JohnHillage wrote:
My interest is that I work with a number of families with children who have Aspergers and they often have questions that they feel are not adequately answered by the health care "professionals" in their lives. My plan is to look deeper into some of the issues and see if there are better and more effective ways for parents and families who have Aspergers children to work together more in harmony for everyones mutual benefit.
Instead of getting input from "families" (read: parents), why not get input from children themselves? Obviously, they have to be old enough to use a computer, but the input could be priceless. After all, childhood memories stick with you for life. I recommend asking the children the following questions.
1) How would you describe your relationship with your parents?
(a) They tell me how to live my life, and I absolutely must obey their orders.
(b) I can do anything I want, as long as I'm not hurting people.
(c) There are things I control, and there are things they control.
(d) I have to be very careful not to make them angry,
or else.
2) What happens when you get a bad grade in school?
(a) I'm grounded for a week with no TV, phone, or internet.
(b) No TV for that day, but that's about it.
(c) Nothing, they don't care.
(d) A bit of yelling, but everything's back to normal the next day.
3) If you could move away from your parents
right now, would you?
(a) I'd run like the wind as soon as I heard.
(b) I'd think about it for a few weeks as I pack, then happily move.
(c) I'd be a little confused; it seems nice, but I don't want to leave now.
(d) I'd refuse the opportunity, and stay home with my parents.
4) What was your most severe punishment, and for what?
(Open-ended question)
5) How does a typical evening at home with your parents go?
(Open-ended question)
6) What will be your relationship with your parents like when you grow up?
(Open-ended question)
Get the answers to these questions, then use the results to demonstrate how parents can communicate better with the children. Best of luck.