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cherrycoke
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Joined: 25 Aug 2012
Age: 34
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02 Dec 2012, 6:52 pm

So I've been trying to get the NHS website to get rid of this bit of information for a while now :

"A diagnosis of ASD is not a label that your child will be stuck with for the rest of their life."

The information is provided to parents on http://www.nhs.uk/Conditions/Autistic-s ... nosis.aspx

I just find it to be misleading parents in to thinking a diagnosis is no big deal and won't hold their child back from anything in life when in fact, they will be unwittingly permanently barring their child from a lot of things later in life.

I know most won't agree with me, but then most of you didn't spend a lot of money failing a commercial pilots medical certificate on the basis that you didn't like board games as a child. But in case anyone does agree and wants to help, the feedback link is http://www.nhs.uk/aboutNHSChoices/Pages/ContactUs.aspx



CftxP
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02 Dec 2012, 7:47 pm

Definitely the case with me. My parents never wanted to think that I had any problems, in terms of my mental health, but now I'm a 19 year old adult male who happens to suffer from general anxiety (more severe though with social anxiety) and problems with depression. I think this is the case because of the stigma, it's also why I didn't "come out" of the closet until it seemed like they were comfortable with it. Of course, no one really cared about that, but still, I guess that comes from the ASD that I can't effectively communicate with people. :/

Basically, I agree with you, not because I've spent a lot of money, because my parents are the ones paying for the visits anyhow, but because it's important that people are aware, these disorders aren't diagnosed simply so that people can pay money to get rid of something imaginary, they're diagnosed for the sake of understanding and getting rid of the flaws! :)



cherrycoke
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Joined: 25 Aug 2012
Age: 34
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02 Dec 2012, 8:25 pm

I just want parents to know that it IS a label the child is stuck with for life. My spending lots of money on a medical certificate to be a commercial pilot and failing just because I have the label (no symptoms of aspergers remain, if they ever did exist) is just an example of how sticky it is. I have had this lots of times, I once tried to join the navy, I was just outright rejected there and then in the careers office without any consideration. I tried to join the police, rejection. Fire service, rejection.

I think if my parents were told upfront that the label would stick and follow me everywhere, they would have taken me as far away as possible from diagnostic happy clinicians.