Nervous about adult Asperger's assessment

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01stanbk
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24 Aug 2012, 5:44 am

I was diagnosed with traits of Asperger's syndrome when i was 7years 10 mouths old.

I have decided as an adult to get officially tested. However know that the letter for my appointment date has come though, i feel physically sick with worry, it's 2 mouths away, but I can not stop worrying about it.

One of my main worries is that they will give me a miss diagnose, my days can vary from very good to very bad. I'm also worried that if I go in on a very bad day I will not be able to explain to them my difficulties and this might lead to them misunderstanding me and giving me a diagnosis of Social anxiety disorder or something which explain some of my traits but not all.

My other worry is that they what a parent to come along. But well, I really don't what my mum to know i'm seeking a diagnosis, I'm really worried about this. How important do people think it is, in receiving an accurate diagnosis, to have your parents there as well?

My other worry, (yes I know i worry a lot), is kind of the un know, what will happen in the test, what kind of things will they ask, what is the format for the test?

If anyone who has been though the test, especially in the UK, or if you are seeking a diagnosis, please let me know your experiences, as I am so worried and really need some re-ashore-hence .



zxy8
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24 Aug 2012, 6:18 am

If you get a wrong diagnosis, or the one you don't want, go to another.

I'm not where you are, but you didn't need a parent here, as long as you could truthfully answer the questions and such.

All I was really asked were questions about my life, and they were also related to various symptoms.



SavageMessiah
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24 Aug 2012, 7:41 am

I'm getting mine soon too. My parents think I'm flat out silly for "getting help" since they believe my life has "turned out fine". I think you'd be able to recall enough about your own development without their help.

Aside from that fear should be natural.. I've never played the patient except when my wisdom teeth were pulled, and even during that I was only under local anesthetic (which caused me to have a panic attack lol). Haven't been on any meds in my life either. However, my wife takes about eight of them for a number of conditions, so I she tells me I might have to suck it up and start taking something. Not a whole lot to look forward to!


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irene
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24 Aug 2012, 8:34 am

01stanbk wrote:
I was diagnosed with traits of Asperger's syndrome when i was 7years 10 mouths old.

I have decided as an adult to get officially tested. However know that the letter for my appointment date has come though, i feel physically sick with worry, it's 2 mouths away, but I can not stop worrying about it.

One of my main worries is that they will give me a miss diagnose, my days can vary from very good to very bad. I'm also worried that if I go in on a very bad day I will not be able to explain to them my difficulties and this might lead to them misunderstanding me and giving me a diagnosis of Social anxiety disorder or something which explain some of my traits but not all.

My other worry is that they what a parent to come along. But well, I really don't what my mum to know i'm seeking a diagnosis, I'm really worried about this. How important do people think it is, in receiving an accurate diagnosis, to have your parents there as well?

My other worry, (yes I know i worry a lot), is kind of the un know, what will happen in the test, what kind of things will they ask, what is the format for the test?

If anyone who has been though the test, especially in the UK, or if you are seeking a diagnosis, please let me know your experiences, as I am so worried and really need some re-ashore-hence .


People above the age of 21 are considered to be adults who do not need to have their parents with them for a diagnosis.

In my opinion that having a bad day could be beneficial for you in that the doctors would be able see and hear for themselves the types of problems that you are having. I don't think that " I will not be able to explain to them my difficulties" really has anything to do with a social anxiety.

For myself I know that my problem is that I am not able to grasp the words that I need to communicate my thoughts. Writing is a bit easier than speaking to someone since I am not expected to finish a thought within 30 seconds. The other day I wanted to post a message on this website which was only 2 sentences but since I couldn't figure out which words to use that would explain my point efficiently within 30 minutes I gave up.

Doctors need to see symptoms to be able to give a correct diagnosis.

Good luck. Let us know the outcome. Thanks.



01stanbk
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24 Aug 2012, 10:41 am

SavageMessiah wrote:
Haven't been on any meds in my life either. However, my wife takes about eight of them for a number of conditions, so I she tells me I might have to suck it up and start taking something. Not a whole lot to look forward to!


From what I know, there isn't any medication for Asperger's syndrome, only for Anxiety and depression, which are common co-morbid conditions with Asperger's, but I won't worry to much about having to start taking meds.

Good luck with your Assessment.



windtreeman
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24 Aug 2012, 11:22 am

SavageMessiah wrote:
I'm getting mine soon too. My parents think I'm flat out silly for "getting help" since they believe my life has "turned out fine". I think you'd be able to recall enough about your own development without their help.


Exactly! I'm in the same position. I love when I ask them if they remember things about my childhood and temper tantrums and they say something like 'temper tantrums...you never had any of those.' I'm glad they've decided to selectively remember me as a great kid despite the many, many temper tantrums I threw. OP, as far as your diagnosis, I want to wish you the best of luck and I'll be in your position within a few months, I suspect. I always wonder though, about psychologists who throw social anxiety tags onto people who suspect they have Asperger's...wouldn't one of many Asperger's symptoms pretty much nullify social anxiety, like over-sensitivity to sound/lights, stimming (do people with SA do that?) and frequent verbal misunderstandings as well as pretty much all of NVLD's symptoms.



SoloDolo
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24 Aug 2012, 11:28 am

You aren't alone. I have been putting off an official diagnosis for over a year.


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SoloDolo
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24 Aug 2012, 11:40 am

You aren't alone. I have been putting off an official diagnosis for over a year.


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Nyrianstark
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24 Aug 2012, 2:59 pm

you aren't alone i am going through this as well ... once i get the letter in the post ..

so you are closer than me :)



KnarlyDUDE09
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24 Aug 2012, 6:11 pm

I'm a teen and I had my diagnostic assessment quite recently. My mum doesn't even think I have AS because she doesn't know much about it, and also because she perceives it to only occur to the extreme, in people- particularly boys. However, I did need her for my developmental history. With her on memories of my childhood, she made enough of an impression on the assessor for him to actually say it's quite possible that I have AS...I also got to hear a lot of things that I didn't know about myself, from what my mum had said.

...I therefore think it's important to have a parent there, as they usually know more about yourself than you do. Also, I'm not too sure about the adult process, but my mum has to have a separate meeting with the Developmental Progress Team (psychologist, psychiatrist, councilor/assessor etc) that carried out the ADOS on me, so they can obtain even more information about me in order to make a diagnosis. - I hope this helps. :)


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24 Aug 2012, 6:38 pm

Do you know who it's with - a psychiatrist or psychologist?

I saw a psychiatrist at first, who rattled through a one hour assessment (as well as wondering about Asperger's, I was very depressed with suicidal ideation and a long history of psychological maladjustment) - he dismissed Asperger's as I'd once played cricket during PE at school, said I had mild depression and sent me on my way with a recommendation for a particular anti-anxiety drug. So I went back to my GP, essentially asking for a second opinion/help, and was passed onto the local mental health team. Saw a CPN and social worker - the 'gateway' people - who passed me onto a psychologist. I saw him for 12 or so sessions - supposedly an hour a time, but we often ran over by 20-30 minutes - and (as well as more general psychological things) he did a fuller assessment including ADOS, EQ/AQ and the WAIS-IV iq test. And from that, the diagnosis.

What I found helpful was to make a note of any symptoms - be it one off moments, or a realisation of wider patterns of behaviour - when I noticed them, which I could then tell him about. I also made it clear - and luckily the psychologist understood - that much of the time my appearance there in front of him was at great effort to be 'with it' enough, which was how I tried to be in public or strange company.

Good luck to anyone going for a diagnosis.



SavageMessiah
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24 Aug 2012, 6:54 pm

01stanbk wrote:
SavageMessiah wrote:
Haven't been on any meds in my life either. However, my wife takes about eight of them for a number of conditions, so I she tells me I might have to suck it up and start taking something. Not a whole lot to look forward to!


From what I know, there isn't any medication for Asperger's syndrome, only for Anxiety and depression, which are common co-morbid conditions with Asperger's, but I won't worry to much about having to start taking meds.

Good luck with your Assessment.


Thanks for your words of encouragement, and good luck to you also.

[I'm aware of "no meds for AS" but I've battled all the co-morbid crap. I'm so forgetful I would be bad with meds. That said, I've become good at making sure my wife gets hers, since I don't want to see her have any more seizures.]


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01stanbk
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25 Aug 2012, 2:39 am

Hopper wrote:
Do you know who it's with - a psychiatrist or psychologist?


I think it's with a Psychiatrist. It is a special Autism clinic, but I'm going to have a travel quite a way to get there, as it's not in my town. (lol another worry, I don't like traveling by train to some where I don't know.)



01stanbk
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25 Aug 2012, 2:51 am

windtreeman wrote:
SavageMessiah wrote:
I'm getting mine soon too. My parents think I'm flat out silly for "getting help" since they believe my life has "turned out fine". I think you'd be able to recall enough about your own development without their help.


Exactly! I'm in the same position. I love when I ask them if they remember things about my childhood and temper tantrums and they say something like 'temper tantrums...you never had any of those.' I'm glad they've decided to selectively remember me as a great kid despite the many, many temper tantrums I threw. OP, as far as your diagnosis, I want to wish you the best of luck and I'll be in your position within a few months, I suspect. I always wonder though, about psychologists who throw social anxiety tags onto people who suspect they have Asperger's...wouldn't one of many Asperger's symptoms pretty much nullify social anxiety, like over-sensitivity to sound/lights, stimming (do people with SA do that?) and frequent verbal misunderstandings as well as pretty much all of NVLD's symptoms.


yes my parents are the same, they seem to forget what I was really like as a child, I remember many shutdowns and zoning out, but my parents just say I was a little quite or shy, but in fact I was compleatly unresponsive. I suppose parents really just what there child to be normal so much that they ignore the abnormal stuff.

But on the plus side, i got my mum to fill in the questionarr they sent me, under the pretense that it was for a medical from my work, which it kind of is, it was my medical assessment for my job who encouraged me to seek a full diagnose. I was surprised, she seemed to answer honestly enough.

As for what you say about the social anxiety thing, that's very true, and I am very sensitive to touch and smell, that even my mum admits that i have always been that way. That is defiantly reassuring. Because I just know I don't have social anxiety, My house mate has it and the reason we both not like going to party's are comepleaty different. She worries none stop about what people think of her, where as i, just can not focus with the noise and I just get really over welled.



davidgolfpro
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25 Aug 2012, 4:55 pm

Go for it.I did this year and have been diagnosed at the best clinic in England. If they diagnose you as not having it, accept it, if it's a diagnosis of HFA or AS then also accept it. They will know and it's extremely unlikely they will misdiagnose.

You had it at 7 and will always have it.



01stanbk
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26 Aug 2012, 8:29 am

davidgolfpro wrote:
Go for it.I did this year and have been diagnosed at the best clinic in England. If they diagnose you as not having it, accept it, if it's a diagnosis of HFA or AS then also accept it. They will know and it's extremely unlikely they will misdiagnose.

You had it at 7 and will always have it.


Thanks for the advice. I know they probably won't misdiagnosis me, I just worry about everything. Did you take your parents to the assessment?