autistic entrocolitis

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does anyone know anything about this?
i was diagnossed with eosinophilic colitis and autism seperatly but i heard of something on the national autism association website where people with autism have a certin kind of colitis. the eosinophilic part was very mild in the biopsy and should have gone away after i went on the elimination diet and had a feeding tube.
i'm probably having a colonoscopy soon (i'm in the middle of a flare-up) and if anyone knows anything about this that i could tell my gi doctor about i would like to hear it. my asppointment to see the doctor is june 1st so i need ot know by then.

I just posted a topic similar to this on another AS board...just curious to see how many others had some sort of IBD problems. I have Crohns, and have had it for over 5 years now. I am just now learning about the autism IBD connection possibility. It is quite interesting to me, but I dont know a whole lot about it yet.

On the other hand I can tell you anything you wanna know about crohns and all the fun stuff that goes with it
Colonoscopy, so much fun. Just had one 3 weeks ago, it showed I still had crohns..what good that does I will never know.

Anyway, I am glad to see this topic come up here.

I wish you luck with feeling better, I am in the middle of a rather long flare-up, and now on prednisone to control it (after a week long hospital stay)...so we shall see what happens.

Justin

Hi,

My ulcerative colitis was diagnosed 25 years ago - at that time they thought it was Crohn's, but one IBD or another ... I have learned about Asperger's last year, and it took me a while to accept that I really have quite a lot of the symptoms, even though luckily only in a mild form.

I'm right now trying to recover from a flare-up of my CU, but whenever I think it's done, there is a relapse.

As for your colonoscopy: I always ask for the anesthetic. You stay awake and compliant to the doc's requests but you don't notice much of what goes on. Fortunately my doc just called me back about my problems, so I could ask about the name, here in Germany it is called "Propofol".

jabberwocky

...IBS, Chronic Fatigue, FM....

IBS was diagnosed around 11 or 12.

that's interesting that others are in the same boat as me, so to speak.
i always ask for versed, because propofol has horrible emotional effects on me.
i may be getting both... upper and lower endoscopies. i have reflux so they do an upper every so often and i guess they figure since i'm knocked out, they might as well do the easy one too.
i'm so not looking forward to the colonoscopy prep though lol
the last time i had one i was younger and they had me do the kids prep... 2 days of laxitives, jello, and enamas. what fun!
my mom works for a gi doctor, one of the leading names in ibd research actually, so she's going to ask him about this when he gets back from this convention he's at.

I have IBS, have had since I was a teen.

yup here too, for 26 years--started up when I was in my teens and never let up since. Docs never could quite figure it out, so ended up with diagnosis of gastrointestinal motility dysfunction.

However, all I know is it gets bad when the seasons change and it's always around to the point where I'm pretty limited in what I can participate in (i.e. subways are out, as is most public transportation due to lack of facilities, big events are out, etc.).

Since learning about the AS earlier this year, I also have been taking a hard look at the gut-Autism connection. Right now I'm tinkering with reducing gluten and that seems to be making a difference though with this problem I won't know for sure for awhile as I could just be a quiet phase with the gut problems.

I am going in for a physical in the next couple of weeks and my doc is an internist so I'll talk to him about the AS-gut link and see if he has any creative ideas.

I am gastroenterologist, so if you have questions.....

I can say that in USA and United Kingdom was described an association between autism - developmental disorders and some kind of inflammatory disease of the gastrointestinal tract.

But the studies are controversial, there not cases enough to conclude..Wait and see.

No association until now with Crohn's disease or ulcerative colitis.

Hello

what are some other health problems that seem to go with Aspergers and Autism? I seem to recall some mention of allergies, food sensitivities, and sinus trouble. Are there a lot of them?

i've met online alot of people with dysautonomia (or autonomic dysfunction, depending on where you're from and who you talk to) who are also on the spectrum. most of them are boys though. i only know one other girl with both even though dysautonomia is much much more common in girls.

i've read many many articles about allergies and food sensitivities and autism.
i've never heard of sinus problems and autism, but i have wicked bad sinus problems.

there's a ton of links about dysautonomia and food allergies as well as links to autism websites on my site. i try to update them every few months with new stuff.

I, too, have Irritable Bowel Syndrome (ever notice that when you mention the word "bowel", people back right off?), I've had it for as long as I can remember, even as a toddler. Whenever I am nervous about the slightest thing, my stomach acts up. So that is often.
I finally had enough of it when I was about 22. The doctor thought it was reproductive problems but it wasn't, so then I got the diagnosis of IBS. I still had a laparoscopy to make sure anyway. It was quite painless, I was surprised.
Right now, IBS is driving me crazy, I can't go out for very long. I have tried medications, it is like eating lollies. I am going to ask the doctor about allergy testing to see if I am allergic to any foods. I will insist (as best I can) this time, I sort of got brushed off last time.
Luck with the colonoscopy, flea, let us know how you are?

Thank you, keats, you have given me an idea! After having read your entry, I noticed that my last relapses always occurred when I indulged in my freshly acquired love of couscous. I alway put it up to everything else, because wheat is so very normal for me, but I'll try gluten-free for some time now.

Do you absolutely ave to see a doctor when you have IBS? Mine isn't very severe and I hate going to doctors. Plus I can't afford all those tests they usually give.

IBS is just a disfonctionning not really a disease. No relation is described with autism or Asperger.

In autism gluten and casein-free diets are under evaluation and untill now don't have proven efficacy..

I avoid anything with artificial sweetner, seems to trigger my IBS alot. Eating out is usually not good... Somedays when I'm stressed out nothing helps.

I don't have any other major problems with being sensitive to food...have allergies to a bunch of other things and sinus problems though.

i avoid artifical sweatners for another reason... they tend to make me jittery.