Page 1 of 1 [ 15 posts ] 

Jamesy
Veteran
Veteran

User avatar

Joined: 24 Oct 2008
Age: 35
Gender: Male
Posts: 8,420
Location: Near London United Kingdom

03 Feb 2012, 9:59 am

a few times when my parents went on holiday for a look after the house and cook for myself with no real problems..... its just that i find around my family i can lose my temper over small things and i do have a fear of being around other people at times because of me blowing up over small things.


i read on w i k i that most people with autism end up in some type of group home.

i am sure i do have autism so i am just a bit concerned that eventually that i will end up in some type of resident facility :( besides i just want to live an independent and happy life.



BuyerBeware
Veteran
Veteran

User avatar

Joined: 28 Sep 2011
Gender: Female
Posts: 3,476
Location: PA, USA

03 Feb 2012, 11:56 am

Don't believe what the experts say.

We're also supposed to be incapable of being responsible for others, having fulfilling relationships, being good parents-- and I'm doing all that stuff. So did my Dad.

Don't let anyone tell you what "autistics" are and are not capable of. Every autistic is different. Someone else's needs and limitations are not yours. If the "experts" can't understand that, they're stupid.


_________________
"Alas, our dried voices when we whisper together are quiet and meaningless, as wind in dry grass, or rats' feet over broken glass in our dry cellar." --TS Eliot, "The Hollow Men"


Amik
Veteran
Veteran

User avatar

Joined: 6 Feb 2008
Age: 42
Gender: Female
Posts: 645

03 Feb 2012, 12:09 pm

The autism spectrum is really wide and includes people at various levels of functioning. Many people on the high functioning end of the autism spectrum are able to live independently and don't need to live in group homes or with relatives. The group homes are just an option for those who need more support, but that doesn't mean that all autistic people end up in one of those.

If you were able to take care of yourself and the house while your parents were on holiday, then I don't see why you wouldn't be able to live on your own and have the independent life that you want.



Jamesy
Veteran
Veteran

User avatar

Joined: 24 Oct 2008
Age: 35
Gender: Male
Posts: 8,420
Location: Near London United Kingdom

03 Feb 2012, 12:20 pm

Amik but what about me freaking out around other people?



MrXxx
Veteran
Veteran

User avatar

Joined: 11 May 2010
Age: 64
Gender: Male
Posts: 5,760
Location: New England

03 Feb 2012, 1:23 pm

Jamesy wrote:
i read on w i k i that most people with autism end up in some type of group home.


You read that where? What is "w i k i?"

It's certainly not true, unless wherever you read that is talking ONLY about classic Autism. Most Autistics do not have classic Autism, and function well enough on their own to not end up in group homes.


_________________
I'm not likely to be around much longer. As before when I first signed up here years ago, I'm finding that after a long hiatus, and after only a few days back on here, I'm spending way too much time here again already. So I'm requesting my account be locked, banned or whatever. It's just time. Until then, well, I dunno...


Amik
Veteran
Veteran

User avatar

Joined: 6 Feb 2008
Age: 42
Gender: Female
Posts: 645

03 Feb 2012, 1:33 pm

Jamesy wrote:
Amik but what about me freaking out around other people?

Would that not be less of an issue if you lived on your own than it would be if you lived in a group home?



Jellybean
Veteran
Veteran

User avatar

Joined: 20 Apr 2007
Age: 36
Gender: Female
Posts: 2,795
Location: Bedford UK

03 Feb 2012, 1:35 pm

Its actually very difficult to get into a group home in the UK. The only reason I am in one is because my Mum made me legally homeless. If you want to live alone but people are concerned about whether you will be okay, there are care companies who just send someone along a couple times a week instead of constant company just to check if you are okay. I have also found that living with others is not something I particularly enjoy :(


_________________
I have HFA, ADHD, OCD & Tourette syndrome. I love animals, especially my bunnies and hamster. I skate in a roller derby team (but I'll try not to bite ;) )


SteelMaiden
Veteran
Veteran

User avatar

Joined: 19 Aug 2006
Age: 35
Gender: Female
Posts: 3,722
Location: London

03 Feb 2012, 2:00 pm

I am in supported housing just outside London, 14 hours a week of support, otherwise I am pretty much left in the house (with two other people) to do what I want. I get monitoring by my mental health team too. And I go to university.

But the carers told me that this is a transition period. Once I am deemed by the mental health services to be independent enough to move out and go and live with my friend, I will be able to leave.

They said I may stay here for the remainder of my BSc Pharmacology course at university; which is another 3 years.


_________________
I am a partially verbal classic autistic. I am a pharmacology student with full time support.


hyperlexian
Veteran
Veteran

User avatar

Joined: 21 Jul 2010
Age: 52
Gender: Female
Posts: 22,023
Location: with bucephalus

03 Feb 2012, 2:01 pm

Jamesy wrote:
Amik but what about me freaking out around other people?

Anger Management therapy can help you with this to a certain degree. you don't have to react by freaking out, as you can change it to some degree. i'm not saying it's easy or automatic, but it's possible to stop freaking out as much (or as badly).

many people with autism have difficulty controlling themselves when they get emotional, but it doesn't make it impossible to improve. if you want to live independently, professional assistance with learning self-control can help you make it a reality.

in your life you will always have to deal with other people and there will be new triggers ad annoyances that can set you off - that is not going to change. but what CAN change to some degree is how you react.


_________________
on a break, so if you need assistance please contact another moderator from this list:
viewtopic.php?t=391105


Matt62
Veteran
Veteran

User avatar

Joined: 4 Jan 2012
Age: 62
Gender: Male
Posts: 1,230

03 Feb 2012, 2:09 pm

What "flavor" of Autism have you been diagnosed with?
As someone just said, we are all different. Some start out fairly low-functioning, then become much higher in time. Don't believe everything you read, please.

Sincerely,
Matt



Jamesy
Veteran
Veteran

User avatar

Joined: 24 Oct 2008
Age: 35
Gender: Male
Posts: 8,420
Location: Near London United Kingdom

03 Feb 2012, 4:00 pm

Mr XXX i think do have classic autism because i had a learning difficulties and a langauge delay :(

then again i can look after myself when my parents are away



readingbetweenlines
Veteran
Veteran

User avatar

Joined: 28 Oct 2010
Age: 57
Gender: Female
Posts: 622
Location: UK

03 Feb 2012, 5:04 pm

MrXxx wrote:
Jamesy wrote:
i read on w i k i that most people with autism end up in some type of group home.


You read that where? What is "w i k i?"


Wikipedia, I suspect, that fount of all knowledge. :wink:


_________________
I have traveled extensively in Concord (Thoreau)


1000Knives
Veteran
Veteran

User avatar

Joined: 8 Jul 2011
Age: 33
Gender: Male
Posts: 5,036
Location: CT, USA

03 Feb 2012, 6:10 pm

I couldn't live in a group home, I'd hate it to death and probably would live in a tent in the woods before living in a group home. One of my weird things is an insistence on self reliance, self sufficiency, etc.

But, as for me, everything is PERFECT when my family is away. I've had the same experience, I'm cooking awesome, for very cheap, feeling healthy, everything I want done is getting done, etc, when my family is away, then my family comes back, and it's just like "aww....." In some ways, a bit lonely, but you can just invite friends over

One of my counselors, while not a super expert in ASD, she seems to know more about it and have more relevant advice than any other "professional" I've talked to. She said the reason for this is, it takes more effort for me to understand people, I have to exert more brain power just when they're around me, to interpret them. So, being alone, I can think clearer, as it's not constantly trying to multitask with interpreting the other people around me. But yeah, the exact same experience, when I'm alone, I'm like PERFECT then my family comes back, and I feel like crap again.

I had the same prognosis of treatment awhile back. Originally, they specifically didn't wanna DX me Aspergers since it was a court eval, so they DXed me NVLD and various schizoid personality types. However, the treatment place said teenagers weren't even eligible for schizoid DXes, that and it was to teach really basic life skills, like, for example, cooking. For me however, I'm better at cooking than most people I know. I'm pretty much wonderful at any of the actual tasks of day to day life, I can repair most things, cook stuff, but just, being around other people trips me up like crazy, that and my "routines" changing, too, which is usually only caused by said other people.

My solution, I have to get a job and save up for a down payment on some land, or a cheap house in another state. Or at the very least, a crappy $400 a month apartment here is better than being in my house, because at the very least, I get to be alone.



CockneyRebel
Veteran
Veteran

User avatar

Joined: 17 Jul 2004
Age: 50
Gender: Male
Posts: 117,257
Location: In my little Olympic World of peace and love

03 Feb 2012, 7:47 pm

I could never live in a group home. I like my independence and freedom too much.


_________________
The Family Enigma


Jtuk
Veteran
Veteran

User avatar

Joined: 21 Jan 2012
Age: 46
Gender: Male
Posts: 732
Location: Wales, UK

03 Feb 2012, 7:56 pm

I've only lived completely independently for 3 years looking back it was a complete disaster, but didn't seem so at the time. House was wrecked, I ended up owing tens of thousands and county court judgements.. and loads of motoring issues (all paperwork ones). Thankfully the housing bubble cleared the debts, so had a lucky escape.

Did I need round the clock care or a group home? Probably not.. But someone coming in a few hours a week for cleaning and checking I'd been dealing with bills, would have made a lot of difference.. Distancing yourself too far from your support network could be a bad idea..

Jason