Does anyone have a copy of the proposed DSM-V criteria?

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Filipendula
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25 Nov 2012, 5:57 am

I just tried to visit the APA (American Psychiatric Association) website to review the proposed criteria (as I often do) and it seems they've now taken it down, ahead of publication in 2013.

So I've done a bit of Googling and it looks like pretty much every site that's been sharing or discussing it has either linked directly to the APA website or summarised the criteria into something barely resembling the original draft.

Does anyone know of another website that has published it in full, or have a copy of the criteria that could be posted here (ideally including the severity levels etc.)?

I think now might be a good time to make sure we have it easily available somewhere on WP (or maybe it's already on WP somewhere...?) before even more references to it start to vanish all over the net. There's a good chance the one that gets published in 2013 will incorporate significant changes too and I'm sure many of us will want to compare.

Thanks to anyone who is willing and able to share!


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FalsettoTesla
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25 Nov 2012, 6:09 am

https://sfari.org/news-and-opinion/news ... -disorders

Quote:
An individual must meet criteria A, B, C and D:

A. Persistent deficits in social communication and social interaction across contexts, not accounted for by general developmental delays, and manifest by all 3 of the following:

Deficits in social-emotional reciprocity; ranging from abnormal social approach and failure of normal back and forth conversation through reduced sharing of interests, emotions, and affect and response to total lack of initiation of social interaction.
Deficits in nonverbal communicative behaviors used for social interaction; ranging from poorly integrated- verbal and nonverbal communication, through abnormalities in eye contact and body-language, or deficits in understanding and use of nonverbal communication, to total lack of facial expression or gestures.
Deficits in developing and maintaining relationships, appropriate to developmental level (beyond those with caregivers); ranging from difficulties adjusting behavior to suit different social contexts through difficulties in sharing imaginative play and in making friends to an apparent absence of interest in people

B. Restricted, repetitive patterns of behavior, interests, or activities as manifested by at least two of the following:
Stereotyped or repetitive speech, motor movements, or use of objects; (such as simple motor stereotypies, echolalia, repetitive use of objects, or idiosyncratic phrases).
Excessive adherence to routines, ritualized patterns of verbal or nonverbal behavior, or excessive resistance to change; (such as motoric rituals, insistence on same route or food, repetitive questioning or extreme distress at small changes).
Highly restricted, fixated interests that are abnormal in intensity or focus; (such as strong attachment to or preoccupation with unusual objects, excessively circumscribed or perseverative interests).
Hyper-or hypo-reactivity to sensory input or unusual interest in sensory aspects of environment; (such as apparent indifference to pain/heat/cold, adverse response to specific sounds or textures, excessive smelling or touching of objects, fascination with lights or spinning objects).

C. Symptoms must be present in early childhood (but may not become fully manifest until social demands exceed limited capacities)

D. Symptoms together limit and impair everyday functioning



Filipendula
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25 Nov 2012, 6:14 am

That's brilliant, thanks!! :P

Any chance anyone has the severity levels too? They were on a separate tab on the APA website so I haven't often seen them discussed or reproduced.


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FalsettoTesla
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25 Nov 2012, 6:20 am

I've been looking for the too, but I haven't found them yet.

Personally, I welcome the changes mainly because this criteria fits me better than the current Autism or Aspergers one and I'm not quite sure what PDD-NOS really means. xD

Not that you asked, just making conversation. :)



Filipendula
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25 Nov 2012, 6:31 am

Conversing is Good.

I can see both sides of the debate and my conclusion is that they need to start all over again as soon as this next one is published since there are still so many loose ends and misunderstood or poorly understood aspects of spectrum disorders.

It doesn't really apply to me since I fail to tick enough boxes on the DSM-IV-tr, proposed DSM-V, Gillberg or any other criteria I've looked at. It would be nice if there was a category for people like me, but I guess I do struggle far less than the vast majority of people on WP. If I were to go for a diagnosis of anything, I'd be labelled with garden variety social anxieties and/or mild depression etc. but the reality is that I can clearly see that the issues I do have are directly or indirectly caused by having strong BAP traits so my social anxieties are nothing like typical NT anxieties.


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FalsettoTesla
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25 Nov 2012, 6:48 am

Hmm, I thought that if they were significant enough to cause impairment but kind of, not there enough in some areas or something, you could have a diagnosis of PDD-NOS. Is that a possibility for you?



Filipendula
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25 Nov 2012, 7:16 am

I'd be surprised. It's my own personal assessment that I don't fit the criteria.

For example, where other people have this experience of reading books about ASDs (eg. Rudy Simone's Aspergirls as a good example for females) and finding that they suddenly identify with so much of the book as though it speaks their life, I contrastingly only identify with a few bits here and a few bits there and I have very few of the issues that cause most people so many problems (eg. hypersensitivity to sensory stimuli).

I also think I understand other people just fine, verbally and non-verbally, but I find it hard to subscribe to the appropriate reactions. I can though, I just find it really disingenuous. And my obsessions are there, but they present atypically. My repetitive behaviours are more for fun than to control or make sense of a confusing world. So no, I don't think I struggle clinically in the way that many do, even in the context of PDD-NOS.

My main issue is that I find I identify very strongly with this community in a cultural way. I love it here on WP and I've never been one to spend time on forums before. One of my main issues in real life is that I have never felt a sense of belonging anywhere, and now I think I understand why. However, I've never felt completely alien either, I did have the odd friend and was never bullied to any noticeable degree. It would just be nice for me to be able to say "I am an ...", because that feels incredibly important to me for some reason and would do my self esteem wonders and help me explain why I am me in a really positive way. But as things are currently, diagnosis is all about ability to function with neurotypicals and not about feeling at one with the world or one's self.

Sorry, that's quite long and off topic. I think I got carried away... :roll: :lol:


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25 Nov 2012, 7:19 am

FalsettoTesla wrote:
https://sfari.org/news-and-opinion/news/2012/proposed-dsm-5-criteria-for-autism-spectrum-disorders

Quote:
An individual must meet criteria A, B, C and D:

A. Persistent deficits in social communication and social interaction across contexts, not accounted for by general developmental delays, and manifest by all 3 of the following:

Deficits in social-emotional reciprocity; ranging from abnormal social approach and failure of normal back and forth conversation through reduced sharing of interests, emotions, and affect and response to total lack of initiation of social interaction.
Deficits in nonverbal communicative behaviors used for social interaction; ranging from poorly integrated- verbal and nonverbal communication, through abnormalities in eye contact and body-language, or deficits in understanding and use of nonverbal communication, to total lack of facial expression or gestures.
Deficits in developing and maintaining relationships, appropriate to developmental level (beyond those with caregivers); ranging from difficulties adjusting behavior to suit different social contexts through difficulties in sharing imaginative play and in making friends to an apparent absence of interest in people

B. Restricted, repetitive patterns of behavior, interests, or activities as manifested by at least two of the following:
Stereotyped or repetitive speech, motor movements, or use of objects; (such as simple motor stereotypies, echolalia, repetitive use of objects, or idiosyncratic phrases).
Excessive adherence to routines, ritualized patterns of verbal or nonverbal behavior, or excessive resistance to change; (such as motoric rituals, insistence on same route or food, repetitive questioning or extreme distress at small changes).
Highly restricted, fixated interests that are abnormal in intensity or focus; (such as strong attachment to or preoccupation with unusual objects, excessively circumscribed or perseverative interests).
Hyper-or hypo-reactivity to sensory input or unusual interest in sensory aspects of environment; (such as apparent indifference to pain/heat/cold, adverse response to specific sounds or textures, excessive smelling or touching of objects, fascination with lights or spinning objects).

C. Symptoms must be present in early childhood (but may not become fully manifest until social demands exceed limited capacities)

D. Symptoms together limit and impair everyday functioning


this is not the latest proposition… the latest version was presented AND explained for the IACC Full Committee (click) Meeting in july 2012.

[youtube]http://www.youtube.com/watch?v=PAQp2aNm2T4[/youtube]



Filipendula
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25 Nov 2012, 7:53 am

Wow. That was really interesting, thanks. And it made the proposed changes look a lot more positive for people generally than what I've come across so far.


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FalsettoTesla
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25 Nov 2012, 7:55 am

I see. Well, good thing we let all sorts on here. :P Hence all the BAP topics? This makes sense.

I know personally I am not great (or even good) at self-analysis. I have little idea where I fit, what I fit, etc. Quite a lot of people think I do fit the profile of ASD. I would say probably Aspergers, but I had very impaired self-help skills, so who knows. My university is helping me get a referral for a diagnosis, so we will see.

Aspi-rant. Thanks for the video contribution. I'll have a look at that when I have the attention span, and bandwidth, for a twenty minute video. xD



Filipendula
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25 Nov 2012, 8:19 am

FalsettoTesla wrote:
I would say probably Aspergers, but I had very impaired self-help skills, so who knows.


Impaired self-help seems to be fairly common for Aspergers too.

The video was worth watching and not so very intense (I just paused every now and again to give myself a chance to read the slides more slowly) assuming you can get it to stream, it gave a good qualitative view of the objectives of the changes.


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25 Nov 2012, 8:37 am

Filipendula wrote:
FalsettoTesla wrote:
I would say probably Aspergers, but I had very impaired self-help skills, so who knows.


Impaired self-help seems to be fairly common for Aspergers too.


How impaired? Like, when would one be reasonably expected to know how to dress yourself, preform personal grooming tasks, feed yourself, etc. etc?



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25 Nov 2012, 9:39 am

I still am confused though.

Will we with an Asperger's diagnosis have to get re-evaluated so that we can then be called ASD? Or does the fact that we were diagnosed with Asperger's automatically make us ASD?

In other words, will my psychologist have to sit down and re-test me in order to call me ASD level (whatever) or will they just change the coding on my paperwork?

This really concerns me, as we know that I'm autistic but don't necessarily have the money to pay for another test just to re-confirm what we already know and change the silly name.

I mean, that's a heck of a lot of people that would need to be re-tested then just to change the name of their diagnosis.



Last edited by EstherJ on 25 Nov 2012, 9:44 am, edited 1 time in total.

Filipendula
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25 Nov 2012, 9:41 am

FalsettoTesla wrote:
Filipendula wrote:
FalsettoTesla wrote:
I would say probably Aspergers, but I had very impaired self-help skills, so who knows.


Impaired self-help seems to be fairly common for Aspergers too.


How impaired? Like, when would one be reasonably expected to know how to dress yourself, preform personal grooming tasks, feed yourself, etc. etc?


Well, as far as I've understood it and by current diagnostic standards, the only *necessary* difference between autism and Asperger syndrome is a delay in language development, though I'm aware that interpretations can vary. But given that that's the case by one common interpretation at least, it makes actual self-help abilities irrelevant. So I assume it's perfectly possible to be low functioning in that area and receive an Asperger diagnosis if you are verbally high functioning. I'm sure someone will correct me shortly if I'm wrong about that.

Are problems with self help to do with motor coordination, executive function or other?


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Filipendula
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25 Nov 2012, 9:59 am

EstherJ wrote:
I still am confused though.

Will we with an Asperger's diagnosis have to get re-evaluated so that we can then be called ASD? Or does the fact that we were diagnosed with Asperger's automatically make us ASD?


I know I saw this question tackled somewhere reputable, but I can't remember where or find a reference right now. However, I'm almost certain they said that old diagnoses would still be valid and that they would be recognised under the umbrella of Autistic Spectrum Disorders. But I'm not 100%, maybe someone else with a better memory saw the same thing I did?


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25 Nov 2012, 10:02 am

Filipendula wrote:
My main issue is that I find I identify very strongly with this community in a cultural way. I love it here on WP and I've never been one to spend time on forums before. One of my main issues in real life is that I have never felt a sense of belonging anywhere, and now I think I understand why. However, I've never felt completely alien either, I did have the odd friend and was never bullied to any noticeable degree. It would just be nice for me to be able to say "I am an ...", because that feels incredibly important to me for some reason and would do my self esteem wonders and help me explain why I am me in a really positive way. But as things are currently, diagnosis is all about ability to function with neurotypicals and not about feeling at one with the world or one's self.
You can. Diagnosis IS for the purposes of treatment, but there are culturally autistic people who, for some reason or another, are below the diagnostic threshold but still share common experiences, cognitive styles, and a cultural identity with diagnosably autistic people. Autism has given rise to a culture of its own. It's like deaf vs. Deaf; the capitalized word refers to a culture, which you can be a part of even if you can hear.


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