Telling online friends about Asperger's

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wblastyn
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22 Jan 2011, 2:48 pm

I'm thinking as part of my "accepting AS" scheme, I should inform my Internet friends I have it. There are several reasons I think this may be a good idea. Firstly, hiding Aspergers from people, especially in real life, makes it feel as though it's shameful in some way. So being more open about may help me towards acceptance. Secondly, I think it would be easier to tell people I only know online vs people I know in RL. This may in turn make me confident enough to tell more people in real life. Thirdly, I might actually educate someone, who may never have heard about AS before. This may help them to become more accepting towards "strange" people they know in real life, who may or may not have AS.

On the other hand, telling people might be inappropriate/weird and just make people feel uncomfortable. People also might start to avoid me because they don't know how to deal with a "disabled" person. Although, this would be silly as I'm still the same person as before. Also, if it was me, I would feel privileged that someone would share such an important aspect of themselves with me. But not everyone is like me, as I discovered when I found out than not everyone is as honest as me.



Woodpecker
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22 Jan 2011, 3:06 pm

I do not know if this is typical for the older generation, but I have no on line friends other than a few people on the wrong planet who I stay in contact with by PM.

Almost the people I know in the world right now are people who I have at one point meet face to face.


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verbal0rchid
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22 Jan 2011, 4:23 pm

There is a certain safety in the anonymity of Internet relationships vs. real life relationships. But I tend to feel this is a bit skewed. While there is a certain anonymity, yes, there is still a deep connection to people online vs. 'real' life. Feelings are still real, people still connect on a personal level regardless of the venue which facilitated the meeting.

That said, I think it's personal choice whether they are comfortable disclosing their condition to anyone, be it online or face to face. In some ways it feels safer because online, you don't have to *face* someone, and watch their reactions to what you're telling them. It gives you a chance to be more forthcoming, and gives the recipient an opportunity to digest and absorb the information in a manner that they can feel safe in, because they don't have to worry about YOUR reaction to THEIR reaction. Does that make sense?

I have told a few close online friends, and almost no one aside from my spouse in real life. I have not said a single word to my family about it and don't plan on it until I find out definitively if yes or no as to whether I actually have Asperger's. My reasoning is because I know my family well enough to know what their reactions will be, at least my mom's. Not looking forward to that. I will have to have a clear case to present to her entrenched Taurean mind to even have a hope of convincing her I am not merely grasping at straws here.



Verdandi
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22 Jan 2011, 4:34 pm

Woodpecker wrote:
I do not know if this is typical for the older generation, but I have no on line friends other than a few people on the wrong planet who I stay in contact with by PM.

Almost the people I know in the world right now are people who I have at one point meet face to face.


I am four years older than you and every close friend I've had in the past 20 years is someone I first met online. Right now most of my friends are online and I do not regularly see them face to face. I often do meet them face to face, but we're geographically scattered, so it is difficult.

verbal0rchid wrote:
There is a certain safety in the anonymity of Internet relationships vs. real life relationships. But I tend to feel this is a bit skewed. While there is a certain anonymity, yes, there is still a deep connection to people online vs. 'real' life. Feelings are still real, people still connect on a personal level regardless of the venue which facilitated the meeting.


Yes, this. I think there's a tendency to view online relationships as superficial and the people involved as "less real." And the social interactions themselves as artificial or "virtual" and thus somehow not legitimate. This is completely opposite to my experience.

As for me, I've only told people online. My inclination is to not talk to many NTs about this (many I've told are very doubtful and start telling me that the things I experience couldn't possibly be true because what they've seen of me doesn't indicate it - but their framework for judging this is very narrow and often informed by comparing me to one other person on the spectrum).



Irulan
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22 Jan 2011, 5:01 pm

Woodpecker wrote:
I do not know if this is typical for the older generation, but I have no on line friends other than a few people on the wrong planet who I stay in contact with by PM.

Almost the people I know in the world right now are people who I have at one point meet face to face.


I have just a few, with whom I talk on MSN - all of them are from WP. The only MSN non-AS exception is a person who is a very distant acquintance from another board (she likes horror movies; so do I) - I didn't tell her about my suspitions concerning AS and I'm not going to; every time we talked, it was just about horrors and stuff. It's just like that I have way too little common ground with non-AS individuals and don't share many (actually close to none) experiences with others my age (and gender) to look for friends who are normals via boards.

However I do know some folks from other, non AS boards and the fanfiction site, with whom I'm relatively close (by my standards), with whom I communicate via the private messaging option on said boards. I never raised the issue of AS with them but for one case when I posted a thread on the forums we were on, once on another one and I wrote in it that I was on an AS forum.



League_Girl
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22 Jan 2011, 5:04 pm

When telling people about it, sometimes they are more understanding and accept you and sometimes others still won't accept it and still treat you bad.

I have ran into some dumb asses online and then all of a sudden they ask me if I have some mental problem or what and when I say I have AS, they'd say something like "Ugh no wonder you are so stupid" and log off. I bet they blocked me and I always found it funny. It's a good way to get rid of jerks. :lol: Sometimes telling them doesn't make them be any nicer nor change their opinions about you.


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verbal0rchid
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22 Jan 2011, 5:06 pm

League_Girl wrote:
I have ran into some dumb asses online and then all of a sudden they ask me if I have some mental problem or what and when I say I have AS, they'd say something like "Ugh no wonder you are so stupid" and log off. I bet they blocked me and I always found it funny. It's a good way to get rid of jerks. :lol: Sometimes telling them doesn't make them be any nicer nor change their opinions about you.


I call that "culling the herd" and I'd far rather know the truth of someone's character through that than be deceived and find out much later after I've become more emotionally invested in them.



AmandaAvery2011
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22 Jan 2011, 6:52 pm

On the other hand, telling people might be inappropriate/weird and just make people feel uncomfortable. People also might start to avoid me because they don't know how to deal with a "disabled" person. Although, this would be silly as I'm still the same person as before. Also, if it was me, I would feel privileged that someone would share such an important aspect of themselves with me. But not everyone is like me, as I discovered when I found out than not everyone is as honest as me.


When I tell people almost always you get that 'sense' they're only nice to you because they feel sorry, but when you make social blunders, those NTs you tell about AS, are more accepting and they figure, she/he didnt mean that it was the AS.



verbal0rchid
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22 Jan 2011, 6:55 pm

I'll agree with that, it can be a tricky situation. I would go by one's own comfort level as to whether or not they disclose their intimate details with people.



buryuntime
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22 Jan 2011, 7:28 pm

Why are you being rude? Why are you so weird? Why aren't you in school? etc etc etc.

It has to come up at some point. Besides, most people that ever get along with me have their own share of awkwardness or social phobia at the least so it's not that big of a deal.



verbal0rchid
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22 Jan 2011, 7:35 pm

Ugh, I've had those too. :(



Chickenbird
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22 Jan 2011, 8:45 pm

wblastyn wrote:
I'm thinking as part of my "accepting AS" scheme, I should inform my Internet friends I have it. There are several reasons I think this may be a good idea. Firstly, hiding Aspergers from people, especially in real life, makes it feel as though it's shameful in some way. So being more open about may help me towards acceptance. Secondly, I think it would be easier to tell people I only know online vs people I know in RL. This may in turn make me confident enough to tell more people in real life. Thirdly, I might actually educate someone, who may never have heard about AS before. This may help them to become more accepting towards "strange" people they know in real life, who may or may not have AS.

On the other hand, telling people might be inappropriate/weird and just make people feel uncomfortable. People also might start to avoid me because they don't know how to deal with a "disabled" person. Although, this would be silly as I'm still the same person as before. Also, if it was me, I would feel privileged that someone would share such an important aspect of themselves with me. But not everyone is like me, as I discovered when I found out than not everyone is as honest as me.


My first thought was to hide it, but now I am open about it, for example on Facebook. I say "self diagnosed Aspergers" in my profile and a few words on what that means for me. I think it scares most people off, but draws the remaining few closer - for example I have a lot or perhaps most of my family who are aspies or have strong traits. It has been a thin ray of light for them. How can they work out they have it, if I don't reveal it about myself? Most people have a mixed-up idea about what Aspergers is and are convinced they couldn't have it - after all, haven't they always worked *so hard* to fit in???

So I am now direct about it, and I am going for a diagnosis, if I can even get one, for my family's sake. I worked out that they are my Tribe, no matter how poorly I have got on with them :(


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