Autism reported to cost families $60,000 annually

Page 1 of 2 [ 20 posts ]  Go to page 1, 2  Next

ASPartOfMe
Veteran
Veteran

User avatar

Joined: 25 Aug 2013
Age: 67
Gender: Male
Posts: 35,841
Location: Long Island, New York

19 Oct 2019, 1:52 am

Here's how much autism can cost American families

Quote:

Along with the emotional toll that disabilities take on families, there is a tremendous financial strain, particularly in autism cases.

Throughout childhood, addressing the disorder costs an average of $60,000 a year -- mostly due to special services and lost wages from parents -- according to advocacy organization Autism Speaks. The costs can go up if the child also has an intellectual disability.

Over the course of a lifetime, the expenses add up to $1.4 million and $2.4 million for just one person, Autism Speaks says.

Last month, President Trump signed a bill into law that could help curb some of those costs by giving government funding to help people with autism and their families over the next five years

The Autism Collaboration, Accountability, Research, Education and Support Act of 2019 (Autism CARES Act) allocated $1.8 billion to autism programs within several government organizations including the National Institutes of Health and the Centers for Disease Control and Prevention, according to a press release from Rep. Chris Smith, R-N.J.

That's just a fraction of the cost of caring for Americans with the disorder, however. The tab reached $268 billion in 2015, according to Autism Speaks, and may climb to $461 billion by 2025.

The majority of those costs are for adult services, ranging from $175 billion to $196 billion every year. Meanwhile, services for children run as much as $66 billion annually.

Typical of these autism is a nightmare stories in that it lacks context. As a spectrum condition the costs per families probably vary widely, but this is not discussed. How does Autism costs compare with costs for other disabilities both viable and invisible, that they do not tell you.

It did surprise me that the majority of costs are for adult services as so many here and elsewhere say they can’t find any.


_________________
Professionally Identified and joined WP August 26, 2013
DSM 5: Autism Spectrum Disorder, DSM IV: Aspergers Moderate Severity

“My autism is not a superpower. It also isn’t some kind of god-forsaken, endless fountain of suffering inflicted on my family. It’s just part of who I am as a person”. - Sara Luterman


steve30
Velociraptor
Velociraptor

User avatar

Joined: 16 Feb 2007
Age: 33
Gender: Male
Posts: 412
Location: Rotherham

19 Oct 2019, 7:44 am

That's surprising. My disability benefits barely come to £6000 per year and my Mum isn't earning much higher than the minimum wage, so probably earns < £20 000. Between us we have money left over.

So I would like to know what actually costs $60 000.

My medical expenses are at about £1000 for this year, and that is only that high because I had to see an orthopaedic consultant and physiotherapist about my dodgy hip - nothing to do with Autism.

I'd assume costs would be more for children because parents would almost certainly have to take time off work to look after the children. Probably more so than non-autistic children.

Of course, the article is for America, where people's medical expenses are ridiculous. Its also not clear whether it applies more to severely autistic people, or high-functioning people.

Its important to highlight the word can in the article title.



Arganger
Veteran
Veteran

User avatar

Joined: 30 Apr 2018
Age: 23
Gender: Female
Posts: 1,707
Location: Colorado

19 Oct 2019, 8:51 am

Whenever these sort of costs get brought up, part of me wonders if they are trying to encourage genocide


_________________
Diagnosed autistic level 2, ODD, anxiety, dyspraxic, essential tremors, depression (Doubted), CAPD, hyper mobility syndrome
Suspected; PTSD (Treated, as my counselor did notice), possible PCOS, PMDD, Learning disabilities (Sure of it, unknown what they are), possibly something wrong with immune system (Sick about as much as I'm not) Possible EDS- hyper mobility type (Will be getting tested, suggested by doctor) dysautonomia


teksla
Veteran
Veteran

User avatar

Joined: 29 Jul 2015
Gender: Female
Posts: 783

19 Oct 2019, 3:56 pm

Arganger wrote:
Whenever these sort of costs get brought up, part of me wonders if they are trying to encourage genocide

All people cost money. Especially children. Some autistics have jobs and are able to contribute to the costs (living etc.) or completely cover them.

To me it just seems like fear-mongering


_________________
Diagnosed with
F84.8 (PDD-NOS) 2014
F33.1 Major Depressive Disorder, recurrent, moderate.


blazingstar
Veteran
Veteran

User avatar

Joined: 19 Nov 2017
Age: 70
Gender: Female
Posts: 6,234

19 Oct 2019, 4:12 pm

Adults cost families more than children do because children have most of their services covered by the public school system, Medicaid and Charities. All these services stop for adults. (Charities for children are well funded. Adults are not as cute)

Many states have services for adults, but unless you can get on a government program they are very expensive. What costs so much? Adult Day Training, Personal Care Assistance, Companion services, Job coaches, respite care and so on.


_________________
The river is the melody
And sky is the refrain
- Gordon Lightfoot


ToughDiamond
Veteran
Veteran

User avatar

Joined: 15 Sep 2008
Age: 71
Gender: Male
Posts: 11,953

19 Oct 2019, 6:07 pm

Looks like propaganda to me. I doubt most people with autism cost anything like that. Autism Speaks is in the persuasion business, not the honesty business.



IsabellaLinton
Veteran
Veteran

User avatar

Joined: 1 Nov 2017
Gender: Female
Posts: 72,422
Location: Chez Quis

19 Oct 2019, 6:11 pm

The only expense that could explain that amount, is if one parent quit work to stay home with a preschooler.


_________________
I never give you my number, I only give you my situation.
Beatles


CockneyRebel
Veteran
Veteran

User avatar

Joined: 17 Jul 2004
Age: 50
Gender: Male
Posts: 116,810
Location: In my little Olympic World of peace and love

19 Oct 2019, 9:20 pm

That seems like Autism Speaks propaganda to me. I really hope that organization goes under. No wonder so many ignorant people want to wipe us out.


_________________
The Family Enigma


lostonearth35
Veteran
Veteran

User avatar

Joined: 5 Jan 2010
Age: 50
Gender: Female
Posts: 12,637
Location: Lost on Earth, waddya think?

19 Oct 2019, 9:59 pm

Of course it costs a lot of money in the states. It costs anyone who has special needs a lot of money just to live in the states. The states only really wants white, wealthy, non-defective people in its country so it makes sure minorities and disabled people continue to be treated as inferior beings. It is as extremely racist and ableist as ever, but in more sneaky and subtle ways that it once was. The states won't rest until everyone it sees as defective is locked away and tortured or killed, and it become the next Nazi Germany. :x



mr_bigmouth_502
Veteran
Veteran

User avatar

Joined: 12 Dec 2013
Age: 31
Gender: Non-binary
Posts: 7,028
Location: Alberta, Canada

20 Oct 2019, 3:22 am

Even though I'm on disability and I live by myself, I still cost my parents a fair amount of money. I'm much more dependent on them than most people my age.


_________________
Every day is exactly the same...


losingit1973
Snowy Owl
Snowy Owl

Joined: 29 Mar 2018
Age: 50
Gender: Male
Posts: 133
Location: Livermore, CA

20 Oct 2019, 1:33 pm

The numbers are most likely a stretch, but there are definitely higher expenses for autism families. Some of these kids are destructive. I have had to make countless repairs around the house, and pay for damaged books at school. Taking time off to attend field trips because the school would exclude them if I did not attend. Buying chewies to save clothing and flesh. It is a shame that I can buy a dog chew toy for around 6 dollars, but a chewie for my son that is a fraction of the size is 15 dollars. Then there is delayed potty training. If your child outgrows the size 7 diapers, then your cost per diaper goes from 27 cents to over a dollar per diaper. Sure there are cheaper diapers, but you will be doing more laundry and cleaning.


_________________
RAADS-R Score 199
Aspie-Quiz Neurodiverse score: 141/200
Aspie-Quiz Neurotypical score: 70/200
AQ 42


IsabellaLinton
Veteran
Veteran

User avatar

Joined: 1 Nov 2017
Gender: Female
Posts: 72,422
Location: Chez Quis

20 Oct 2019, 2:29 pm

losingit1973 wrote:
The numbers are most likely a stretch, but there are definitely higher expenses for autism families. Some of these kids are destructive. I have had to make countless repairs around the house, and pay for damaged books at school. Taking time off to attend field trips because the school would exclude them if I did not attend. Buying chewies to save clothing and flesh. It is a shame that I can buy a dog chew toy for around 6 dollars, but a chewie for my son that is a fraction of the size is 15 dollars. Then there is delayed potty training. If your child outgrows the size 7 diapers, then your cost per diaper goes from 27 cents to over a dollar per diaper. Sure there are cheaper diapers, but you will be doing more laundry and cleaning.


It can certainly be expensive and I don't discredit that, but unless the child needs full time care or the parents are paying respite services and private therapy or home schooling, I think this price is exaggerated.


_________________
I never give you my number, I only give you my situation.
Beatles


Jon81
Snowy Owl
Snowy Owl

Joined: 4 Jul 2018
Age: 43
Gender: Male
Posts: 168
Location: Sweden

20 Oct 2019, 2:35 pm

Interesting to see president Donald Trump sign that kind of agreement. It's not the kind of thing you'd expect him to do nor would they discuss it in media.

Costs are mostly down to parents having to cut down on working hours. As a parent I can tell you it's not easy taking care of these kids :lol:. Then there are probably more costs connected to trying to find help for your child. We spend whatever it takes if we notice he's interested in something. We also try to test things that he might be interested in. Going to zoos, amusement parks, special diets (nowadays we need to buy the whole cake instead of just a slice!! !!), getting equipment for sports without being able to know whether he likes it or not (can't ask), apps for developing certain skills, tons of different clothes for every occasion etc.

I don't blame my boy for the lost income. I blame society for not helping out enough and offloading everything on parents.


_________________
Din Aspie poäng: 102 av 200
Din neurotypiska (icke-autistiska) poäng: 108 av 200
Du verkar ha både Aspie och neurotypiska drag
Diagnosed with ADHD 2022


kraftiekortie
Veteran
Veteran

Joined: 4 Feb 2014
Gender: Male
Posts: 87,510
Location: Queens, NYC

20 Oct 2019, 2:54 pm

For somebody with severe autism complicated by many co-morbid, $60,000 can seem very cheap, indeed.

But with somebody with high-functioning autism, $60,000 can seem ridiculously expensive.



old_comedywriter
Veteran
Veteran

User avatar

Joined: 1 Jan 2006
Gender: Male
Posts: 713
Location: Somewhere west of where you are

20 Oct 2019, 2:57 pm

kraftiekortie wrote:
For somebody with severe autism complicated by many co-morbid, $60,000 can seem very cheap, indeed. But with somebody with high-functioning autism, $60,000 can seem ridiculously expensive.

Exactly. This is probably an average.


_________________
It ain't easy being me, but someone's gotta do it.


IsabellaLinton
Veteran
Veteran

User avatar

Joined: 1 Nov 2017
Gender: Female
Posts: 72,422
Location: Chez Quis

20 Oct 2019, 2:58 pm

kraftiekortie wrote:
For somebody with severe autism complicated by many co-morbid, $60,000 can seem very cheap, indeed.

But with somebody with high-functioning autism, $60,000 can seem ridiculously expensive.


It also depends if the parents are involved and supportive. Mine had no idea I had moderate autism, depression, or selective mutism as a child. I was just left to suffer with no help because my mother couldn't have cared less.


_________________
I never give you my number, I only give you my situation.
Beatles