weird chills
So I am hoping someone can provide some input on this...I think my perspective is too limited to really be able to help.
For basically his whole life Boyfriend has been getting these "chills" as he describes them. There are periods where it occurs more often, and he says it is correlated with high stress but not exclusively. Described as sort of tingly and often occurring around the neck and back first. I've been trying to figure out what it could be, and so far I have a few ideas. He's asked all kinds of doctors about it and their main response is to call it anxiety. I worry that it could be a spinal issue, but he says it doesn't change based on exercise level or whether he's on his feet.
My issue is this, though. I hear what he has to say and immediately want to attribute it to him being on the spectrum (he's as people-pleasing as they come, but some other characteristics make me wonder) so my judgement is clouded. The other problem is that we have such different ways of describing things! We might be talking about the same thing (I'll explain why I think that) but I would never know. Does anyone else experience anything like this? Any statements/questions would be incredibly helpful, as I think right now we don't have the right words to discuss and solve this accurately.
The reason I think we might be talking about the same thing? I saw this post by Spinnekop in another thread that got me thinking, "I get this horrible feeling in my upper body - almost like tingling, like you have to stretch constantly, just worse. I can't keep my arms still, swing them about and shrug them to try and alleviate the feeling."
I feel this a lot too, and it sounds at least similar to what he's been trying to describe. It also feels similar to the way that I typically describe some of my own sensory issues. For me it's like if I sit still, or something causes me to notice it, I can feel the blood flowing through my body and it freaks me out. BF looked at me like I was nuts when I woke up in the middle of the night and started flailing my arms around. I looked like I was trying to pop-lock with feathers down my shirt. For him, he gets really still and quiet and has mentioned a bit of tunnel-vision.
I know this is long and rambly but I think we would both really benefit from discourse on it! Thanks!
From what you describe, I think your problem is sensory related stims (wanting to block out a feeling with another feeling, kind of like feeling the blood at the tips of your fingers and pressing them on a hard surface, except yours are whole body experiences) and his might be stress related shutdowns.
You gave a bit of a hazy description but that's what I gathered...
He needs to spend more quiet time relaxing and you definitely need to wear soft cotton and cut off all your clothes' labels
I think you're right about my stims, although I still haven't figured out what causes them. At least I know mine are sensory issues...boyfriend could be anything.
That's why I was hoping someone here had experienced it, or knew someone who had. He has an extremely hard time describing what it feels like, I'm sorry it's all so vague.