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HisMom
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02 Apr 2014, 12:07 am

I need insights into my 4-yr-old's behavior.

He does not seem to be paying attention to a lot of things, BUT he is able to retrieve his stim toys no matter where they are "hidden". Before you go off on me for "hiding" his toys, this was just an experiment to find out if he was as unaware of his surroundings as he portrays himself to be.

I am not going to get all excited and happy - I have had many "false positives" before with his development - but he has been pretty consistent with ferreting out his toys. Does this mean anything at all cognitively ? Should I start feeling less panicked about his lack of awareness of the world around him ? Help ! !



skibum
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02 Apr 2014, 12:21 am

I am not an expert at all so I don't know if I can give you a real opinion. But I think that the fact that he finds his toys where ever they are shows that he definitely has the ability to figure things out. I don't know if that helps you at all but I think he would have to be pretty smart and resourceful to always be able to find them no matter where you hide them. It might be a cool experiment to get him a Fuzzy Tangle JR and see if he can put it back together when it comes apart.

I would love to teach him to find my husband's glasses! :D


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HisMom
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02 Apr 2014, 12:29 am

skibum wrote:
I am not an expert at all so I don't know if I can give you a real opinion. But I think that the fact that he finds his toys where ever they are shows that he definitely has the ability to figure things out. I don't know if that helps you at all but I think he would have to be pretty smart and resourceful to always be able to find them no matter where you hide them. It might be a cool experiment to get him a Fuzzy Tangle JR and see if he can put it back together when it comes apart.

I would love to teach him to find my husband's glasses! :D


LOL.

I like the idea about the Fuzzy Tangle, but he has zero interest in anything but visually stimming on his toys. That has actually been one of our biggest stumbling block in being able to reach him and that led to the school district labeling him "ret*d". Long story short, he no longer goes to that school. But if he was as "cognitively challenged" as they claim he is, he shouldn't be able to find the hidden toys, right ?

I don't know if I am grasping at straws, but I honestly am beginning to hope that he is "in there", after all. Thank you so much for your positive (and humorous !) response. I just hope I haven't jinxed it and he stops finding them now ! !! !! ! (losing skills right after I talked or posted about them has appened before, unfortunately).



pensieve
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02 Apr 2014, 12:38 am

He's in there. He is not just an empty vessel. I wonder if people thought that about me with my 14 year long selective mutism. She doesn't talk so she's probably not that intelligent.

Sorry. I've just had it from hearing that whole 'lights are on, but no ones home' thing from parents who truly believed their child did not have a personality.

When it comes to special interests in autism it is all we care about. I might have been more higher functioning than your son but I also didn't want to learn things I wasn't interested in, but I showed real skill in those subjects I was interested in learning about.

Even now I seem really self-absorbed because all I care about is my interests, mainly TV shows, writing sci-fi, reading comic books and actual books, and taking photos.


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em_tsuj
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02 Apr 2014, 12:44 am

He has a hard time paying attention, I would imagine. At age four, there is a lot of development that has yet to take place. It is hard for me to explain except saying that autistic people tend to have a one-track mind. We focus on one thing at a time.



Last edited by em_tsuj on 02 Apr 2014, 12:50 am, edited 1 time in total.

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02 Apr 2014, 12:47 am

Well of course he is 'in there', also I remember a lot of teachers told my parents I didn't seem to be paying attention in class but I still retained information...sometimes I still missed things, because my mind did wander but I still did well enough on tests and homework. I don't know that I did much aside from play with toys, or play outside especially in tall grass and eat random vegetables out of the garden when I was 4.


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HisMom
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02 Apr 2014, 12:47 am

pensieve wrote:
He's in there. He is not just an empty vessel. I wonder if people thought that about me with my 14 year long selective mutism. She doesn't talk so she's probably not that intelligent.

Sorry. I've just had it from hearing that whole 'lights are on, but no ones home' thing from parents who truly believed their child did not have a personality.

When it comes to special interests in autism it is all we care about. I might have been more higher functioning than your son but I also didn't want to learn things I wasn't interested in, but I showed real skill in those subjects I was interested in learning about.

Even now I seem really self-absorbed because all I care about is my interests, mainly TV shows, writing sci-fi, reading comic books and actual books, and taking photos.


It's beyond hurtful to be told that he is intellectually challenged and probably never going to do X, Y or Z. It bothers me when school PSYCHO-logists act like they know exactly which kids are going to "make it" and which kids are not. My son doesn't help his case much. At almost 5, he still has very few interests aside from visual stims and music. I am ashamed to admit that I bought into the whole "is he a shell ?" crap before recently. When he showed that he could find his toy NO MATTER WHERE IT WAS HIDDEN, I went hmmmmmm.

Please don't flame me, I truly need feedback from autistic adults. My son is nonverbal and can't tell me what he wants, thinks or feels, so I need others' help to truly understand him and what he is probably capable of.



skibum
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02 Apr 2014, 12:49 am

Aww, I am sure you have not jinxed anything. :)

Your son is definitely in there. Like Pensieve said, he is probably not interested in anything but his toys right now. But don't lose hope. I can imagine this is very difficult and frustrating for your family. But I know that even on this forum, like Pensieve shared, there are people who were like your son who are able to express themselves very well now. I know that we have non verbal members here and they are just as eloquent and insightful as the rest of us and sometimes even more so.

You asked that people not "flame" you. Sorry I don't know what that means. I got visions of blowtorches when I read that. But I don't really understand that reference either. But whatever it means, it sounds very unkind and disrespectful and hurtful so I hope no one would want to to that to you here. I can't imagine that anyone would want to.

But I just want to give you a big hug. I can feel how hurt you have been by this.


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Last edited by skibum on 02 Apr 2014, 12:58 am, edited 2 times in total.

cyberdad
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02 Apr 2014, 12:50 am

HisMom wrote:
I need insights into my 4-yr-old's behavior.

He does not seem to be paying attention to a lot of things, BUT he is able to retrieve his stim toys no matter where they are "hidden". Before you go off on me for "hiding" his toys, this was just an experiment to find out if he was as unaware of his surroundings as he portrays himself to be.

I am not going to get all excited and happy - I have had many "false positives" before with his development - but he has been pretty consistent with ferreting out his toys. Does this mean anything at all cognitively ? Should I start feeling less panicked about his lack of awareness of the world around him ? Help ! !


LOL! this sounds like my daughter when she was your son's age. She had (and still has) a 6th sense for finding her favourite toys when they become grotty and ripped and needed stitching and are hidden away.



HisMom
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02 Apr 2014, 12:55 am

cyberdad wrote:
HisMom wrote:
I need insights into my 4-yr-old's behavior.

He does not seem to be paying attention to a lot of things, BUT he is able to retrieve his stim toys no matter where they are "hidden". Before you go off on me for "hiding" his toys, this was just an experiment to find out if he was as unaware of his surroundings as he portrays himself to be.

I am not going to get all excited and happy - I have had many "false positives" before with his development - but he has been pretty consistent with ferreting out his toys. Does this mean anything at all cognitively ? Should I start feeling less panicked about his lack of awareness of the world around him ? Help ! !


LOL! this sounds like my daughter when she was your son's age. She had (and still has) a 6th sense for finding her favourite toys when they become grotty and ripped and needed stitching and are hidden away.


I don't understand your post.



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02 Apr 2014, 12:56 am

He's definitely "in there," as many others have already said. He may give the appearance of "not paying attention" because he may be doing what I call "going inside one's head" when he feels overloaded with too much sensory input or is frightened or bored by whatever is going on. I do that quite frequently, but just because I go inside my head doesn't mean I'm not aware of what's going on - I'm still present, just not to an extent to which I would feel too vulnerable.

By the way, if you were thinking of getting a fuzzy Tangle Jr (or any kind of Tangle toy for that matter) for your son, I'd say go for it! I have a fuzzy Tangle toy myself (and a plain one on the way) and I can hardly put it down. :D


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skibum
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02 Apr 2014, 1:01 am

HisMom wrote:
cyberdad wrote:
HisMom wrote:
I need insights into my 4-yr-old's behavior.

He does not seem to be paying attention to a lot of things, BUT he is able to retrieve his stim toys no matter where they are "hidden". Before you go off on me for "hiding" his toys, this was just an experiment to find out if he was as unaware of his surroundings as he portrays himself to be.

I am not going to get all excited and happy - I have had many "false positives" before with his development - but he has been pretty consistent with ferreting out his toys. Does this mean anything at all cognitively ? Should I start feeling less panicked about his lack of awareness of the world around him ? Help ! !


LOL! this sounds like my daughter when she was your son's age. She had (and still has) a 6th sense for finding her favourite toys when they become grotty and ripped and needed stitching and are hidden away.


I don't understand your post.
Sounds like Cyberdad is saying that when his daughter's toys got old and tattered and needed mending they would hide them from her and no matter where they hid them she was able to find them just like your son finds his toys.


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skibum
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02 Apr 2014, 1:23 am

Hismom, Something LtPinkCoupe said in her post made me think about this more. I am wondering if the reason why your son may only visually stim with his toys is that he is so incredibly overloaded with sensory input that that is the only way he can keep from exploding. That is how I feel when I have too much sensory overload. He may possibly be focusing on looking at his toys because that might be all his brain can process with all the overload. Almost all of us on the Spectrum know how that can feel. I wonder how he would respond if he had an environment with as little sensory input as you could provide. Maybe turn off the lights, get sunproof curtains, keep sound and movements at a minimum, let him wear only his underwear in case he might be feeling sensory overload from the fabric of his clothes, try not to touch him, things like that. Maybe try that for a few hours and see if anything changes with him. It would be worth seeing if this could help him. And at least it could give you an idea to see if changes in the sensory environment make a difference for him.


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02 Apr 2014, 1:27 am

Just because he looks unaware of most things, and isn't interested in the same, doesn't mean he isn't looking at what's going on.

Plus, his toys are probably something he focuses a lot on, so he'll be putting a lot of brain power into what's happening with them.



HisMom
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02 Apr 2014, 1:28 am

skibum wrote:
Hismom, Something LtPinkCoupe said in her post made me think about this more. I am wondering if the reason why your son may only visually stim with his toys is that he is so incredibly overloaded with sensory input that that is the only way he can keep from exploding. That is how I feel when I have too much sensory overload. He may possibly be focusing on looking at his toys because that might be all his brain can process with all the overload. Almost all of us on the Spectrum know how that can feel. I wonder how he would respond if he had an environment with as little sensory input as you could provide. Maybe turn off the lights, get sunproof curtains, keep sound and movements at a minimum, let him wear only his underwear in case he might be feeling sensory overload from the fabric of his clothes, try not to touch him, things like that. Maybe try that for a few hours and see if anything changes with him. It would be worth seeing if this could help him. And at least it could give you an idea to see if changes in the sensory environment make a difference for him.


Thank you ! I will certainly try this and see if it helps.

His EEG showed spikes in the occipital lobe and I was told that that might be why he stims so much visually - he may be experiencing visual hallucinations, as the occipital lobe is the seat of vision. Either way, his stimming is so overwhelming and excludes every thing else. I think he is so successful at finding his stim toys because he is desperate to visual stim. I don't grudge the stimming per se but I worry because it is all he would do if left to himself, all day long. This is the first time he is actually showing any kind of "thinking" and problem solving by finding his hidden toys.



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02 Apr 2014, 1:36 am

HisMom wrote:
I need insights into my 4-yr-old's behavior.

He does not seem to be paying attention to a lot of things, BUT he is able to retrieve his stim toys no matter where they are "hidden". Before you go off on me for "hiding" his toys, this was just an experiment to find out if he was as unaware of his surroundings as he portrays himself to be.

I am not going to get all excited and happy - I have had many "false positives" before with his development - but he has been pretty consistent with ferreting out his toys. Does this mean anything at all cognitively ? Should I start feeling less panicked about his lack of awareness of the world around him ? Help ! !


You can take this as an anecdote or how you want.

Your son is likely way more aware of the world than you'd believe, my first years until age six I was almost a sentient houseplant. Don't ever let anyone talk about your son as if he isn't there, that was so hurtful to me. I don't know why it did not occur to me that I could have saved my parents so much money and heartbreak if I just talked and interacted but hey I didn't.

He can find his toys because they matter to him, impressing adults doesn't :) I bet as your son gets older you'll find things he cares about and you'll be shocked how he rises to the occasion.

I was far more aware than I showed, just observing.