Page 1 of 2 [ 21 posts ]  Go to page 1, 2  Next

PunkyKat
Veteran
Veteran

User avatar

Joined: 14 May 2008
Age: 37
Gender: Female
Posts: 3,492
Location: Kalahari Desert

02 Dec 2010, 6:14 pm

On You Tube, the mother of a severely autistic adult son claims she dosen't think Donna Williams is truely autistic. She claims Donna Williams has multiple personality disorder and one of her personalities is autistic. Is she or is she not autistic?


_________________
I'm not weird, you're just too normal.


CockneyRebel
Veteran
Veteran

User avatar

Joined: 17 Jul 2004
Age: 49
Gender: Male
Posts: 116,730
Location: In my little Olympic World of peace and love

02 Dec 2010, 6:15 pm

From what I remember reading about her, she is.


_________________
The Family Enigma


PunkyKat
Veteran
Veteran

User avatar

Joined: 14 May 2008
Age: 37
Gender: Female
Posts: 3,492
Location: Kalahari Desert

02 Dec 2010, 6:21 pm

CockneyRebel wrote:
From what I remember reading about her, she is.


I think your right. The mother of the severly autistic man even claimed she might be a little bit biased becuase her son is so severly autistic.


_________________
I'm not weird, you're just too normal.


anbuend
Veteran
Veteran

User avatar

Joined: 5 Jul 2004
Age: 44
Gender: Female
Posts: 5,039

02 Dec 2010, 6:44 pm

She's both autistic and multiple, and all of her selves are affected by that (in different ways though). I know that she's autistic because her pattern of autism resembles my own in many ways. It's not the most common pattern of autism, and so a person who has it will not always seem like the most common sorts of online autistic people. But it's a real pattern that I know many autistic people who do fit it. It's just relatively rare. And that's why she has certain experiences of the world that are not the autism stereotype and not the most common.

I don't really like threads like this though. Partly because I've been the subject of the occasional one and I know how it feels. (I've also written them in the past before I was aware of how it felt.) The thing is, it's very uncomfortable when people you've never met think they have a right to pontificate about your diagnosis, or satisfy their curiosity, or pick you (or a mental construct they think is you) apart in public, or insist that they know things about you that only you and your close friends and family and medical professionals have a right to say they know. It's a side-effect of becoming even moderately well-known, but it's not one that ought to be encouraged. Even when people are "just curious", even when people "mean well", they're crossing a boundary line when they start getting into this territory. If people don't know someone extremely well, "figuring out" that person's diagnoses is none of their business. Especially when the person themselves has already been clear that they have that particular diagnosis.


_________________
"In my world it's a place of patterns and feel. In my world it's a haven for what is real. It's my world, nobody can steal it, but people like me, we live in the shadows." -Donna Williams


ci
Veteran
Veteran

User avatar

Joined: 28 Nov 2010
Age: 43
Gender: Male
Posts: 3,546
Location: Humboldt County, California

02 Dec 2010, 7:13 pm

I talked to Donna. She is good. I do not know about if she has autism or not as that is not my department.



Callista
Veteran
Veteran

User avatar

Joined: 3 Feb 2006
Age: 41
Gender: Female
Posts: 10,775
Location: Ohio, USA

02 Dec 2010, 11:05 pm

Punky, the woman on YouTube apparently doesn't know how autism works. If you're autistic, your entire brain is autistic; you can't be autistic with DID and not have all personalities affected. Now, some of them may deal with the autism differently than the others, but they are all going to be neurologically autistic because they are all using the same brain. It would be all over the scientific journals if they ever discovered someone who had DID and autism and one or more personalities weren't neurologically autistic. It would be a huge discovery.

So, yeah, even if I had no idea who Donna Williams was, I'd have to disagree with the YouTube video.


_________________
Reports from a Resident Alien:
http://chaoticidealism.livejournal.com

Autism Memorial:
http://autism-memorial.livejournal.com


jojobean
Veteran
Veteran

User avatar

Joined: 12 Aug 2009
Age: 47
Gender: Female
Posts: 3,341
Location: In Georgia sipping a virgin pina' colada while the rest of the world is drunk

02 Dec 2010, 11:19 pm

I read her book and it would not suprise me if she did not have MPD based on the abuse she suffered, but I know that if one part of her is autistic...the rest of her is too.

The woman on you-tube obviously never heard of HFA if she thinks that only LFA is really autsim.....that is why it is a spectrum disorder!! !


_________________
All art is a kind of confession, more or less oblique. All artists, if they are to survive, are forced, at last, to tell the whole story; to vomit the anguish up.
-James Baldwin


jojobean
Veteran
Veteran

User avatar

Joined: 12 Aug 2009
Age: 47
Gender: Female
Posts: 3,341
Location: In Georgia sipping a virgin pina' colada while the rest of the world is drunk

02 Dec 2010, 11:35 pm

I read her book and it would not suprise me if she did not have MPD based on the abuse she suffered, but I know that if one part of her is autistic...the rest of her is too.

The woman on you-tube obviously never heard of HFA if she thinks that only LFA is really autsim.....that is why it is a spectrum disorder!! !


_________________
All art is a kind of confession, more or less oblique. All artists, if they are to survive, are forced, at last, to tell the whole story; to vomit the anguish up.
-James Baldwin


League_Girl
Veteran
Veteran

User avatar

Joined: 4 Feb 2010
Gender: Female
Posts: 27,254
Location: Pacific Northwest

02 Dec 2010, 11:43 pm

I think I know what woman you are talking about on youtube. She seems to compare her son to everyone and if you aren't like him, you're not autistic.

I do think Donna is, I have read one of her books. I never liked people going around questioning peoples diagnoses and playing the doctor.


_________________
Son: Diagnosed w/anxiety and ADHD. Also academic delayed and ASD lv 1.

Daughter: NT, no diagnoses. Possibly OCD. Is very private about herself.


PunkyKat
Veteran
Veteran

User avatar

Joined: 14 May 2008
Age: 37
Gender: Female
Posts: 3,492
Location: Kalahari Desert

03 Dec 2010, 1:33 am

[youtube]http://www.youtube.com/watch?v=1lNTZYu2Thc[/youtube]

She did not even answer my question about people like Temple Grandin and myself who are severly low functning autistic as young children but become more Asperger's-ish as the grow up.


_________________
I'm not weird, you're just too normal.


League_Girl
Veteran
Veteran

User avatar

Joined: 4 Feb 2010
Gender: Female
Posts: 27,254
Location: Pacific Northwest

03 Dec 2010, 1:48 am

I see she does think AS is real but she doesn't see it as autism. Makes me wonder what she does think of people who go from autism to AS?


_________________
Son: Diagnosed w/anxiety and ADHD. Also academic delayed and ASD lv 1.

Daughter: NT, no diagnoses. Possibly OCD. Is very private about herself.


DandelionFireworks
Veteran
Veteran

User avatar

Joined: 16 May 2010
Gender: Female
Posts: 2,011

03 Dec 2010, 2:14 am

League_Girl wrote:
I see she does think AS is real but she doesn't see it as autism. Makes me wonder what she does think of people who go from autism to AS?


Presumably the same thing most sane people think: that since the diagnosis is made based on early history, you can't go changing it based solely on current presentation. Doing so (calling all functioning individuals AS and all non-functioning individuals autistic) is basically defining autism as low-functioning, generally for the purposes of making arguments that weren't valid anyway but seem slightly more sensible if there are no readily-available examples of successful autistics. In essence it's defining autistic as worthless so you can argue that autistics are worthless, and by definition excluding people who are not.

And it's stupid and I hate it. It leaves most real people (on the spectrum) in limbo, because most of them (arguably all of them) are less pathetic than the stereotypical low-functioning autistic, but few fit the stereotype of the high-functioning non-disabled Aspie. Few people are truly either, if any. (I come as close to the latter as anyone. Living it is not like the stereotypes.)


_________________
I'm using a non-verbal right now. I wish you could see it. --dyingofpoetry

NOT A DOCTOR


katzefrau
Veteran
Veteran

User avatar

Joined: 11 Apr 2010
Gender: Female
Posts: 1,835
Location: emerald city

03 Dec 2010, 2:39 am

if someone can write a book, someone else will accuse them of not really being autistic.

it's as if a certain degree of (seeming) functionality negates the autism, and i wonder if it comes from an autism speaks sort of place where it does not promote their agenda to have people in the spotlight, proud of their lives and accomplishments despite their autism.


_________________
Now a penguin may look very strange in a living room, but a living room looks very strange to a penguin.


ediself
Veteran
Veteran

User avatar

Joined: 3 Oct 2010
Age: 46
Gender: Female
Posts: 3,202
Location: behind you!!!

03 Dec 2010, 2:56 am

Does that kind of thinking imply that lower functionning people are never going to be able to learn to interact in a more NT acceptable way? not necessarily passing, but at least show the world they are not as empty as they are thought to be? because that borders on abusing in my opinion. It's basically saying, I do ABA with my son, but he will never be a functionning individual. Why do any therapy then? Some parents might just take it the wrong way and institutionalise their kids because after all, there is no hope ....
it's not only strange, as a lot of high functionning adults were non verbal for the first years of their lives, but it's also sending a message that i find a bit dangerous...



jojobean
Veteran
Veteran

User avatar

Joined: 12 Aug 2009
Age: 47
Gender: Female
Posts: 3,341
Location: In Georgia sipping a virgin pina' colada while the rest of the world is drunk

03 Dec 2010, 3:02 am

katzefrau wrote:
if someone can write a book, someone else will accuse them of not really being autistic.

it's as if a certain degree of (seeming) functionality negates the autism, and i wonder if it comes from an autism speaks sort of place where it does not promote their agenda to have people in the spotlight, proud of their lives and accomplishments despite their autism.



Hmmmm...now that you say that (scratches chin)
We are just going by this unhonnerable woman's word that the LFA kid is even her child. She could just be an actress for Autism Speaks bashing Donna Williams cause Donna has proven that you can be autistic and still live a functional, dignified life. There is no proof that this woman is not doing this. The question need be is what is Who benifits from this woman talking about Donna like this?
Answer: Organizations like Autism Speaks


_________________
All art is a kind of confession, more or less oblique. All artists, if they are to survive, are forced, at last, to tell the whole story; to vomit the anguish up.
-James Baldwin


DandelionFireworks
Veteran
Veteran

User avatar

Joined: 16 May 2010
Gender: Female
Posts: 2,011

03 Dec 2010, 3:39 am

jojobean wrote:
katzefrau wrote:
if someone can write a book, someone else will accuse them of not really being autistic.

it's as if a certain degree of (seeming) functionality negates the autism, and i wonder if it comes from an autism speaks sort of place where it does not promote their agenda to have people in the spotlight, proud of their lives and accomplishments despite their autism.



Hmmmm...now that you say that (scratches chin)
We are just going by this unhonnerable woman's word that the LFA kid is even her child. She could just be an actress for Autism Speaks bashing Donna Williams cause Donna has proven that you can be autistic and still live a functional, dignified life. There is no proof that this woman is not doing this. The question need be is what is Who benifits from this woman talking about Donna like this?
Answer: Organizations like Autism Speaks


Anyone who preys on desperate parents. That includes any institutions that turn a profit from their business. Anyone who profits from the existence of institutions. Also, therapists that aren't really good at their job.


_________________
I'm using a non-verbal right now. I wish you could see it. --dyingofpoetry

NOT A DOCTOR