heard all the stuff about the ADHD and ADD being over-diagnosed and how people take a non-believing attitude towards it. I have always argued that if the Ritalin (or whatever is prescribed) works then why scoff at it? The people scoffing are hardly qualified to contradict a doctor's findings, and I know doctor's are not perfect either. Why cant family be happy for a person who has discovered the source of their problems? Dont they see that the person has to try much harder than they do just to get through each day? We are supposed to be the ones without empathy, but I wonder.



alana
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26 Apr 2010, 8:04 pm

you are 21, why do you have to have the approval of your mom, is she a clinician of some kind? she isn't qualified to diagnose you or not.



sylvr
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26 Apr 2010, 8:40 pm

Cryforthemoon wrote:
if you really do have it go over it with you're mom, dad, sister(s) and then if you can see someone about it. Hold off on telling the relatives.

I remember now, I'd given my mom permission to tell them, which was fitting anyway because I stayed a few weekends with my dad's parents and they would try to help me with my school work; all of my extended family lives in that one city that the uni is in. So of course my grandparents would be curious to know what was the outcome of my year (and why it failed).

Cryforthemoon wrote:
I would have meltdowns when I was a kid and so on and that was not coming from the ADD.

Yeah, that's the thing. ADHD covers a lot for me, but I always felt there was something missing, mainly the social difficulties. ADHDers are supposed to be more impulsive and risk-taking. I'm the opposite even though I still have a hyperactive side to it. I've always been withdrawn, increasingly so in the past few years, unless I am in an extremely comfortable situation. A semi-meltdown in an unfamiliar grocery store today confirms there is something besides ADHD going on here. :lol:

alana wrote:
you are 21, why do you have to have the approval of your mom, is she a clinician of some kind? she isn't qualified to diagnose you or not.

I still rely a lot on my family. :oops: And I think that because I was raised as an NT person, I'm still treated that way. Like, I don't do the strange things I do because I want to bother my family or I want to get in trouble. My parents seem to forget that I am not likely to be able to behave quite like everyone else just by trying really extra hard. So having them aware about something that's been made official by a doctor would help them to not be so frustrated at me so much perhaps... I am having trouble explaining this part. :?