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guywithAS
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24 Jun 2011, 9:56 pm

hey guys

have you seen this video? its a guy on the lower end of the spectrum, with his parents.

[youtube]http://www.youtube.com/watch?v=Iu7C5clA4q0&feature=player_embedded[/youtube]

what is your feedback on this video and how do you think it should be handled?



gailryder17
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24 Jun 2011, 10:31 pm

Is he hypo-sensitive? (Not HYPERsensitive)


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Raymond_Fawkes
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24 Jun 2011, 10:41 pm

I've seen it. They made quite a few videos too. I think he's on the low end spectrum, but maybe something else too. My one Autistic friend gets seizures because he has a small tumor in his brain, so I wonder if they gave this guy a MRI on his head and figure out if it's exactly normal or what.. clearly it doesn't look like it.



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24 Jun 2011, 10:57 pm

sound issue? headache? bad dream with perseverative thoughts about it?

I'm kind of sad that the parents are only looking for medical reasons - gross bodily dysfunction, medications, etc... they seem like loving, attentive - GREAT parents. But I'm a bit disturbed that they aren't considering that their non verbal autistic son, who cannot not verbalize his needs, may be trying to tell them something through his behavior. They seem to treat him as though he has no cognitive thought at all.

I would say ...ask him. When he's not doped up on antiseizure meds (which can cause massive headaches... ) and watch his reactions. Do any particular questions seem to increase his behavior? Or reduce it? Does a simply dose of ibuprofen seem to help? Start simple and then work up to the more complicated...



dyingofpoetry
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25 Jun 2011, 6:26 am

This video pissed me off. I'm sure this mother would be happy to do an ad for Autism Speaks that reveals just how miserable her life is because she's burdened by this defective creature that she cannot possible ever understand... so she'll just keep him doped, exploit him on Youtube, and await the sympathetic shoulders to cry on.


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25 Jun 2011, 6:45 am

dyingofpoetry wrote:
This video pissed me off. I'm sure this mother would be happy to do an ad for Autism Speaks that reveals just how miserable her life is because she's burdened by this defective creature that she cannot possible ever understand... so she'll just keep him doped, exploit him on Youtube, and await the sympathetic shoulders to cry on.


Oh, she hates autism speaks, actually. No one's helping her with her son, so they're all bad or something. Everyone. She also likes to undiagnose autistic people en masse and by name.

I hope her son gets the care he needs. I don't care for his parents much, though.



CosmicRuss
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25 Jun 2011, 6:57 am

Give this guy a break, stop talking, redecorate those awful walls, declutter the house, build him a soft room, take him someplace to swim with dolphins, move home, live in a tent in a field somewhere for a while.

First of all delete these videos and give your son some dignity !



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25 Jun 2011, 8:59 am

Right, honest to god, I am practically the complete opposite to that, even though I have Asperger's Syndrome.


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25 Jun 2011, 10:32 am

There are several things that don't make sense in this video, though granted I have not seen any others by this person. First, I am struck by how she is dressed. A bra is not appropriate attire to do a video about your very ill child. If she wants people to take her more seriously, she needs to dress like it. I'd never appear in a video with my child in that manner. It comes across as she's wanting attention, whether or not she is. Second, (and I could be wrong here, too) but I have a severely autistic child that requires 24 hr attention and my house is never that clean. I don't have time to keep up with him and clean. It's just not humanly possible, and my son is not self injurious (usually) The only way I could is if i put my housework before his needs. And three, he is on waaaayyyyy too much medication. Granted, finding the right seizure med is sometimes very difficult and they HAVE to give him something for them. Seizures could be fatal, otherwise, but the other meds aren't as necessary. If it were me in that mother's position, I'd be on the phone nonstop until I found a doctor willing to help my son. I'd call anyone and everyone that I thought could possibly help. I'd even go as far as taking him to the doctor when he would go through these episodes waiting in the waiting room making a nuisance out of ourselves until the doctor agreed to help him. You have to sometimes get aggressive and pushy when it comes to your kids. I feel so sad for the poor guy in the video, though. I hope something gets figured out for him soon.



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25 Jun 2011, 11:48 am

This is why I don't want children. I'm afraid they might turn out like this. No offense - I just don't want a child like this. I know some Aspies would prefer this, but I don't. I wouldn't even want to take them out in public when they grow up. People just wouldn't understand, and I think both me and the child would be ridiculed. I heard of this sort of thing before - a mum and her disabled daughter were so awfully treated by neighbours that they both committed suicide.


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25 Jun 2011, 2:10 pm

I know this woman has made mistakes (especially regarding the undiagnosing of less severe autistic people) but, and I know this is difficult as it is one of our issues with our own autism, we need to try to put ourselves in her shoes. Can you imagine spending every single day of your life with this man? Okay granted, he is her son and love is and should be unconditional, however there is only so much any human being can take before they snap.

I believe she videos her son's behaviour to try and get help. It sounds like people don't really help her much other than say, 'heres some nice yummy drugs... off you go now and deal with it'. I am personally against medication for anything behavioural (not including the seizures) purely because it doesn't deal with the cause of the behaviour, it just numbs the person into a zombie. I myself have been on some of the meds this man has been on and they made me feel incredibally ill. The difference being I can tell my doctor that the meds are making me feel ill. This man can't.

I would guess that the mum is right in that his behaviour is trying to indicate some sort of discomfort. This might not be as cut and dry as it being a physical pain though, it might be sensory or maybe he's very attentive to his environment and something has been changed. Very few parents who are not themselves on the spectrum may not think to consider this, but for some autistic people, just a chair being moved to a different angle can cause intense anxiety.

I wish she would not brush high functioning autistics off as she does in her other videos though, high functionign does not equal easy to look after. If she swapped and spent a week with me when I was younger instead, she'd be begging the doctors to have me sectioned! I think she could learn more about her own son from talking to autistic people themselves, whatever part of the spectrum because although we cannot give the answers, we can offer suggestions, plus we probably know a lot more about what it is like being 'inside' autism than doctors do.

Well that's my extremely long post over and done with :)


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claudia
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25 Jun 2011, 3:16 pm

serenity wrote:
There are several things that don't make sense in this video, though granted I have not seen any others by this person. First, I am struck by how she is dressed. A bra is not appropriate attire to do a video about your very ill child. If she wants people to take her more seriously, she needs to dress like it. I'd never appear in a video with my child in that manner. It comes across as she's wanting attention, whether or not she is. Second, (and I could be wrong here, too) but I have a severely autistic child that requires 24 hr attention and my house is never that clean. I don't have time to keep up with him and clean. It's just not humanly possible, and my son is not self injurious (usually) The only way I could is if i put my housework before his needs. And three, he is on waaaayyyyy too much medication. Granted, finding the right seizure med is sometimes very difficult and they HAVE to give him something for them. Seizures could be fatal, otherwise, but the other meds aren't as necessary. If it were me in that mother's position, I'd be on the phone nonstop until I found a doctor willing to help my son. I'd call anyone and everyone that I thought could possibly help. I'd even go as far as taking him to the doctor when he would go through these episodes waiting in the waiting room making a nuisance out of ourselves until the doctor agreed to help him. You have to sometimes get aggressive and pushy when it comes to your kids. I feel so sad for the poor guy in the video, though. I hope something gets figured out for him soon.

I agree on the bra think but I also wonder why is the child dressed that way?
And what made him the way he is? LF people also can learn to comunicate, did her mother try to teach him, or did she give up?
I'm not english mother tongue so I can't understand so much of mother's talk. Since I don't know these things, I can't judge her.
All I know is that I never met a child so severely affected. In spite of this I think that he can find some help.



dyingofpoetry
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25 Jun 2011, 3:44 pm

[quote="VerdandiOh, she hates autism speaks, actually.[/quote]


Okay. But I bet they'd like her!


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25 Jun 2011, 4:03 pm

How old is that woman. She dresses pretty cheap for a mother her age.


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25 Jun 2011, 4:05 pm

Not directed at any one person:

Who cares how she dresses? She can dress any way she likes.

She's probably just wearing a bra because they just got up and were trying to calm down their son, and she didn't have time to throw something on over it.

I disagree with her on nearly everything she says outside of the fact her son needs more support, but shaming her because of her clothing choices is BS.



Last edited by Verdandi on 25 Jun 2011, 4:16 pm, edited 1 time in total.

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25 Jun 2011, 4:12 pm

Quote:
She's probably just wearing a bra because they just got up and were trying to calm down their son, and she didn't have time to throw something on over it.


I looked at the video comments on Youtube. Someone else mentioned the bra and she said that she'd gotten up in a hurry because he had started slapping himself again and it was like 90 degrees that day... I'm no good with farenheit (or spelling it for that matter!) but I am assuming that's pretty hot... I suppose it would be pretty difficult to throw much on when your main aim is to help your son. As for the clothes hes wearing, they are specially made to try and lessen the blows when he hits himself. They are designed to be easy to put on.


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