Anyone declared disabled b/c they have AS?

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Byron
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28 Mar 2011, 2:49 am

I am declared disabled b/c I have AS. That means that I do not have a job for of that reason. My income is SSI (Supplemental Security Income). Anyone else have SSI as there main source of income & because they have AS?



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28 Mar 2011, 2:56 am

I am in the process of applying.



dunbots
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28 Mar 2011, 2:56 am

I wish I had SSI, I'd surely need it soon. :?



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28 Mar 2011, 3:25 am

Dunbots, are you in Washington state?

If so, contact DSHS about Disability Lifeline. They'll also help you apply for SSI.



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28 Mar 2011, 3:28 am

Nope, I'd rather deny the fact I have AS because of the fact it messed up my school life when well and truly, I could have done better for myself.


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dunbots
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28 Mar 2011, 3:34 am

Verdandi wrote:
Dunbots, are you in Washington state?

If so, contact DSHS about Disability Lifeline. They'll also help you apply for SSI.

I am. We talked briefly last month. ;)

Well I'm only in 11th grade, still living with my parents, but I'm very certain I won't fare well in the real world on my own.



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28 Mar 2011, 3:50 am

dunbots wrote:
Verdandi wrote:
Dunbots, are you in Washington state?

If so, contact DSHS about Disability Lifeline. They'll also help you apply for SSI.

I am. We talked briefly last month. ;)

Well I'm only in 11th grade, still living with my parents, but I'm very certain I won't fare well in the real world on my own.


Oh, damn, I gave you the same advice twice? I hate when I do that.



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28 Mar 2011, 5:18 am

I'm applying for it(well, my Mom is kind of doing it for me. She handles all of that stuff for me). I got turned down once, but I'm not sure why, because all of my doctors agreed that I'm disabled. Weird. I used to have a part time job before I got fired, and I think I could probably hold another part time job in a less stressful environment, but unless I got super lucky then I don't think I could make nearly enough to live on. Most jobs available for people without degrees are the kind that are really stressful for people with ASD. Of course I'm not even having any luck finding a part time job. I think the vast majority of people with ASD could work if they were able to get a job where they could use their strengths and interests, and stresses were minimal.. The problem is that those jobs aren't usually available to us!



JonSM99
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28 Mar 2011, 6:06 am

I'm also in WA. Can I ask about how much SSI pays a month? Can you afford to live alone? Have you had to make other financial sacrifices to do it? If you get disability/SSI, are you allowed to return to the workforce later in the future, or does it have to be permanent?

Thanks!



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28 Mar 2011, 6:22 am

I am, and I don't really have a problem with it. Everybody's got problems, right?


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28 Mar 2011, 11:54 am

JonSM99 wrote:
I'm also in WA. Can I ask about how much SSI pays a month? Can you afford to live alone? Have you had to make other financial sacrifices to do it? If you get disability/SSI, are you allowed to return to the workforce later in the future, or does it have to be permanent?

Thanks!


SSI pays up to 674 a month plus if you state has a supplement that too. How much you get depends on how much rent you pay for your housing. For example I got only 449 when I wasn't paying rent, and when I started to pay rent it went up to 674.

I can BARELY afford to live on my own, and even then it's not very pleasant. I pay out 450 in rent... and with the rest of my bills, I am left with 70 dollars to work with. But I do get food stamps.

To get SSI, you can't have over 2,000 dollars at all.

And you can even have a small job while getting SSI. After the first 85 dollars you make a month, half of your paycheck gets taken out of your SSI. If half of your paycheck is more than SSI, then you loose SSI.

SSI is also great because you get automatic Medicaid with it.


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28 Mar 2011, 1:20 pm

Yes, SSI is about 25% BELOW the federal poverty level, and you are not allowed to have resources above that. You can't save up, even if you could somehow get enough money for it. If you have to apply, do it; but don't think of it as a good life, because it's not. It's just barely enough to keep you inside and fed (possibly with utilities, possibly without them).

I applied and was accepted my first try, no lawyers involved. My diagnosis at the time was Asperger's Disorder, along with PTSD and depression. Currently, which diagnosis I have depends on the doctor and has been at various times either AS, autistic disorder, or PDD-NOS.

However, being on disability doesn't mean you have to give up on working. There are a few programs in place that allow you to try to get skills which let you get a job, such as the various voc rehab offices and the ticket to work program. That's why I can go to school--though they are keeping very high standards of achievement on me. Once I graduate I may be able to work, either part time or full time, and either way I will be able to support myself and no longer need SSI.

Some people with AS, of course, can't work even with useful skills; but I think they are in the minority. Most of us can find a way to work; the biggest obstacles are stereotypes (created by our culture and by us against ourselves) that assume autistic people cannot work.


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28 Mar 2011, 1:39 pm

Callista wrote:
Yes, SSI is about 25% BELOW the federal poverty level, and you are not allowed to have resources above that. You can't save up, even if you could somehow get enough money for it. If you have to apply, do it; but don't think of it as a good life, because it's not. It's just barely enough to keep you inside and fed (possibly with utilities, possibly without them).

I applied and was accepted my first try, no lawyers involved. My diagnosis at the time was Asperger's Disorder, along with PTSD and depression. Currently, which diagnosis I have depends on the doctor and has been at various times either AS, autistic disorder, or PDD-NOS.

However, being on disability doesn't mean you have to give up on working. There are a few programs in place that allow you to try to get skills which let you get a job, such as the various voc rehab offices and the ticket to work program. That's why I can go to school--though they are keeping very high standards of achievement on me. Once I graduate I may be able to work, either part time or full time, and either way I will be able to support myself and no longer need SSI.

Some people with AS, of course, can't work even with useful skills; but I think they are in the minority. Most of us can find a way to work; the biggest obstacles are stereotypes (created by our culture and by us against ourselves) that assume autistic people cannot work.



I have the unique opportunity to be diagnosed with aspergers and I work for the state of New Jersey in the DDD section...for Division of Developmentally Disabled. Their are many programs out there funded by our state that people sometimes don't know exists or don't have the ability to learn on their own about. I specifically assist individuals who are guardians of disabled people understand how to properly fill out a form and give us the required information so that we can allow either DDD or the Guardian to be re-imbursed. Their are ways where more than 25 % of an individuals income can be maintained, as long as its for legitimate purposes...such as medical issues, rental agreements, food, utilities. DVR offices are great places to start for people who are high functioning...the mistake people make is after the initial interview or months go by, they don't call them back...DVR offices are often very busy and back logged..you HAVE to keep up on your status, even if it means bugging them. Believe me, they are used to it. That is the ONLY way you will be acknowledged. The state can be slow and cumbersome, and you will most likely be forgotten if you don't follow up on phone calls.



JonSM99
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28 Mar 2011, 9:21 pm

Sigh...my rent is $925/mo. and I already get food stamps. A $674 limit doesn't seem like enough to live on. Maybe if it also came with Social Security Disability.



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28 Mar 2011, 10:15 pm

Angnix wrote:
JonSM99 wrote:
I'm also in WA. Can I ask about how much SSI pays a month? Can you afford to live alone? Have you had to make other financial sacrifices to do it? If you get disability/SSI, are you allowed to return to the workforce later in the future, or does it have to be permanent?

Thanks!


SSI pays up to 674 a month plus if you state has a supplement that too. How much you get depends on how much rent you pay for your housing. For example I got only 449 when I wasn't paying rent, and when I started to pay rent it went up to 674.

I can BARELY afford to live on my own, and even then it's not very pleasant. I pay out 450 in rent... and with the rest of my bills, I am left with 70 dollars to work with. But I do get food stamps.

To get SSI, you can't have over 2,000 dollars at all.

And you can even have a small job while getting SSI. After the first 85 dollars you make a month, half of your paycheck gets taken out of your SSI. If half of your paycheck is more than SSI, then you loose SSI.

SSI is also great because you get automatic Medicaid with it.


Everything Angnix says is true. I get SSI. I live in Washington State. Even though Medicaid comes with the SSI, DSHS seems to only want to pay for generic meds, and not brand-name equivalents. Which sucks for someone like me, who has to pay for the longer-lasting ADHD meds out-of-pocket (and the pills are not cheap - DSHS doesn't pay for long-acting stimulant meds primarily because they see ADHD as a "behavioral disorder of childhood").



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28 Mar 2011, 10:42 pm

In the applying process, I hope I get approved an in a reasonable amount of time......otherwise I don't know what I'll do.