ADHD over-dx diluted ASD credibility?

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Jayo
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14 Apr 2012, 9:23 pm

I know this might offend some people who are legitimately ADHD, but for a while I've felt that ADHD is a "vanilla diagnosis" used by laypeople or incompetent psychiatrists (the latter being less common nowadays), who don't know what other label to use. After a while, this became public perception, that ADHD was being over-diagnosed, e.g. a kid in school fails a couple of tests, and the teacher and the school counselor decide that the kid must have ADHD - without investigating other factors like maybe the kid misinterpreted the instructions or was distracted by sensory input in his surroundings or anxious about bullying.

So, enter the Asperger dimension: as a result of this ADHD over-dx, people with Aspergers like myself and the majority of people on this forum, tend to have their diagnosis discounted by laypeople. I have had a few occasions where I explained my condition to a layperson, only to receive a flippant reply such as: "Well, you know, for so long they've diagnosed those kids in schools with ADHD, or whatever the latest fashionable label is, and I just think that some people have different things to work on than others."

Heck, even after my diagnosis of Aspergers in 2001, I still had the occasional person ask me if I had ADHD, and at an old job, had colleagues spread gossip that I must have ADHD.

But the reality is that Aspergers is far more serious, and debilitating, than ADHD. The prognosis for ADHD is more benign than ASD for sure.

Is this phenomenon part of a collective "cry wolf" mentality? And is there any way we Aspies can deal with our condition being trivialized as a result?



Mdyar
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14 Apr 2012, 9:55 pm

The "phenomenon" is a lack in understanding of any disorders by healthy people.

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DVCal
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14 Apr 2012, 10:10 pm

Jayo wrote:
I know this might offend some people who are legitimately ADHD, but for a while I've felt that ADHD is a "vanilla diagnosis" used by laypeople or incompetent psychiatrists (the latter being less common nowadays), who don't know what other label to use. After a while, this became public perception, that ADHD was being over-diagnosed, e.g. a kid in school fails a couple of tests, and the teacher and the school counselor decide that the kid must have ADHD - without investigating other factors like maybe the kid misinterpreted the instructions or was distracted by sensory input in his surroundings or anxious about bullying.

So, enter the Asperger dimension: as a result of this ADHD over-dx, people with Aspergers like myself and the majority of people on this forum, tend to have their diagnosis discounted by laypeople. I have had a few occasions where I explained my condition to a layperson, only to receive a flippant reply such as: "Well, you know, for so long they've diagnosed those kids in schools with ADHD, or whatever the latest fashionable label is, and I just think that some people have different things to work on than others."

Heck, even after my diagnosis of Aspergers in 2001, I still had the occasional person ask me if I had ADHD, and at an old job, had colleagues spread gossip that I must have ADHD.

But the reality is that Aspergers is far more serious, and debilitating, than ADHD. The prognosis for ADHD is more benign than ASD for sure.

Is this phenomenon part of a collective "cry wolf" mentality? And is there any way we Aspies can deal with our condition being trivialized as a result?


I don't agree that Aspergers is always more debilitating than ADHD, I have Aspergers, and I know someone who has real bad ADHD, and I would say it is more debilitating for him then me.

I do agree however that ADHD is way over diagnosed, we need to limit special treatment in schools for these people, and the same goes for Aspergers.



Verdandi
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14 Apr 2012, 10:17 pm

I doubt it's because of ADHD, which is underdiagnosed and undertreated.

There are people who want y'all to believe that ADHD is overdiagnosed (the Church of Scientology for one, as well as its countless subsidiaries), or people who just don't get it, and think that ADHD isn't a real disorder in the first place.

If you're running around saying that ADHD is overdiagnosed, you fell for a scam. I'm not saying it is never misdiagnosed in people who don't have it, but it is much more common that people who have it never get diagnosed at all.

Anyway, you're not going to find a single first cause for why people think of Asperger's Syndrome as "not a real disorder," least of all this one. Although I have to admit I get tired of hearing people characterize it as a "mild form of autism."

Also, if you want to complain about public perceptions of AS, I should point out a lot of people on this forum like to insist that AS is nothing more than a personality type or a difference and not a disorder or a disability at all. Not that they are strictly at fault for causing that perception. Ableism (link) is more likely a significant cause for that perception.

I have ADHD as well as being on the autistic spectrum. I say that to clarify that I am not offended by your false overgeneralization. But I want to ask that you not try to cast doubt on ADHD diagnoses in order to explain/understand why people don't get AS.



MountainLaurel
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14 Apr 2012, 10:40 pm

Quote:
Is this phenomenon part of a collective "cry wolf" mentality?

Perhaps; but my experience points to ASD being overlooked, under diagnosed and alternately being either sensationalized or hidden. In my environments; work, condo-complex & church, I believe there to an incidence of ASD as high as 5%; many of whom are in my own age range and are unaware of what it is that causes them to struggle with everyday frustrations and lack the ability to shrug it off and forge on as seamlessly as the other 95%.

Where did I get that statistic!? Me; myself. I notice ASD around me. Menial workers to PHD professionals and every position in between at my workplace of 150 souls; I can think of 5 that I'd bet my last dollar have ASD and another 5 that quite possibly have it. No one says that they're aspie and as far as I can tell; no one suspects this to be the case.

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And is there any way we Aspies can deal with our condition being trivialized as a result?

Dunno. Your question is relevant and important. But as long as ASD stays unrecognizable to almost everyone, there will be no traction. I have wished for more disclosure and discussion about mental differences but I understand the privacy impulse, too.



Verdandi
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14 Apr 2012, 10:59 pm

DVCal wrote:
I don't agree that Aspergers is always more debilitating than ADHD, I have Aspergers, and I know someone who has real bad ADHD, and I would say it is more debilitating for him then me.


ADHD is more debilitating than the vast majority of outpatient disorders. If you're not likely to be hospitalized for it, then ADHD is often more impairing.

That said, people with AS do sometimes end up hospitalized, although whether it's for AS or for a comorbid like major depression I do not know.

Also, AS, being autism, can often be more severe than ADHD due to its pervasiveness in comparison.

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I do agree however that ADHD is way over diagnosed, we need to limit special treatment in schools for these people, and the same goes for Aspergers.


Why do you agree with this? What factual and statistical information leads you to this conclusion? Is it something you've heard over and over again and thus it makes sense, or is there something here that you didn't mention? After all, your opinion may be that ADHD is overdiagnosed (and I wonder if this is related to your post about laziness), but it's important to keep in mind that while we are all entitled to our own opinions, we are not entitled to our own facts.

I think it is important for us, as people living with conditions like these, to focus on factual information about their epidemiology, and not simply fall back on popular opinions that may not be fact-based at all.



Verdandi
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14 Apr 2012, 11:05 pm

Regarding ADHD overdiagnosis:

http://jad.sagepub.com/content/11/2/106.short

Quote:
Evaluating the Evidence For and Against the Overdiagnosis of ADHD

Mark J. Sciutto, PhD
Muhlenberg College, Pennsylvania, sciutto{at}muhlenberg.edu

Miriam Eisenberg
Muhlenberg College, Pennsylvania

Abstract

Objective: According to the DSM-IV TR, approximately 3 to 7% of school-age children meet the criteria for ADHD. However, there is a common conception that ADHD is overdiagnosed. The purpose of this article is to evaluate the evidence for and against overdiagnosis. Method: Recent prevalence studies and research on factors affecting diagnostic accuracy were reviewed. For ADHD to be overdiagnosed, the rate of false positives (i.e., children inappropriately diagnosed with ADHD) must substantially exceed the number of false negatives (children with ADHD who are not identified or diagnosed). Results and Conclusion: Based on the review of prevalence studies and research on the diagnostic process, there does not appear to be sufficient justification for the conclusion that ADHD is systematically overdiagnosed. Yet, this conclusion is generally not reflected in public perceptions or media coverage of ADHD. Potential explanations for the persistence of the belief in the overdiagnosis of ADHD are offered. (J. of Att. Dis. 2007; 11(2) 106-113)



Tuttle
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14 Apr 2012, 11:16 pm

I think in my case, the reason ADHD seems overdiagnosed is a combination of three reasons.

1. When I was in 3rd grade suddenly a bunch of kids (definitely more than 7% of my class) were given this diagnosis. They tried to force it on me as well. I could see some people actually being ADHD, but it seems like there was a particularly high rate, without a particularly strong reason, at the point at which I became aware of ADHDs existence.

2. People tried very hard to force that label on me (who were not doctors, professionals laughed at the idea and pointed out that I was intelligent and bored).

3. I know someone with NPD who uses an ADHD as an excuse to get more attention while not showing impairments from it (and admitting its a mild case). Things to do with this person are in some ways automatically biased in my view points.


However, overall I think that people don't discredit AS because of ADHD. I think they discredit AS for a combination of how people talk about it and simple ableism of not understanding.

People I know don't think AS is fake, they think its a mild social difference and not really autism, and why do you call yourself autistic if you're an aspie. They see the stereotypes of people saying how its only a difference and don't see the impairments.



Verdandi
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14 Apr 2012, 11:33 pm

I believe ADHD overdiagnosis does happen on a local level, but not on the global level that many think.

I agree with you (Tuttle) about how AS is viewed.



pensieve
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15 Apr 2012, 5:26 am

ADHD is poor regulation of attention/ motivation/ memory/ energy. Is Aspergers? NO! It is very tiring living with ADHD. Humans rely on the frontal lobe to organise, socialise, work, budget, clean, raise families, not forget the simplest of things that could land you in debt/ divorce/ someone shaking their head at you/ a car accident or locking oneself out of their home.

Asperger's = long term memory
ADHD = poor memory retention, both short term and long term

Asperger's = increased concentration on subjects of interest
ADHD = Interests in far too much and never spend long enough on a single topic.

Executive dysfunction is far more impaired in ADHD than autism. In ADHD you can have a person realising they need to get something done but lack the brain chemistry to get it done, in autism it's down to what interests them more. I'm not just saying that, I have witnessed it.

It's hard being hyperactive too. Not being able to focus at anything at all and needing to move. You offend people with your tactless speech and wonder why they are suddenly so mad at you. Why can't they just see life as a game like you? Not to forget the hyperfocus that can have you doing many crazy impulsive things and then suddenly having you stop and realising what you have done, but it's too late because all your energy is exhausted.

Don't get me started on inattentive symptoms. Can't move. Can't think. Can't...oh f***k it, forgot what I talking about *moans* might just go back to sleep.

ADHD is having no control of what you do when you do it and only a small window of focus is opened at a time. It is far more exhausting than autism. Autism is still tough. I shut down in public and around high sensory environments. I need routine and repetition. But ADHD is pretty constant as long as I'm not on medication. To be human means to have a working frontal lobe and mine chooses when it wants to work and only for a short time.

I wasn't diagnosed with ADHD into my adulthood and being on medication has been far more helpful than being diagnosed with autism.

ADHD and AS is probably misdiagnosed in certain people. Both disorders are alike so it's very hard to know which one a person has for sure. I know I have both.

Yes your post is offensive to me, a person who continuously struggles with ADHD. It should be renamed severe executive dysfunction and motor regulation disorder, or something to that affect.

I think a lot of people, even professionals, fail to realise what ADHD really is. It's not some hyperactive inattentive forgetful child. It's someone not in control of attention/ energy/ memory/ emotions. It's like all of that gets exhausted far too quickly to be of any use.

People probably don't take AS seriously because right now autism is all throughout the news and people are used to autism being a very serious disorder. People might relate to some symptoms and compare themselves to other people and because they're doing ok then other people like them should be doing ok too. No one really takes into account the severity scale of the symptoms.


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15 Apr 2012, 7:28 am

I'm going to take a shot at answering this, because I myself didn't take AS too seriously when I first looked into it after a psychologist suggested I might have it.

From briefly reading the description of symptoms it basically sounded to me like the clinical diagnosis of being a nerd. I think I actually described it this way to some people I know! Of course, upon looking deeper into it I realised there's more to it than that. I guess I missed the fact that it's an actual neurological difference the first time and focused on the symptoms - and the symptoms, as described in Wikipedia and whatever other pages I read at the time are general enough and vague enough that you could get many geeky/nerdy people to fit them if you tried hard enough. Another, related, reason was that I just didn't see the implications of having AS. I thought "OK, so I'm a bit different to others. I already know that. How does it matter to me whether I'm different because I have condition X or I'm different for some other reason? What would it change?"

It was only reading WP that really convinced me that Aspies are genuinely "wired differently" and that I am one. The thing is, most people won't do anywhere near that amount of research. Most certainly won't read WP! I could hardly expect them to when I myself didn't (initially). It was a bit of a catch-22: I wouldn't take it seriously until I did more research and I wasn't particularly motivated to do more research since I didn't take it seriously.

So just as people may dismiss ADHD with "so you can't pay attention? that's the whole problem? drink a cup of coffee!" they might dismiss AS with "so you're not very social - well, you can learn to be if you try, right? spend less time on the computer and more time talking to people and it might get easier". pensieve did a very good job of explaining ADHD and perhaps someone can do the same for AS in a way that would be understood well by the average person. I would start with: "It's not about being shy or nerdy, it's about how you understand social interaction. NTs understand it intuitively, while Aspies have to learn it scientifically." To me that was the critical point and I don't think it's generally explained very well.

Verdandi wrote:
Although I have to admit I get tired of hearing people characterize it as a "mild form of autism."


Do you think that's inaccurate? How would you prefer to have it characterized?



Verdandi
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15 Apr 2012, 7:31 am

FMX wrote:
Verdandi wrote:
Although I have to admit I get tired of hearing people characterize it as a "mild form of autism."


Do you think that's inaccurate? How would you prefer to have it characterized?


The assumption that someone diagnosed with AS is always mild is incorrect. I would prefer an accurate characterization: A diagnosis frequently given to autistics who begin speaking early or on time.



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15 Apr 2012, 8:31 am

I know someone who was told by her child's school (no-one at the school is medically qualified to diagnosis anything, really) that her child has ADHD because he plays up in class. His mum replied with "well, he wouldn't be naughty if he was given the support he needs". He's visually impaired.



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15 Apr 2012, 3:57 pm

Wandering_Stranger wrote:
I know someone who was told by her child's school (no-one at the school is medically qualified to diagnosis anything, really) that her child has ADHD because he plays up in class. His mum replied with "well, he wouldn't be naughty if he was given the support he needs". He's visually impaired.


I think this is where part of the perception comes from. My wife's, cousins, daughter was apparently diagnosed ADHD several years ago. When I asked her about it recently it turned out she was never actually diagnosed. I suspect this is common, with actual diagnosed people quite low, but a higher perception.

Jason



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15 Apr 2012, 4:09 pm

Jtuk wrote:
Wandering_Stranger wrote:
I know someone who was told by her child's school (no-one at the school is medically qualified to diagnosis anything, really) that her child has ADHD because he plays up in class. His mum replied with "well, he wouldn't be naughty if he was given the support he needs". He's visually impaired.


I think this is where part of the perception comes from. My wife's, cousins, daughter was apparently diagnosed ADHD several years ago. When I asked her about it recently it turned out she was never actually diagnosed. I suspect this is common, with actual diagnosed people quite low, but a higher perception.

Jason


A cousin of mine apparently has ADHD. But he can sit and watch a film. I wish I could do that. I can't do it because sitting for that length of time is painful.



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15 Apr 2012, 11:18 pm

I don't believe it's over-diagnosed, just over-hyped.

It's hard for people with ADHD too. I have only told two acquaintances at school about my ADHD and both outright told me that they don't believe ADHD exists. If anything, I think inattentive ADHD is sorely overlooked in favor of the predominantly hyperactive variant. There are many in my family who don't believe I have it, simply because "I'm well-behaved and not hyper". However, I have trouble sitting through movies, I have yet to beat a single RPG video game and I am daydreaming 24/7, in addition to being extremely forgetful and having a poor short term memory, but an excellent long term memory. Finally, I can really only focus on things concerning my special interests, regardless of how important the object in question i need to focus on is. I have always eaten healthy and was never given much junk food to eat as a kid, yet many insist I was raised with a poor diet and are still skeptical about my diagnosis and ADHD in general. I don't even tell anyone I have it anymore unless it's necessary.

It's tough, but I believe that the media is also partly to blame for AS being taken lightly. Either autistics are portrayed as severely disabled souls deserving of pity, or as geniuses and prodigies who have their life set out for them and will have no trouble once they're out in the real world. I would love to see at least once, a news interview where someone who has ADHD or Autism isn't stereotyped as a hyperactive basket case or a savant, and does struggle quite a bit in their daily lives, despite being high-functioning. It'd also be nice if their main focus wasn't always on children. pensieve summed everything up a lot better than I could have though.


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