Isabelle Rapin who advanced the concept of the Spectrum dead

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ASPartOfMe
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10 Jun 2017, 2:02 am

Isabelle Rapin, Who Advanced Concept of an Autism Spectrum, Dies at 89

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Isabelle Rapin, a Swiss-born child neurologist who helped establish autism’s biological underpinnings and advanced the idea that autism was part of a broad spectrum of disorders, died on May 24 in Rhinebeck, N.Y. She was 89.

The cause was pneumonia, said her daughter Anne Louise Oaklander, who is also a neurologist.

“Calling her one of the founding mothers of autism is very appropriate,” said Dr. Thomas Frazier II, a clinical psychologist and chief science officer of Autism Speaks

In his autobiography, “On the Move: A Life” (2015), Dr. Sacks wrote: “Isabelle would never permit me, any more than she permitted herself, any loose, exaggerated, uncorroborated statements. ‘Give me the evidence,’ she always says.”

In a short biography written for the Journal of Child Neurology in 2001, Dr. Rapin recalled a critical moment in her work on autism. “After evaluating hundreds of autistic children,” she wrote, “I became convinced that the report by one-third of parents of autistic preschoolers, of a very early language and behavioral regression, is real and deserving of biologic investigation.”

Along the way, she helped debunk the myth that emotionally cold mothers were to blame for their children’s autism, and advocated early educational intervention for autistic children, with a focus on their abilities, not their disabilities. She also popularized the use of the term “autism spectrum disorder,” which refers to a wide range of symptoms and their severity.

“She would never let us say that autism is a single disorder,” Dr. Mark Mehler, chairman of the department of neurology at Einstein, said in an interview. “She always said there were a thousand different causes.”


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MirrorWars
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10 Jun 2017, 4:09 am

The lack of punctuation in the title confused me.

I was wondering what the "Spectrum Dead" was.



whatamievendoing
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10 Jun 2017, 5:51 am

I didn't even know such a crucial figure was still alive. Either way, may she rest in peace.


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10 Jun 2017, 1:59 pm

R.I.P. Isabelle Rapin

A very important person has passed who has brought understanding of a very important concept.



CockneyRebel
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10 Jun 2017, 3:42 pm

RIP for a person who did a lot for us.


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ASPartOfMe
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10 Jun 2017, 7:11 pm

MirrorWars wrote:
The lack of punctuation in the title confused me.

I was wondering what the "Spectrum Dead" was.


Wrong Planet software only allows a limited number of characters in the title, which is fewer characters than web pages and newspaper headline writers are allowed. I am always trying to make the headline relevant to what is below but often fail because I end up shortening words, leaving out punctuation and so forth. This question has come up a couple of times and the strong consensus at the time was the limit is fine and if we can not make the headline relevant that has all to do with our lack of ability, not the software.


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“My autism is not a superpower. It also isn’t some kind of god-forsaken, endless fountain of suffering inflicted on my family. It’s just part of who I am as a person”. - Sara Luterman


danieldoesnotexist
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11 Jun 2017, 4:18 am

R.I.P


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Your neurodiverse (Aspie) score: 189 of 200
Your neurotypical (non-autistic) score: 19 of 200

wtf


FrankStein
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12 Jun 2017, 2:07 am

Today's obit in the New York Times:
https://www.nytimes.com/2017/06/09/scie ... click&_r=0