Would really like a diagnosis, but scared to make a fuss
I am currently diagnosed with borderline personality disorder, major depressive episode and anxiety. I have been involved with local mental health services since having a major breakdown with severe depression and anxiety and some psychotic-type symptoms just over two years ago. I am convinced that the borderline personality disorder diagnosis is wrong; my GP disagrees with it, I asked for a second opinion at the time and the second psychiatrist disagreed with it and a mental health social worker who knows me well says I am highly atypical of that diagnosis (partly because I am very reserved), but it remains my official diagnosis for some reason. I have suffered with recurrent bouts of depression (of varying severity) since my early teens and do tend to be an anxious person so I agree with those parts of my diagnosis, but I also feel that there is something more to it. After my breakdown I did spend a lot of time researching all the various mental health conditions and, while I could find elements of several that applied, there was nothing that truly fit. I have also done research into ADD in the past as a friend suffers from it and, again, there were some elements of commonality, but not a true fit. Then, in the middle of August this year, I began doing some research into Aspergers for reasons not connected to myself and began to find an emerging pattern of congruence with my own life.
The more I have researched into this, the more it seems to connect together my experiences and give voice to my internal world. I have spent a lot of time on this website in the last couple of months and find myself continually relating to the posts of the other members; obviously I do not do everything I read about, but I seem to have more in common than mere coincidence would suggest. I now really want to pursue an official diagnosis, to know for definite one way or another. But I am scared. I know that once people have a psychiatric label for you they are likely to dismiss anything you say, and any symptoms you describe, as just you acting out and being difficult. I am worried that I will not be taken seriously and will not be referred for diagnostic testing even if I ask. I am also worried that the waters are so murky as an adult because of my psychiatric problems, some abuse issues as a child and the fact that I do not have a parent to accompany me that diagnosis will be impossible anyway. I am worried that by raising the possibility of Aspergers I will simply be labelled as difficult and even more crazy and will just be creating even more problems for myself.
I am also uncertain as to how strongly, as an adult, I meet the diagnostic criteria. Firstly, I regard myself as very social. Now, that is not to say I always relate well to others. I was bullied all the way through school and was a complete loner who spent all my spare time in the IT suite. But as an adult I have learnt to be much more outgoing and regularly talk to strangers. I still have my limits and very much like to choose how much time I spend with people and find people who want to be in touch all the time intrusive. I don't get very attached to people or miss them when they are not around or move away. There are still social occasions where I feel very awkward and out of place. I definitely have some empathy issues (although I'm not sure I fully understand how empathy is defined to know exactly what these are, but my husband says I have them). But I do have friends and I don't generally upset people on a regular basis. I do also seem to have some issues with reading body language. I do very badly at this on emotional intelligence tests and have also performed badly at reading facial expressions on some tests in the past, although I am not aware of having this problem in day-to-day life.
Secondly, I am not sure whether I have obsessions. I do generally have something that I do for on average a few hours a day. But this has changed over time. Some of these interests have been logic problems, counted cross stitch, internet research & forums (on various topics, currently Aspergers), Civilization, Tetris, Minesweeper, programming my Dad's Commodore 64 (when I was at primary school) and jigsaws. But, while I do sometimes do them more than I should, and don't perhaps get all the housework done or stay up a little later than I should, I don't do them to the exclusion of all else or have all night sessions so I am not sure whether they qualify as special interests or obsessions or not.
I definitely do have some issues with communication. Although highly articulate generally, I have an almost total block when it comes to expressing my emotions or anything that I have a strong personal emotional involvement with. I range from using quite childlike, simplistic language, to stuttering to complete inability to speak or make any kind of eye contact or interact at all. It is incredibly frustrating. I also have a definite tendency to talk at people, I interrupt, go on and on, misread a lack of interest as them not hearing and repeat myself. I also have only one volume setting, which in my case happens to be loud. I usually get away with it in normal conversation, but seem to have a complete inability to modify my volume if I need to be quieter for any reason. All of these problems are issues that my husband has observed and complains about frequently, although thankfully he still loves me anyway.
I could go into a long list of other things that I have picked up on from my research so far, and from reading this forum, but I am conscious that this is already a very long post. If you have read this far, thank you for your time and attention. I would be interested in any feedback you may have.
TwistedReflection
Pileated woodpecker
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Joined: 21 Sep 2011
Age: 37
Gender: Male
Posts: 180
Location: At the End of Everything
Either seek a diagnosis that states without doubt that you have AS, or continue to ponder who you really are for the rest of your life, possibly driving yourself crazy in doing so.
You are not "making a fuss" for questioning the opinions of quacks - er, sorry, "doctors" - and it is natural to do so. AS can sometimes be the root of many diverse co-morbids that coincide or stem from it, so getting a diagnosis is imperative to that end in order to receive the correct treatment.
Don't be afraid to ask questions of these "professionals", and look elsewhere if the answers they provide do not accord with what you believe to be true. It really is that simple.
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