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SuperTrouper
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23 May 2011, 5:30 pm

...conversion disorder (all in my head). Unrelated to ASD.

Oh yeah, and she did not list autism in my list of diagnoses (but included type I diabetes, diabetic neuropathy, communication problem, and conversion disorder), meaning she doesn't even think I HAVE ASD. Not a month ago I received a label of "moderate autism" from specialists.

Can I say it, or do you want to say it? K I'll say it first: Idiots.



Verdandi
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23 May 2011, 5:36 pm

SuperTrouper wrote:
...conversion disorder (all in my head). Unrelated to ASD.

Oh yeah, and she did not list autism in my list of diagnoses (but included type I diabetes, diabetic neuropathy, communication problem, and conversion disorder), meaning she doesn't even think I HAVE ASD. Not a month ago I received a label of "moderate autism" from specialists.

Can I say it, or do you want to say it? K I'll say it first: Idiots.


Conversion Disorder:

Quote:
The symptom or deficit is not limited to pain or sexual dysfunction, does not occur exclusively during the course of somatization disorder, and is not better accounted for by another mental disorder.


Did she do anything but tell you that it was conversion disorder? Anything at all?



SuperTrouper
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23 May 2011, 5:42 pm

Wants an MRI "to put your mind at ease" and wants me to get speech therapy.



Verdandi
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23 May 2011, 6:29 pm

SuperTrouper wrote:
Wants an MRI "to put your mind at ease" and wants me to get speech therapy.


Hmm.

Oh, I studied conversion disorder when I was trying to decide whether my shutdowns (including speech shutdowns) were that or actual shutdowns, and one of the things it said was how conversion disorder-caused loss of speech work. Apparently, people who experience it can't talk, but they can mouth the words or quietly whisper them.

I am not a doctor and I can't even find that reference again (it was on Google Books somewhere). It's capable of causing a lot of issues, but they tend to fit into certain patterns.



SuperTrouper
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23 May 2011, 6:39 pm

I CAN mouth the words! And I can sing! And sign, and type. I just can't speak.

I don't care if it IS conversion disorder. My best friend (who has ASD) has a conversion d/o and lost the ability to walk. Her legs swell and get lumps on them. I've seen them. It's VERY real... but it's a response to stress.

I don't like that she said I don't have ASD. That, in turn, makes me doubt her dx of conversion disorder.



Verdandi
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23 May 2011, 6:58 pm

SuperTrouper wrote:
I CAN mouth the words! And I can sing! And sign, and type. I just can't speak.

I don't care if it IS conversion disorder. My best friend (who has ASD) has a conversion d/o and lost the ability to walk. Her legs swell and get lumps on them. I've seen them. It's VERY real... but it's a response to stress.

I don't like that she said I don't have ASD. That, in turn, makes me doubt her dx of conversion disorder.


I'm sorry if I came across badly. I was trying to be informative but I know that can be insensitive.

I don't blame you for doubting. And yeah, it's a stress/anxiety thing.

Given what it often takes to diagnose autism, she really doesn't have any business suggesting you don't have it. Sympathies.



SuperTrouper
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23 May 2011, 7:27 pm

Oh, no, your were fine. Sorry if I made it seem like you weren't. Oy vey, double of social skills x 2 really does double the issues at times, doesn't it? Lol.



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23 May 2011, 7:29 pm

SuperTrouper wrote:
Oh, no, your were fine. Sorry if I made it seem like you weren't. Oy vey, double of social skills x 2 really does double the issues at times, doesn't it? Lol.


Haha, yes.

I wasn't sure if you were or not, so I thought better safe, etc. Usually works with most people.



CockneyRebel
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23 May 2011, 10:57 pm

Those people really need to get their heads checked out.


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Callista
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24 May 2011, 2:19 am

Oh, yeah, conversion disorder is definitely real. I mean, the loss of function is real; the symptoms are real. It's not pretending; it's a real impairment. They just originate with psychological factors.

That the neuropsych didn't take into account that you are autistic does make me wonder, though. At the very, very least, autism would give you a vulnerability to losing speech under stress, which would predispose you to things like selective mutism and this kind of conversion disorder. Sure, you can diagnose those things in someone who's autistic; but you need to take the autism into account and ask yourself, "Okay, so this person is autistic--how does that affect the development and expression of this other disorder in their life?" And it doesn't look like they did this.

Let's hope that speech therapist is sensible enough not to worry about diagnostic labels and just help you figure out a way around the speech loss. In my experience, the more practical a person's work is, the more common sense they tend to have--if this ST is like that, then hopefully you'll actually get some useful help instead of just more labels.


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cyberdad
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24 May 2011, 5:40 am

Callista wrote:
That the neuropsych didn't take into account that you are autistic does make me wonder, though. At the very, very least, autism would give you a vulnerability to losing speech under stress, which would predispose you to things like selective mutism and this kind of conversion disorder. Sure, you can diagnose those things in someone who's autistic; but you need to take the autism into account and ask yourself, "Okay, so this person is autistic--how does that affect the development and expression of this other disorder in their life?" And it doesn't look like they did this..


A work colleague of my wife has a primary school aged daughter, diagnosed with with AS, who has stopped speaking to everyone except her mother. She is able to give scripted speeches at school and sing songs in public but is unable to actually talk for the purpose of communication. She used to talk before age of 7?



SuperTrouper
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24 May 2011, 7:35 am

That sounds like selective mutism.

Callista, that's what I'm hoping for, that the ST will be... sane.



cyberdad
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24 May 2011, 7:45 am

SuperTrouper wrote:
That sounds like selective mutism..


I've read about selective mutism but the diagnosis is considered outside the ASD umbrella?

It's curious but **Some children with selective mutism may have sensory integration dysfunction (trouble processing some sensory information). This would cause anxiety, which may cause the child to "shut down" and not be able to speak**.

Selective mutism children often have poor eye contact as well.

This sounds like a form of autism to me.



kate123A
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24 May 2011, 7:57 am

I'm going to school to be a ST and honestly just go to the ST and see what they can do to help you. Most ST are just going to treat and not label.



Callista
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24 May 2011, 9:31 am

cyberdad wrote:
SuperTrouper wrote:
That sounds like selective mutism..


I've read about selective mutism but the diagnosis is considered outside the ASD umbrella?

It's curious but **Some children with selective mutism may have sensory integration dysfunction (trouble processing some sensory information). This would cause anxiety, which may cause the child to "shut down" and not be able to speak**.

Selective mutism children often have poor eye contact as well.

This sounds like a form of autism to me.
It's a speech/language disorder, much more specific than autism--autism has a bigger constellation of symptoms, and selective mutism is usually episodic rather than life-long, as autism is. I wouldn't call it a kind of autism, but autistics being more prone to it, or there being some relationship between the two disorders, wouldn't surprise me.


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24 May 2011, 12:52 pm

Here's an article on mutism/SM/ASD that I found recently with comments from people on why they can't or don't talk. I've wondered if I also almost had selective mutism, I can usually respond with short sentences or, a word or two though, but I could also feel paralyzed at times in a way. I worry if my routine/environment changes it would get worse again but I talk a lot more these last few years. It doesn't help that it can sometimes be hard to get out sentences properly sometimes even when relaxed.
http://insideperspectives.wordpress.com ... on/mutism/