No clue what to make of my diagnosis
So at 31 I've suddenly been labelled with AS. well, not full AS, I exhibit a significant number of Aspergers traits, however that might be most effectively summed up.
I've survived 3 decades so far, had a very successful career, earn very good money, have a nice car, a mortgage, kids, a dog. I like arty movies, music, running, eating curry, driving, online pictures of kittens, woodwork, in all sorts of "normal" amounts. I'm not really obsessed with anything ever, save for the first week of finding something. But I have had some marriage problems which lead me to see a standard Therapist who encouraged me to get an assessment.
When I first saw this therapist, one of the very first things I ever said was that it felt like there was a book of rules on how to live that someone forgot to give me. and 5 months later, here I am... Seems like I hit the nail on the head from the start!
But I'm clueless as to what to do / think of this situation. I'm looking at threads on here... counting in 6's etc... these things mean nothing to me, a totally different world, yet some part of me is reeling from my diagnosis and thinking that I should be stepping back from life and wrapping myself up in cotton wool.
I find it staggering to think that there really is a way of thinking that I have apparently genuinely been missing. For all my faults and failings, I have always been very aware of me being lazy, messy, rubbish at small talk, occasionally unintentionally rude. I've been aware at the time that I should pick that up, or I shouldn't have made that rubbish joke, so I don't get what context an AS diagnosis puts on it.
I guess I think too scientifically / rationally to take it on board. Do other people feel they do this? I can't think anything without observing that I am thinking it. It's like when I get drunk "Oooh look, I almost fell over then! I am drunk! I wonder if I should stop drinking now, hmm... Shall I do something crazy to make my friends laugh? I will make a poll in my head to decide."
I'm not sure there's really anything to gain from being here, I don't know what I would get out of it. As above, reading other threads I don't relate to all that many of the things being talked about. I've signed up for a local support group, but feel like a total fraud so far with my list of "successes" making me feel like I don't belong.
It's not like I feel like a success inside, I live a life of perpetual disappointment and angst or in fear of what someone thinks of me etc., and I don't act like a success on the outside, I just act like... me... and I can certainly finish my life in another 50 or 60 years having spent all that time just being "me", without that many interesting consequences.
So as I understand I am reeeeasonably moderately affected, any thoughts on what I might make of my situation? Maybe I just think about, apart from some due diligence background reading, ignoring the whole bloody thing and keep pretending I'm just a slightly awkward NT. What am I supposed to get out of sitting in a circle of plastic chairs in a school hall with 19 other people all staring at the floor? I certainly feel that I still will find it much easier to relate to an average NT than an average AS...
If you think you can relate better to NTs there's nothing wrong with it, you can still be a little bit AS (or autistic) inside. You've always been special in a sense and your differences are just as real as you. Knowing more about your neurology and its implications can be a great help in understanding yourself and finding peace with your differences. I'm glad you've been so successful in your life, stay on that path!
_________________
Another non-English speaking - DX'd at age 38
"Aut viam inveniam aut faciam." (Hannibal) - Latin for "I'll either find a way or make one."
What does peace mean to you? I've always felt a significant difference between who I am and who I want to be. I can't imagine ever wanting to actually be the person I see in the mirror, and almost like I shouldn't want to in the first place, in that I should be wanting to strive for more, however impossible I feel it is to achieve and however much it frustrates me.
Every point sounds familiar.
Your comment about the "rule book" reminds of a conversation I had with my parents in my early twenties. Somewhere around thirty years ago, I remember explaining to them that life for me was as if there was some "big secret" everyone else seemed to be aware of, but I had no clue. Whatever that secret was, the fact that I didn't have access to it was the reason my life was in such chaos and going nowhere.
Well, it's thirty years later (give or take) now, and I just recently got a diagnosis of PDD-NOS, which is really Asperger Syndrome (there's a blog post on my profile explaining that point). Autism explained absolutely everything that had confused me all of my life where utterly nothing else would.
Welcome to the journey. Working out the confusing details of how Autism works for you (and doesn't work), is the journey you're about to embark on. For me, it's not a bad journey in spite of the frustrations that occur along the way. At least I know now what the hell has been going on all these years. That's better than being completely in the dark.
It's kind of like thinking you're doing fine, walking around with all the other "shiny happy people" and learning to play by the rules, then suddenly waking up at the bottom of a deep well and realizing you aren't where or what you thought you were. Just look up. There's a tiny light up there, and unlike the light many will tell you you don't want to go toward, you will want to follow this one. The rest of us wackos are either on the way up our own wells, or already up there somewhere, wandering around, bumping into each other, screwing up at some things, succeeding at others, and learning how different we are even from each other.
Once you get up here, welcome to the side show!
_________________
I'm not likely to be around much longer. As before when I first signed up here years ago, I'm finding that after a long hiatus, and after only a few days back on here, I'm spending way too much time here again already. So I'm requesting my account be locked, banned or whatever. It's just time. Until then, well, I dunno...
Phonic
Veteran
Joined: 3 Apr 2011
Age: 32
Gender: Male
Posts: 1,329
Location: The graveyard of discarded toy soldiers.
It seems to me like you're stuck in the middle, that means seeking a diagnosis wont benefit you much, but looking at various options for treatment in your issues and even looking autism specific methods could benefit you, I suggest you do some reading and see how these methods might help you, and continue seeking a therapist.
_________________
'not only has he hacked his intellect away from his feelings, but he has smashed his feelings and his capacity for judgment into smithereens'.
What does peace mean to you? I've always felt a significant difference between who I am and who I want to be. I can't imagine ever wanting to actually be the person I see in the mirror, and almost like I shouldn't want to in the first place, in that I should be wanting to strive for more, however impossible I feel it is to achieve and however much it frustrates me.
In this context I mean peace with having something that makes you different from other "normal" people. I guess I see what you're saying about wanting to be someone else or more. I think I feel the same drive in my life, although not constantly. It can help, but also can be a source of frustration. Don't push yourself so hard...
Having a label doesn't make you a different person. Don't worry about it and don't end up over analyzing yourself 'am I doing this because I have AS?' 'Am I behaving strangely?'. It is a natural reaction but to a large extent it will pass as you recover your equilibrium.
Understanding AS may help explain some things that have confused you in the past and may help you spot social mistakes before they happen. It may also help your wife understand some of your more irritating characteristics. If you can discuss it together you may be able to work out some compromises that make life easier for both of you.
I only found out myself fairly recently. AS explains a whole lot of things that have puzzled and confused me. I can use that knowledge to change the things I think I should change and understand the things that I can't change. AS isn't all bad. For instance it gives me the ability to hyperfocus. I can devote my entire concentration on a task non stop for a whole day. I do have a special interest so I made it my career. I am well respected in my field and enjoy my job.
That works for a lot of people. Don't get too hung up on the 'AS' or 'NT' thing. We are all just people. There are plenty of awkward NTs out there as well.
Is this an AS group? If you can't relate to the others in the group then you aren't going to get anything out of it. I would have trouble in a random group of people myself, be they are AS or NT. Remember people on the autistic spectrum find it harder than NTs to relate to groups. If someone is pushing you into this they are probably doing the wrong thing.
Anxiety is one of the side effects of AS. If you have trouble understanding people it is very easy to end up subconsciously feeling like you are being judged all the time. Perfectionism is another one. Again you end up judging yourself as a disappointment. There are also an awful lot of NTs with the same issues. By most people's standards you are a success. Look around you. There are a heck of a lot of people out there that have done a lot worse than you. You may benefit from CBT therapy which may help you to manage the angst and fear. Ideally you want a therapist who really understands AS but they are few and far between.
Don't worry yourself about getting an official diagnosis, unless you feel like you need it for a practical purpose. Keep educating yourself and using resources like this message board to talk to other people who deal with some degree of what you do (AS), make of it what you will, and use what you learn to mull over these things as they pertain to your own life.
Well I'm certainly already doing it! Hope it doesn't last long!
Well that's one thing that's getting to me... I appear to have just about no "benefits" from it! If I'm not interested in something, I have no real ability to stick with it at all. I wish I could give a crap about my taxes and how I'm running my company, but I've not got a chuffing clue nor interest, and I can't see that's related to AS in any direction really. Sure, I can spend all day working on IT problems, but that has never been something I've observed my peers not being able to do to an even greater extent with higher levels of professionalism and apparently better thought processes for troubleshooting etc.
Oh certainly, I don't like these labels at all. Almost seems rude to label NT's without their permission or knowledge!
Yeah, a local AS support group. And I've really not a clue what it's going to be like. Not being pressured at all, TBH no one is even in a position to want to push me anywhere. I guess I wish they were! I'm just going along to maybe help get a handle on it. Maybe even from the perspective of seeing how far from other AS people I really am. Maybe I'll come out feeling like a total fraud and not even feel able to say I am AS to any credible extent.
My therapist is very interested in AS I think, but doesn't know that much about it. She was actually telling me, earlier this week, some interesting things she read about it, which seems slightly odd. But this is a big experiment to me, so if she wants to use me as an experiment too, who am I to judge?! I'm certainly no perfectionist. I spend most of my life feeling bad that I'm not trying hard enough. I get my level of success through getting by, got my degree without really revising etc. If I could make myself try I'd do even better. Watching ones self not try and feeling powerless to improve is tough.
I've survived 3 decades so far, had a very successful career, earn very good money, have a nice car, a mortgage, kids, a dog. I like arty movies, music, running, eating curry, driving, online pictures of kittens, woodwork, in all sorts of "normal" amounts. I'm not really obsessed with anything ever, save for the first week of finding something. But I have had some marriage problems which lead me to see a standard Therapist who encouraged me to get an assessment.
When I first saw this therapist, one of the very first things I ever said was that it felt like there was a book of rules on how to live that someone forgot to give me. and 5 months later, here I am... Seems like I hit the nail on the head from the start!
But I'm clueless as to what to do / think of this situation. I'm looking at threads on here... counting in 6's etc... these things mean nothing to me, a totally different world, yet some part of me is reeling from my diagnosis and thinking that I should be stepping back from life and wrapping myself up in cotton wool.
I find it staggering to think that there really is a way of thinking that I have apparently genuinely been missing. For all my faults and failings, I have always been very aware of me being lazy, messy, rubbish at small talk, occasionally unintentionally rude. I've been aware at the time that I should pick that up, or I shouldn't have made that rubbish joke, so I don't get what context an AS diagnosis puts on it.
I guess I think too scientifically / rationally to take it on board. Do other people feel they do this? I can't think anything without observing that I am thinking it. It's like when I get drunk "Oooh look, I almost fell over then! I am drunk! I wonder if I should stop drinking now, hmm... Shall I do something crazy to make my friends laugh? I will make a poll in my head to decide."
I'm not sure there's really anything to gain from being here, I don't know what I would get out of it. As above, reading other threads I don't relate to all that many of the things being talked about. I've signed up for a local support group, but feel like a total fraud so far with my list of "successes" making me feel like I don't belong.
I know where you're coming from. Your life sounds like my life although you're more successful (you have kids and a wife, I have 2 dogs. You have a nice car, I drive my hillbilly'ish beat up Ranger [because I want to, not because I have to]. You like to run, my gout and Raynaud's don't let me run that well).
I'm not sure a support group would be that useful to be honest. I'd still try it out. You may pick up tidbits that make everything click. Think of it as if you're going to a training class that covers a subject that you understand. You will know most of what is taught, but can still pick up new bits that you didn't know.
So as I understand I am reeeeasonably moderately affected, any thoughts on what I might make of my situation? Maybe I just think about, apart from some due diligence background reading, ignoring the whole bloody thing and keep pretending I'm just a slightly awkward NT. What am I supposed to get out of sitting in a circle of plastic chairs in a school hall with 19 other people all staring at the floor? I certainly feel that I still will find it much easier to relate to an average NT than an average AS...
I'd still go for a while. I highly doubt you would be the only one in the group in your situation (although you might be).
Also, keep up the good work. You appear to have adapted well enough to function and succeed in society. How high up have you progressed career-wise? [I've lead teams through various projects, but decided that I really didn't like management roles, even if lower level. I will stay in a technical role as long as I possibly can.]
It seems to me like you're stuck in the middle, that means seeking a diagnosis wont benefit you much, but looking at various options for treatment in your issues and even looking autism specific methods could benefit you, I suggest you do some reading and see how these methods might help you, and continue seeking a therapist.
I do feel stuck, yeah. I find it hard to think about being able to deal with being "a bit s**t", like there's not really enough to get hold of to deal with. I would never say I wish I would rather be HFA, as I surely wouldn't have my wonderful children etc, however there does feel like there's maybe some sort of "curse" of being able to be far more aware of my situation than I'd like to be, due to the lower impact it has. An "ignorance is bliss" angle that I don't have.
Let me give you some advice that will save you and your family a lot of confusion. If you have a successful career, family, and a dog forget about AS and carry on with your life. The fact is that 60-80% of people with AS cannot live independently. The majority of people with AS also have other conditions. If you do indeed have AS count yourself one of the lucky ones and just go on with your life. A DX has no meaning if it doesn't explain why your life is upside down. Your life is not upside down.
It seems to me like you're stuck in the middle, that means seeking a diagnosis wont benefit you much, but looking at various options for treatment in your issues and even looking autism specific methods could benefit you, I suggest you do some reading and see how these methods might help you, and continue seeking a therapist.
I do feel stuck, yeah. I find it hard to think about being able to deal with being "a bit s**t", like there's not really enough to get hold of to deal with. I would never say I wish I would rather be HFA, as I surely wouldn't have my wonderful children etc, however there does feel like there's maybe some sort of "curse" of being able to be far more aware of my situation than I'd like to be, due to the lower impact it has. An "ignorance is bliss" angle that I don't have.
Well it's very subjective as to whether it is or not. I'm facing the possibility of divorce due to some really sh***y things I have done, which *may* be explained (but not excused) by AS, so to me that's pretty upside down from the dull rolling norms I expect to live my life by, and very much grew up with. But that's certainly the kind of perspective I need to help put things into context. thanks.
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