Girls with Autism or ADHD Not Taken Seriously, Study Says

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Verdandi
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05 Apr 2011, 4:21 pm

http://www.sciencedaily.com/releases/20 ... 101332.htm

I really would love to know what the rate for this is. I kind of suspect it's a lot higher than many would expect.



Last edited by Verdandi on 05 Apr 2011, 5:09 pm, edited 1 time in total.

Laz
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05 Apr 2011, 4:26 pm

An absolutley massive marginalised majority I would bet my money on.


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05 Apr 2011, 4:32 pm

Which is why i think the idea that it mostly affects boys might be exagerated.


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05 Apr 2011, 5:42 pm

Oh, but of course! If a girl has ADHD or autism, she is just stupid in the majority of the cases. After all, boys are 99% of those cases.



raisedbyignorance
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05 Apr 2011, 6:50 pm

Verdandi wrote:
http://www.sciencedaily.com/releases/2010/10/101004101332.htm

I really would love to know what the rate for this is. I kind of suspect it's a lot higher than many would expect.


The story of my life...in news article form. :(



Surfman
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05 Apr 2011, 6:57 pm

Even in NZ where women have a better position than many other first world countries, there were way more men at aspie meetings

so I assume girls get over looked because their behaviour is less aggressive, hence does not attract attention by authorities.



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05 Apr 2011, 7:01 pm

Posting for truth.



Verdandi
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05 Apr 2011, 7:10 pm

Surfman wrote:
Even in NZ where women have a better position than many other first world countries, there were way more men at aspie meetings

so I assume girls get over looked because their behaviour is less aggressive, hence does not attract attention by authorities.


This is from ADHD in Adults by Russell Barkley, Kevin Murphy, and Mariellen Fisher. This only applies to ADHD, of course, but I would be unsurprised if it also applied to women on the autistic spectrum:

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We wish to return here to one of the major aims of the UMASS Study—an examination of possible sex differences between men and women with ADHD. This addresses the issue of whether ADHD in females is different, perhaps qualitatively so, than it is in men. Claims have been made concerning women with ADHD, that the disorder may be uniquely different in them than it is in men with the disorder in ways other than what would be expected from general sex differences in the population (Nadeau & Quinn, 2002; Ratey, Miller, & Nadeau, 1995; Solden, 1995). Yet such assertions are based either on studies of clinic- referred children with ADHD or entirely on clinical experience supported only by anecdotes. This is because there are very few scientific studies of clinic-referred women with ADHD on which to base any such conclusions. We tried to address this lack of information on women with ADHD throughout this text by reporting on the sex differences among our samples whenever they were statistically significant across the myriad domains of symptoms and adaptive functioning studied here. Sex differences were not evident on most measures. The majority of our results indeed undercut any such claims by advocates of anything special to or specific about ADHD as it occurs in women.

For instance, it has been said that “the diagnosis of ADD in women escapes even the best clinicians, because these women often lack the typical symptoms of hyperactivity and impulsivity in childhood or adulthood” (Ratey et al., 1995, p. 260). Our results, in fact, show this claim to be false. We found no differences in the number of hyperactive or impulsive symptoms between men and women with ADHD in this study.

In examining self-reported symptoms (Chapter 3), we found that males self-reported more current symptoms in the interview than females, regardless of group, but men and women did not differ in their recall of childhood ADHD. The same pattern was evident on the rating scales of these symptoms. But we also found that the group × sex interaction was significant on some measures. This would imply that some sex differences might be evident within particular groups that were not evident in the other groups. We found that men and women with ADHD did not differ in their self-ratings of either their current or childhood symptoms. The sex difference of note was found in our Clinical control group, where women reported higher symptom ratings than men. There also were no significant sex differences found in the ratings of ADHD symptoms provided by others. And while a significant group × sex interaction did appear in the employer ratings, it was once again limited to the Clinical control group, where employers rated men as having more ADHD symptoms than women in the workplace. In short, women with ADHD do not differ from men in the severity of their symptoms, the age of onset of those symptoms, the number of domains in which they are impaired (Chapter 5), the total severity of impairment they experience, or the age of onset of specific domains of impairment in any way that can be specifically attributed to their having ADHD. Nor do they differ in the severity of the new EF symptom list we developed as the best list for the diagnosis of ADHD in adults (Chapter 7). In general, men report more total symptoms of ADHD by interview across the groups and rate themselves as having higher impairment scores on rating scales than do females, but such findings are not specific to the ADHD group. All of this suggests that men and women with ADHD have the same disorder and have no qualitative differences in their disorder as a result of their sex. What quantitative differences exist are those found between men and women generally.

It has also been claimed that women with ADHD may be more prone to exhibit symptoms of depression and anxiety and may be less aggressive than males with ADHD (Ratey et al., 1995). In a study by Rucklidge and Kaplan (1997), women with ADHD were in fact found to have more depression and anxiety, mores stress, a more external locus of control, and lower self-esteem
compared to women in a control group. But men were not evaluated in this study, so it is highly possible that these findings are not specific to women with ADHD but merely characterize ADHD across both genders. A later study by these authors found this to be so. Again, our results point to just such a conclusion. On the dimensional ratings of depression from the SCL-90-R, no effects of sex were significant. And while women reported higher rates of anxiety, this was typical of women in all three of our groups and was not specific to women with ADHD versus men with the disorder. We did find that women with ADHD actually reported higher rates of attention problems on the Young Adult Behavior Self-Report Form (Chapter 6), but they were also rated by others as being more aggressive than males with ADHD. These are among the few differences that were specific to the ADHD group and not evident in our control groups. They run counter to the earlier assertions by clinicians.


Sorry about the long quote. I would be completely unsurprised to learn that ASDs present similarly regardless of gender, and that the diagnosis gap is not for behavioral reasons, but for the reasons described in the linked article - that girls were not taken as seriously as boys.



draelynn
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05 Apr 2011, 7:37 pm

Not surprised in my case. Also outlines the literal fight i had getting my daughter DXed. If the school said 'she doesn't seem that bad' one more time I would have smacked somebody. "...but she's so sweet and friendly..."

Lo and behold - they actually get someone in there that knows what they are looking for and her Asperger's was blaringly obvious.



phil777
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05 Apr 2011, 8:33 pm

Hmmm, how ironic that my last text for Justice and Culture (class) was regarding human rights, and mostly women's rights (in the context of the UN).



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06 Apr 2011, 12:56 am

An article in science daily.............maybe a step in the right direction?



natg989
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03 May 2011, 4:27 am

This makes me so angry, people base medical decisions on society's stereotypes, as if that has anything to do with science. When I was 15 I thought I had AD/HD when I realized I wasn't stupid and there were things that I could absolutely not pay attention to even if I tried. I had not payed attention to so many things in my life...my self-esteem was completely shattered. So I went to the psychologist and got evaluations from my teachers and they of course they said "no way, she's a great student. never complains". Naturally, I never spoke up because I was afraid of being called on and proven an idiot. I was naturally studious and curious, got good grades because I studied my butt off alone, but I was nowhere near the top of the class where I should have been. I was too intimidated to hang out with the smart kids even though they were the people that attracted me. I didn't think myself worthy of them and my social life suffered. I will never forget waiting for the psych to come in and give me my results. He came in, gave me a pitiful stare, said it was depression because my grades were too high (A's and B's) and I just needed to "accept myself for who I am." With anti-depressants of course. I thought "f**k that", walked out and didn't see another mental disability doctor until...

now. 5 years later I'm on Adderall and it has changed my life. College is ridiculously easy in comparison to what it was, I'm transferring to a better school in the fall, changing my major to computer science, reading tons of books, have made better relations, learning more than I have in my entire life, confidence has skyrocketed, I can hold down a job, I can pay attention to movies, I can listen to conversations, I can argue ferociously. I have become the person I should have been. f*****g finally.



wavefreak58
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03 May 2011, 6:25 am

Surfman wrote:
so I assume girls get over looked because their behaviour is less aggressive, hence does not attract attention by authorities.


This is plausible. I suspect one reason I was never diagnosed was that I was not a behavioral problem in school (I'm male). I was very passive and withdrawn. Maybe if I threw things, hit people and was a general pain in the ass it would have been different.


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03 May 2011, 6:37 am

My presumed ADD-Inattentive was never diagnosed because at the time ADHD was thought only to affect boys (actually AD(H)D wasn't even on the radar when I was young).I was the dreamy kid staring out the window and never caused trouble. They were very concerned about my lack of social ability, but assumed it was psychological and put me in therapy as early as 3rd grade.



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03 May 2011, 6:37 am

I think that quite often girls are misdiagnosed as having personality disorders such as BPD when actually it is AD/HD or Aspergers. I was misdiagnosed with BPD but I am sure that I have AD/HD as it is extremely common with Tourette syndrome. When I suggest it could be AD/HD to people like doctors or psychologists, they actually laugh at me. When I showed my Mum a list of symptoms, she laughed because they fit me and my brother so perfectly! Who do I trust more, my Mum who has spent the last 22 years with me, or a psychologist who has spent less than half a year with me? I'm hoping to get a referral to an official Tourettes clinic at some point, I'm hoping that I'll get the answer I've been looking for all these years!


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