In denial for 15 yrs after being diagnosed with Aspergers

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Kokibro
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25 Nov 2012, 8:41 pm

I have been in denial for 15 years after being diagnosed by a Psychiatrist with Aspergers Syndrome.

It has taken me 15 years to finally acknowledge, and to begin to accept having been officially diagnosed with Aspergers Syndrome.

I think the reason it took so long for me to accept this diagnosis, was that I didn't want to believe I had some type of mental illness and the stigma and label that it would bring.

It was easier to be in denial and just pretend that I was a normal average guy.
After all I was a master at pretending to be normal as I had almost perfected it, or so I thought.

I had a good job, a wife, kids, own home, friends, a high position role with my Church, so on the outside things looked ok. But on the inside things were not ok.
My own definition of someone with Aspergers Syndrome/mental illness was very naive and black and white due to ignorance. I was successful and functioning well in society, I wasn't on medication, I didn't look or act crazy. Sure I realised we are all different and I had some idiosyncrasies, but I didn't have a benchmark to compare it with because I had never been anybody else before, just myself, me.

It wasn't until I stumbled upon this website that I realised maybe I was different. And the fact my 28 year old son was living with me for the last 2 weeks that I had observed some mannerisms/behaviours in him that I did myself. It was like looking at him and seeing my reflection.

My Son cuts off all his clothing tags, like my Dad did and I do also. My Son has an unusual walk without swinging his arms very much, that 'blank' stare, he doesn't talk while eating and zones out. His communication skills are not the best. His monotone voice and lack of facial expressions. Difficulty looking people in the eye when talking.
All these behaviours were an epiphany and awoke me from my fake Neurotypical trance, and made me ask myself the question.

What if my Psychiatrist all those years ago was correct?

He was, and is.


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blue_moon666
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25 Nov 2012, 8:54 pm

Mental illness? Sure we may need a little therapy to learn how to socialize, but I'm not sure that qualifies as a "mental illness." Even if it did, why would you care?

There are people who are able to live productive lives with all sorts of mental conditions. I know people who have schizophrenia and have gotten the necessary help. I also know people who are in denial and have not seen any specialists. Guess which of those two groups are in better shape...



Last edited by blue_moon666 on 25 Nov 2012, 9:18 pm, edited 1 time in total.

hartzofspace
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25 Nov 2012, 9:05 pm

Better late to acceptance than never, IMO! Now comes the work of redefining yourself. Have fun! :)


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littlelily613
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25 Nov 2012, 9:43 pm

Aspergers isn't a mental illness, so it doesn't come attached with that stigma (not that any mental illness should have a stigma attached to it). I am glad you are finally starting to accept who you are! :)


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helles
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26 Nov 2012, 2:38 am

There are lots of people with late diagnosis around here and also a lot of people who have known since they were small kids. I just learned about my AS this year and I am learning lots from this page, also from the ones who have been diagnosed as children. They are often more aware of how the traits work in children.


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RaNg84
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26 Nov 2012, 6:44 am

It can be tough to be different. Truth is people on the Spectrum are thought to be almost less then human, which we know is not true at all.



lonelyguy
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26 Nov 2012, 7:26 am

I was diagnosed at 24yrs old..and must admit i still struggle to accept it..because it is a label that most people don't understand but it is not a mental illness i think when you get diagnosed later in life you can struggle to come to terms that you have a condition that you have had for most of your life!....and it is not that easy to accept for some people....me included...so understand where you are coming from.



Kokibro
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27 Nov 2012, 10:50 am

blue_moon666 wrote:
Mental illness? Sure we may need a little therapy to learn how to socialize, but I'm not sure that qualifies as a "mental illness." Even if it did, why would you care?

There are people who are able to live productive lives with all sorts of mental conditions. I know people who have schizophrenia and have gotten the necessary help. I also know people who are in denial and have not seen any specialists. Guess which of those two groups are in better shape...

Mental illness wasn't the correct word..my bad. I was coming from the prospective of an ignorant/naive person who lumps all thought 'disordered people, Autistic Spectrum, Mental illness, Learning difficulty etc' anything to do with the brain because that's what ignorant/naive people think we are...crazy.

Nice point about 'Guess which of those two groups are in better shape?
I was in that group of denial and had not seen any specialists. But I took the
red pill = Truth
blue pill = Denial - The Matrix

hartzofspace wrote:
Better late to acceptance than never, IMO! Now comes the work of redefining yourself. Have fun! :)

Yes exactly, redefining myself...sounds interesting! Maybe I should have taken the blue pill and cruised along the Denial highway :)

littlelily613 wrote:
Aspergers isn't a mental illness, so it doesn't come attached with that stigma (not that any mental illness should have a stigma attached to it). I am glad you are finally starting to accept who you are! :)

Yes cheers for that, acceptance, accept myself!

helles wrote:
There are lots of people with late diagnosis around here and also a lot of people who have known since they were small kids. I just learned about my AS this year and I am learning lots from this page, also from the ones who have been diagnosed as children. They are often more aware of how the traits work in children.

Yes they have had a head start if they acknowledged it in childhood. I have had 2 x 10yr+ long marriages to NT's so I learn't to 'fake it till I make it'. Now I just have to explore.

RaNg84 wrote:
It can be tough to be different. Truth is people on the Spectrum are thought to be almost less then human, which we know is not true at all.

Yes, as I posted in the first reply above. They just lump us all together as 'nut-job wacko's - For I was once one batting for the other team ;)

lonelyguy wrote:
I was diagnosed at 24yrs old..and must admit i still struggle to accept it..because it is a label that most people don't understand but it is not a mental illness i think when you get diagnosed later in life you can struggle to come to terms that you have a condition that you have had for most of your life!....and it is not that easy to accept for some people....me included...so understand where you are coming from.

I'm just happy that I can start accepting it, and getting to know how I function and why?
It's kind of a big relief.


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Callista
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27 Nov 2012, 1:12 pm

blue_moon666 wrote:
Mental illness? Sure we may need a little therapy to learn how to socialize, but I'm not sure that qualifies as a "mental illness." Even if it did, why would you care?
Semantics, really: But, yes, a better term for it is "neurodevelopmental disorder", or just "developmental disorder". A person with autism has a healthy brain that developed differently and is structured differently, causing disability. Autism is more like dyslexia than it is like depression; a physical example, more like (hereditary) dwarfism than like diabetes. So that means the best approach is to teach useful things that allow you to live as a healthy, happy autistic person in a world mostly made for non-autistic people. You accommodate for the deficits, use the talents, and generally go on with your life.

It will help your son to have a parent who also has autism, because you will be able to understand some of the things he experiences. He will share many traits with you--of course, he's his own person, and he'll probably have some that are wildly different, but the similarities will still be helpful. It will allow you to advocate for him more effectively, especially when they try to push him to "fake normal" instead of doing things in his own style, in ways that work for him. You've been "faking normal" for a long time yourself, and you know it doesn't work, so you can make a good case that your son should be allowed to be himself and learn how to deal with autism in a way that works for him, instead of by pretending he's not autistic.

Do visit the parents' forum. The people there have quite a few useful tips. Most of their children aren't grown, but it's not like you can't participate.


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Curiotical
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27 Nov 2012, 2:05 pm

I'm glad to hear that you now accept that you're an Aspie. We are not "ill" or "diseased", we are merely different.


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Kokibro
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27 Nov 2012, 3:26 pm

Callista wrote:
blue_moon666 wrote:
Mental illness? Sure we may need a little therapy to learn how to socialize, but I'm not sure that qualifies as a "mental illness." Even if it did, why would you care?
Semantics, really: But, yes, a better term for it is "neurodevelopmental disorder", or just "developmental disorder". A person with autism has a healthy brain that developed differently and is structured differently, causing disability. Autism is more like dyslexia than it is like depression; a physical example, more like (hereditary) dwarfism than like diabetes. So that means the best approach is to teach useful things that allow you to live as a healthy, happy autistic person in a world mostly made for non-autistic people. You accommodate for the deficits, use the talents, and generally go on with your life.

Yes I agree.
'Developmental disorder' is the easiest to remember thanks.

I've been faking a lot of things all my life. Got 'faking normal' down so good I could have won an oscar :jester: Lived with 2 x NT wife's they didn't suspect (they were my personal NT trainers :) Although I did do the 'rocking back an fourth thing' once in the early stages and got s**t for that, never did that again ever. Ran a shift for 5 years dealing with middle management and staff before I ran my home based importing business. Was second in charge of a Christian Religious organisation.
Then things started falling apart when I didn't have enough people around to correct myself, I regressed back into AS. (I'm not sure on that I'm still learning).

I'm just giving examples of working with a variety of different people from all walks of life.

I've probably developed lots of different persona's, and can empathize with each one as most groups of people consider themselves a minority. (As I have thought I belonged in almost all of the groups at sometime or another in my life) Except the Prostitute section, no one will pay me but I'm working on that :P

Below are some generalizations of mine: These are only my personal opinions
Bosses - Workers = Conflict
Christians/Religion etc - Atheists = Conflict
Developmental Disorders and/or Mental illness - People scared of my Bi-Polar/AS/ADD Son
Prostitutes (legal in NZ) - Most people = Conflict
Bum (present Occupation) - Bosses and workers, kids = Conflict
Drug Addicts/Drunks - Sober/Clean people = Conflict
Family Man/Woman - Singles = Conflict
Transgendered/Homosexual etc = A lot = My best friend's been visiting me for 2 yrs and they don't know she's really a born male ;)
Europeans - Blacks, Asians, Jews... misc = Conflict. A constant problem in my Country, and even in my own home - If Racism is too big a dirty word for you, call it Discrimination (while our kids hear the 'c**t' word and 'f**k' word all over the media. (Check your child's Facebook, Phone or TV right now?)

This is our world, I'm merely reporting my reality. I'm trapped in it too, I'm just acknowledging it exists. Isn't that what this websites about? Learning, Acceptance, Sharing ideas, opening our hearts and minds etc.

I kind of got a bit off track...I have been told I'm passionate I hope not in a Charlie Sheen way lol. Yes I am sober and clean today.
Have a great day everyone :)

It will help your son to have a parent who also has autism, because you will be able to understand some of the things he experiences. He will share many traits with you--of course, he's his own person, and he'll probably have some that are wildly different, but the similarities will still be helpful. It will allow you to advocate for him more effectively, especially when they try to push him to "fake normal" instead of doing things in his own style, in ways that work for him. You've been "faking normal" for a long time yourself, and you know it doesn't work, so you can make a good case that your son should be allowed to be himself and learn how to deal with autism in a way that works for him, instead of by pretending he's not autistic.

Your right there about my Boy relating to me about AS, I observed him doing the whole list of traits for AS. We even took the online AS quiz together and that verified what we already knew. My Son has it way tougher than me, he literally believes he's dying 'Hypochondria' plus his other DX's bundled. Plus I can think outside the square, he 'lives outside the square'. After the test we were both walking around like NT military soldiers swinging our arms wildly :lol:
I don't know why people fear my Son, (he is 6ft 5 inches tall and would crush me like a cockroach) He has never harmed anyone ever, and has no criminal record which is better than me. He is half standing next to me in the pic upload section.

Do visit the parents' forum. The people there have quite a few useful tips. Most of their children aren't grown, but it's not like you can't participate.


I will its quite hard parenting alone with no one to bounce ideas off, thanks goodness for this website and feedback.


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