This is going to sound super weird, and I'm sorry for that.
Every so often while I'm sitting around, or laying in bed, everything will seem as if it's really far away.
It's like a very very wide angle lens in photography, and if I look at my feet it's like I'm looking at them 30 feet or so away.
I'm sorry if this all sounds crazy, but I don't know any other way to explain what happens.
While the 'wide angle lens' thing happens, I often find that my tongue feels swollen and sort of pins and needly - if that makes any sense.
So that's the deal, every so often I seem to have what seems like some kind of visual seizure and something weird happens to my tongue.
Have any of you heard of anything like this, or do you have any ideas what this could be?
I've already been to specialists about this, which loads of tests done - and no solution found.
Thanks!
You might consider posting to a number of free epilepsy discussion boards such as the one at the epilepsy foundation or epilepsy.com. It's sounds like there may be something subtle going on at the level of the 12 pairs of cranial nerves - nerves which are associated with many functions including the eyes as well as the tongue. Technically there is something called Alice in Wonderland syndrome but that may or may not apply at all to your situation.
There likely are a number of possible explanations for what you report - perhaps the worst being something like a brain tumor. My guess is that what you have likely will either get worse or get better although it could remain stable. Am not a doctor. Again, posting to an epilepsy discussion board may help clarify your question a little. Sometimes you have to see the right kind of specialist to have everything clarified as some doctors will run only basic tests which are read as normal and then they say you're fine and ignore all the symptoms you list. Do not know what you have or don't have at all. Good luck.