Worried about being told I do not have an ASD

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lyricalillusions
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08 Sep 2012, 6:58 pm

Now that I have health insurance and can get tested for an ASD, I'm worried that I will be told I do not have one or that I will not be taken seriously because of my history with social phobia and agoraphobia. I believe an ASD (specifically Asperger's or PDD-NOS) explains all of my problems. From the developmental delays I had during childhood, to my sensory issues, to my social issues, among other things. Getting a professional to realize this, I feel, will be very difficult. Because of this, I almost expect to be told that I have no ASD at all and my problems are only social phobia and agoraphobia (or avoidant personality disorder and bipolar disorder, which are other diagnoses I've been given). Even though none of those disorders explain all of my problems or my entire life the way Asperger's/PDD-NOS does.

I guess this post is just to vent. I don't really have any questions to ask. I'm just worried about being tested and being told it's all in my mind and I have no problems other than the ones I've been diagnosed with. Or even being told I'm a hypochondriac. Knowing that my diagnoses do not address my childhood problems or my sensory issues, I know there must be something more and I believe that to be an ASD. But getting a doctor to understand that will be difficult, no matter what evidence I present.

If only my mother or father, or some teacher, would have done something when I was a child I'm certain I would have been diagnosed with an ASD at that time. But since I am now an adult, getting a diagnosis will be much harder. I just don't know what I will do if I am told that I do not have an ASD. It's the only thing that fits, unlike everything else I've been diagnosed with, which only fit a bit.


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CrystalStars
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08 Sep 2012, 7:10 pm

If I were anyone but me, I could consider this thread pretty offensive..


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lyricalillusions
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08 Sep 2012, 7:18 pm

CrystalStars wrote:
If I were anyone but me, I could consider this thread pretty offensive..


Why on Earth do you consider my post offensive? Because I'm an adult who has never been tested for an ASD? Because I've been diagnosed with mental disorders?

WHY? Please tell me because I am totally unsure. This post isn't offensive at all. It's all about me and my situation and I don't see why anyone would be offended by it. Please let me know.


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blackcat
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08 Sep 2012, 7:21 pm

i would suggest trying not to stress about it too much. i cant offer any genuinely helpful advice. just...if you are really sure that AS fits, it probably does and you'll likely get that diagnosis.


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blackcat
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08 Sep 2012, 7:21 pm

CrystalStars wrote:
If I were anyone but me, I could consider this thread pretty offensive..


Why?


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eric76
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08 Sep 2012, 7:21 pm

If I was being tested, my concern would be that they might misdiagnose it as something else and start trying to force me to take drugs to "cure" it.



CrystalStars
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08 Sep 2012, 7:24 pm

Re-read my post, OP, I never said I was offended. To me, it seems like you're hoping to be diagnosed with AS so you can justify several issues. Also, you're born with AS, so your chances (at least to my knowledge) of being diagnosed are the same as they would have been if you were a child. I'm going to come off as a jerk (more of a jerk) if I continue with this, so I'll drop it.


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08 Sep 2012, 7:25 pm

I had quite a few of the same fears. Turns out they were unfounded - the psychiatrist who diagnosed me (who had an interest in ASDs in adults), after 4 hours of meetings, said he knew as soon as he met me that I had an ASD. A year later I saw an autism specialist who said he'd never met anyone who "ticked so many boxes and hadn't been diagnosed until they were an adult".

To say I was surprised by both of these reactions is an understatement. I didn't realise I was that obvious ... but apparently if someone knows what to look for ...


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08 Sep 2012, 7:28 pm

Stay strong! Only you know the real you. If you feel AS is the only thing that accounts for ALL of your issues, then it's probably true. I thought nothing much of AS until I really started reading into it.

It seems like you are taking initiative at least. I have to get a diagnosis because my wife is demanding it, which doesn't feel particularly nice...


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eric76
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08 Sep 2012, 7:29 pm

CrystalStars wrote:
To me, it seems like you're hoping to be diagnosed with AS so you can justify several issues.


I don't get that at all, but that he wants to have some basis on which to understand the issues.

In my case, I really hate to go to any doctor because I tend to imagine that whatever symptoms I have will somehow magically disappear when he examines me and then he'll be mad at me for wasting his time.



Last edited by eric76 on 08 Sep 2012, 7:32 pm, edited 1 time in total.

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08 Sep 2012, 7:30 pm

I was afraid of the same thing. AS explained so much of the pain and trouble of my past. I was afraid of not getting the diagnosis because then I would be back to not knowing or understanding what was wrong.

I needn't have worried. My therapist could tell almost by looking. If you feel it fits that well, then you're probably right. And if the first psychiatrist doesn't agree, you can try another. Not getting the diagnosis with the first doesn't mean much, since there are psychiatrists that believe autism isn't even real. /boggled.

If you can, get a psychiatrist who specializes in ASDs. That's what I did. It was a great relief to be have my suspicions confirmed by an expert on the condition.



CrystalStars
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08 Sep 2012, 7:32 pm

eric76 wrote:
CrystalStars wrote:
To me, it seems like you're hoping to be diagnosed with AS so you can justify several issues.


I don't get that at all, but that he wants to have some basis on which to understand the issues.

Fair enough. I guess I'm just a jerk. AS isn't something most people would "hope" to have, either.


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lyricalillusions
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08 Sep 2012, 7:33 pm

CrystalStars wrote:
Re-read my post, OP, I never said I was offended. To me, it seems like you're hoping to be diagnosed with AS so you can justify several issues. Also, you're born with AS, so your chances (at least to my knowledge) of being diagnosed are the same as they would have been if you were a child. I'm going to come off as a jerk (more of a jerk) if I continue with this, so I'll drop it.

I don't understand why you think that my post would be offensive to other people. I don't see why anyone would be offended by my post.

I have a lot of issues that would all be explained by an ASD. All of the problems I've had throughout my life fit into an ASD diagnosis whereas the diagnoses I have now do not cover them.


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08 Sep 2012, 7:34 pm

CrystalStars wrote:
eric76 wrote:
CrystalStars wrote:
To me, it seems like you're hoping to be diagnosed with AS so you can justify several issues.


I don't get that at all, but that he wants to have some basis on which to understand the issues.

Fair enough. I guess I'm just a jerk. AS isn't something most people would "hope" to have, either.


I agree.

I'm not sure why some people seem to have such a yen to be diagnosed with an ASD.


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CrystalStars
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08 Sep 2012, 7:34 pm

lyricalillusions wrote:
CrystalStars wrote:
Re-read my post, OP, I never said I was offended. To me, it seems like you're hoping to be diagnosed with AS so you can justify several issues. Also, you're born with AS, so your chances (at least to my knowledge) of being diagnosed are the same as they would have been if you were a child. I'm going to come off as a jerk (more of a jerk) if I continue with this, so I'll drop it.

I don't understand why you think that my post would be offensive to other people. I don't see why anyone would be offended by my post.

I have a lot of issues that would all be explained by an ASD. All of the problems I've had throughout my life fit into an ASD diagnosis whereas the diagnoses I have now do not cover them.

Not sure...how to snip...so many quotes...
I apologize then, OP.


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lyricalillusions
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08 Sep 2012, 7:41 pm

YellowBanana wrote:
I had quite a few of the same fears. Turns out they were unfounded - the psychiatrist who diagnosed me (who had an interest in ASDs in adults), after 4 hours of meetings, said he knew as soon as he met me that I had an ASD. A year later I saw an autism specialist who said he'd never met anyone who "ticked so many boxes and hadn't been diagnosed until they were an adult".

To say I was surprised by both of these reactions is an understatement. I didn't realise I was that obvious ... but apparently if someone knows what to look for ...



PixelPony wrote:
I was afraid of the same thing. AS explained so much of the pain and trouble of my past. I was afraid of not getting the diagnosis because then I would be back to not knowing or understanding what was wrong.

I needn't have worried. My therapist could tell almost by looking. If you feel it fits that well, then you're probably right. And if the first psychiatrist doesn't agree, you can try another. Not getting the diagnosis with the first doesn't mean much, since there are psychiatrists that believe autism isn't even real. /boggled.

If you can, get a psychiatrist who specializes in ASDs. That's what I did. It was a great relief to be have my suspicions confirmed by an expert on the condition.


I have also had two therapists who brought up Asperger's to me, so that makes me feel a bit better about getting a diagnosis. If they recognized that in me, maybe a psychiatrist that specializes in it will too. I would hope that would be the case.

Yes, i plan on getting tested by someone who specializes in ASD's in adults, or at the very least, someone who specializes in ASD's in general.

I am hoping that I'll be able to get tested a second time if I'm told the first time I do not have one. I just hope my insurance would pay for it again, but they probably won't so I'd have to wait and hope I'd have the money to do it another time.


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