Why are so many aspies against medical research in Asperger?

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I was talking to some fellow Aspies about volunteering for medical research in Asperger, and all of them seem to very much opposed to it. I am talking about EEG, MRI, or blood and tissue sample type research.

I would be happy to help in such research, and don't get the strong opposition.

Many object to "being tested"

Its kind of intrusive

However if it leads to dx methods above the bs of DSM - its a good thing

Think of this:
* What is the the (supposed) purpose?
* Who decided the purpose? and what kind of bias do these people have?
* What is the point with investigation into something that likely won't change?
* Personal data will be exposed.. you didn't use any Microsoft product did you?
* For what purpose will the results be used? to lobby lawmakers into rubbish?

So people consider you as a weird anomality wants to perform tests on you that may hurt for the purposes that may diementral to your life in the long run. No wonder people will refuse.

The purpose is likely to find a cause or some kind of treatment or cure, or simply to study how an autistic mind works.

I don't wish to be cured. It's not us who needs to be cured. NTs need to be cured of their Austin Speaksish attitudes.

I also don't wish to be treated. I'm a person, not a guinea pig.

I don't mind being studied, but I don't want to be "cured." The good points of my autism outweigh the bad.

EEG and MRI are fine, but I don't want to give anyone blood or tissue samples. A team of doctors wanted to do a clinical case study on my medical problem once, but I refused.

I'm trying to find the "good" in my disability, so yes, I don't want to be cured. Treatment? Maybe, if it actually helps me and isn't just along the lines of "We'll get you to look normal, even if that means you have to work hard all the time."

I have better things to do then be someones lab pet, if something bad was found on top of what I know of my drivers permit for example could be pulled, eg. new eplilpsy activity, i've refused for this reason before, better to let sleeping cats lie. And what for? free parking passes at the hospital and to help a cure I don't want or need anyway. I've spent more then my fair share of time at the hospital and I can't say I want to go back again, I hate EEGs with that jelly stuff they stick in your hair.

I want to know how my mind works, but I don't want to be cured, and I'm fearful that research into understanding our minds will be used to try to cure us.

I have the same opinion.

I had a neuropsychiatrist who said "Don't worry, I'm not treating you as a subject." My response was "Don't worry, I'd love to be a subject in published research."

I don't get it. All the people who are against cures, I hope you all have jobs. Because, if not, I'm not sure why you feel entitled to be a dead weight on society because of your condition, if it's reversible. You are violating our collective rights as a society by consciously choosing not to be productive for dumb reasons.

Not wanting to be a victim of 'invasion of the body-snatchers' is a dumb reason?

And being unemployed doesn't mean you aren't giving anything to society. There are a lot more ways to give to others, that don't get you a paycheck.

Besides, many more AS people are employable than are actually employed. You don't need to cure AS to increase the employment rate of AS people.

I am going to be recruiting autistic people for a study soon, so I hope that not all autistic people in my area are against research into autism (cognitive/neuro, non-invasive, no body snatching).

I rather don't say anything to it...!
Because reading sentences like this just make me mad!