Other disabilities and getting a diagnosis

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I am in the middle of getting a diagnosis of an ASD and a few other conditions.

When I spoke to the GP, he explained to me that because I have other disabilities, I am meant to be harder to diagnose. The psychiatrist I saw in February said the same thing. I know that at least one of the issues I have (hypersensitivity to light) does overlap. I have been told there's at least 3 (excluding ASD) reasons why I may have it and that it's nothing to worry about.

Does anyone else have experience of this, please? Also, there's supposedly a link between Autism and Nystagmus. Does anyone else have Nystagmus? There doesn't seem to be much information out there.

I have ocular albinism - of which nystagmus is a symptom - and which causes hypersensitivity to light. But I haven't been officially diagnosed. (On the other hand, after the amount of research and thought I've given to the matter, and the indirect confirmations that have occurred after the fact, the only way I'd believe a professional who said I don't have an ASD would be if they could provide an explanation for all my oddness that was actually a better fit.)

So I can't help you on the official diagnosis part, although after giving it a great deal of thought, I'm convinced that the two things, Aspergers (or HFA) and ocular albinism, have certainly impacted each other, in both positive and negative ways.

I say always go to a specialist, or, if you can't always get a second, maybe even third opinion.

Doctors are people. What one doctor can't do another might be able to.
Right now, I'm in the process of changing my GP. I have had low blood sugar in his office, low blood sugar out of his office. Low blood sugar on the official tests. High blood sugar, then low blood sugar. Seizures (first time in my life) on the official test.
He says there's nothing wrong with my blood sugar.
Long story short, I'm getting someone else. This doctor cannot even find my heart murmur I have had since I was born.

I'm not saying your issues may keep a doctor from seeing your ASD, I'm saying don't go on what just one doctor says.

It's the same with me.



Interesting. I know there's a lot of research being done at the moment; as apparently, there seems to be a lot of people with Nystagmus who go to Leicester hospital (there's medical trials going on at the moment) who also have Autism. I don't think there's been an outcome of this research yet though.