Went to another meeting last night - another bloody failure

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Tequila
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01 Feb 2013, 6:32 am

This follows on from an earlier thread where I talked about meeting different people with autism/Asperger's.

I went along to another group for people with learning disabilities, and yet again I had little in common with some of the people there. Yet again I failed to connect with anyone on my life and yet again I considered it to be a waste of time. What made it ever so slightly more unbearable was that the place was completely dry and they had a bar inside there as well and the drinks were little more than flat coke and concentrated orange juice! About ten minutes in I wished I was in the bar next door. They were doing Valentine's cards and, as I had no-one to give them to, I declined to participate. My mother suggested doing one to my three-year-old niece (!), at which point that I curtly informed her that Valentine's Day is about romantic love, and I'm not a nepiophile. And since I couldn't very well write one to a woman that I am chasing, because otherwise it would look like I was coming on too strong (I have something else lined up for her), I simply sat there and tried to make conversation as best I could.

None of the people were really for me (and I ran into a gentleman with learning disabilities who threatened to punch my lights out whenever I opened my mouth), and if it was any more crowded in that little tiny space I was in I could have been in Monaco.

I'm glad I was with my mum and I could get out of there quickly. I then went to a pub for some beer instead.

Anyone else have difficulty at these social meetings?



Surfman
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01 Feb 2013, 7:09 am

It always surprises me how bad some aspects usually are.

Things like crowded small rooms, or super noisy rooms, like the meeting hall at AutismNZ
Unbearable and the worst I ever experience, and this is a support meeting for autistics, in a very noisy space.

maybe if you had a few beers before hand it may have been funnier
a crazy scotsman [who i balled out for being a danger in the water] threatened to hit me 3 days ago



jk1
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01 Feb 2013, 8:15 am

I've never attended such meetings yet or even met anyone who is known to have AS/autism in real life.

Hearing stories like that is really disappointing and discouraging. I was thinking maybe I could finally make a true friend in such gatherings sometime in the future.

Any way, it's good to know what to expect. Thanks for your story.



CyclopsSummers
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01 Feb 2013, 9:22 am

jk1 wrote:
I've never attended such meetings yet or even met anyone who is known to have AS/autism in real life.

Hearing stories like that is really disappointing and discouraging. I was thinking maybe I could finally make a true friend in such gatherings sometime in the future.

Any way, it's good to know what to expect. Thanks for your story.


It can be hit and miss, really. In the last couple of months that I visited my local autistic meeting, I felt kind of bored and jaded with the whole thing, and yes, I also failed to connect to the (newer) people. Then, there were a couple of people I thought I connected with wonderfully, but in the end, something would come up that kind of soured my impression I had of them. Nevertheless, I've also had some great experiences over there. Some of the people there were genuinely interested in making friends with me, but it was I who held them at a distance.

All the same, I'm sorry you had such a disappointing time at yet another meeting, Tequila. As you mention, accomodations and atmosphere can make or break this kind of thing (the room, the drinks, etc.). If you're still interested in autism/disabilities get-togethers, don't let this one discourage you from continuing your search. I sometimes fail to connect to people when I go to an event that revolves aroud my hobbies or special interests, so it's not an uncommon thing to happen.


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Tequila
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01 Feb 2013, 9:39 am

jk1 wrote:
I've never attended such meetings yet or even met anyone who is known to have AS/autism in real life.

Hearing stories like that is really disappointing and discouraging. I was thinking maybe I could finally make a true friend in such gatherings sometime in the future.

Any way, it's good to know what to expect. Thanks for your story.


Oh, don't get me wrong; most of these meetings are a massive disappointment (and are very noisy to boot, which makes it difficult to follow a conversation), but some of the others can be pretty good if you can manage to click with someone.



animalcrackers
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01 Feb 2013, 12:42 pm

Tequila wrote:
Anyone else have difficulty at these social meetings?


I went to a support group for people with HFA/AS a couple of times. It seemed like a great setup for a lot of people but it wasn't for me for a coupla reasons.

The flourescent lights and closeness to other people (couldn't move much without banging into somebody) were really hard to take....plus, I can't follow an extended conversation with multiple participants -- it makes my head feel like the sound of a tin can filled with nuts and bolts being shaken repeatedly.

Also, it was a very structured and facilitated discussion with an agenda and I dunno...I can't really sit still for an hour at a time and I guess I would rather be in a room full of socially awkward people who are mostly not talking to each other or who are talking in disjointed and socially awkward but more natural-seeming ways than in a support group that reminds me of a staff meeting.


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01 Feb 2013, 2:17 pm

A gentlemens club arrangement with satelite grouping of easy chairs
loungers, soft uplights, heavy drapes and carpets, plus padded furniture would make a cosy and quiet place perfect for autistics to socialise

Another important issue is self imposed pack leaders amongst the group of auties.
They often spoke at length over others in the group
One loved speaking but was poor at listening, which drove me a little testy jack russell terrier

The 2 at autism NZ were alright, probably better than I, but I hate being part of someones managed flock, being the goat that I am.



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01 Feb 2013, 3:12 pm

One hopes this situation will improve as more Aspies "take the reins" of Aspie support/social groups.


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nessa238
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01 Feb 2013, 6:31 pm

Tequila wrote:
This follows on from an earlier thread where I talked about meeting different people with autism/Asperger's.

I went along to another group for people with learning disabilities, and yet again I had little in common with some of the people there. Yet again I failed to connect with anyone on my life and yet again I considered it to be a waste of time. What made it ever so slightly more unbearable was that the place was completely dry and they had a bar inside there as well and the drinks were little more than flat coke and concentrated orange juice! About ten minutes in I wished I was in the bar next door. They were doing Valentine's cards and, as I had no-one to give them to, I declined to participate. My mother suggested doing one to my three-year-old niece (!), at which point that I curtly informed her that Valentine's Day is about romantic love, and I'm not a nepiophile. And since I couldn't very well write one to a woman that I am chasing, because otherwise it would look like I was coming on too strong (I have something else lined up for her), I simply sat there and tried to make conversation as best I could.

None of the people were really for me (and I ran into a gentleman with learning disabilities who threatened to punch my lights out whenever I opened my mouth), and if it was any more crowded in that little tiny space I was in I could have been in Monaco.

I'm glad I was with my mum and I could get out of there quickly. I then went to a pub for some beer instead.

Anyone else have difficulty at these social meetings?


Do you have learning disability yourself?

Was the group for people with autism and a learning disability or just learning disabled people
without autism?

You don't come across as if you have a learning disability

I set up and ran an autism support group for a while but gave it up as it got so annoying and stressful

I was very good at the organising but the people side of it I just don't have the tolerance for

so I don't do group socialising or aspire to doing it any more

I get my group interaction by going to organised events like NHS consultations, a mental health 'make a difference' group where and a patient reference group at my local doctors practice. It's all about giving opinions and gaining knowledge ie things I enjoy and am good at as opposed to trying to entertain a group of people with my personality, which is hard and stressful for me



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01 Feb 2013, 6:50 pm

I reckon if social stuff is your thing and you have an ASD, it'd be better to go to some place that's related to your interest; it's nothing out of the normal for you to lecture on about your subject of interest at said places (it'll probably bring positive attention).



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01 Feb 2013, 8:45 pm

I usually didn't like social groups or support groups when I was younger, and I attended a lot of them. Then there was an ASD support group at my uni which I really enjoyed . I do have issues with crowded noisy places though so I don't think I could handle the one you went to. Support groups can be smaller and less crowded.



auntblabby
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01 Feb 2013, 11:26 pm

i am due to attend my regular bimonthly aspie meetup tomorrow noonish. it is a small group, generally [dependent upon attendance] of between 5-8 members, small enough to where it isn't a noisy crowd, with some roberts rules of order sensibility to it. i've been with them for 2 years now. :o tempus fugit :bounce:



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02 Feb 2013, 2:18 am

A small industrial unit 2000 sq ft is around $1000 a month in Auckland
100 autistic members at $10 a month
free pool and darts, pot-luck dinners and home-brew beer and wine, free internet and decent meals at good prices
movie nights and talks and entertainment

could be a beautiful thing
I'm thinking in bigger cities a good business could be pioneered.....
autism social clubs



nostromo
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02 Feb 2013, 5:34 am

Surfman wrote:
It always surprises me how bad some aspects usually are.

Things like crowded small rooms, or super noisy rooms, like the meeting hall at AutismNZ
Unbearable and the worst I ever experience, and this is a support meeting for autistics, in a very noisy space.

On a semi-related note, as my son has Autism he gets tickets to the Special Kids Christmas party that they run in various cities in NZ in December, and of course its very loud, chaotic and crowded, so naturally we don't take him (we tried once only) as he hates it.
This year I took my non-SN daughter instead because she loves that sort of thing, and it was interesting observing all the different kids and different disabilities, but the only obvious Autie I saw was quite distressed poor kid.



Tequila
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02 Feb 2013, 7:44 am

AgentPalpatine wrote:
One hopes this situation will improve as more Aspies "take the reins" of Aspie support/social groups.

I hope so too.

nessa238 wrote:
Do you have learning disability yourself?

No, I don't.

nessa238 wrote:
Was the group for people with autism and a learning disability or just learning disabled people without autism?

It is a group that meets every week for people with both learning difficulties and people with autism spectrum disorders. Most of the people there have learning disabilities, but there were a few people - including a woman - who had Asperger's but I didn't get chance to talk to her. Honestly, it was very crowded where I was and difficult to get to talk to people anyway.

Actually, my support worker was there as well, so it was a chance to talk to her for a bit as well. I think she was 'supporting' another bloke there as well. I talked to him for a while and he loved movies. His favourite film was Die Hard. I suggested he check out Hard-Boiled.

nessa238 wrote:
You don't come across as if you have a learning disability

That's because I don't, dear. ;)

nessa238 wrote:
I set up and ran an autism support group for a while but gave it up as it got so annoying and stressful

Oh, I'm sorry to hear that.

nessa238 wrote:
but the people side of it I just don't have the tolerance for

Especially as a lot of the people at it can be, erm, somewhat unbearable.

nessa238 wrote:
I get my group interaction by going to organised events like NHS consultations, a mental health 'make a difference' group where and a patient reference group at my local doctors practice. It's all about giving opinions and gaining knowledge ie things I enjoy and am good at as opposed to trying to entertain a group of people with my personality, which is hard and stressful for me

Good for you. Great stuff.

Dillogic wrote:
I reckon if social stuff is your thing and you have an ASD, it'd be better to go to some place that's related to your interest; it's nothing out of the normal for you to lecture on about your subject of interest at said places (it'll probably bring positive attention).

Not easy to do that, unfortunately, given my interests.



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02 Feb 2013, 2:10 pm

I'm going to clock up some hours each week down at the skatepark
Its perfect
If someone annoys you, you drop your board and skate-off
When you want to talk you skate-up to someone and say something skatey
One problem-staring parents with anxious expressions, waiting for their childs interest in skating to wane
Its fun being around kids having fun
and really trying hard to land jumps
it develops a consciousness of its own
and you can lose your worries in the collective hum of pure physical activity

Its like a big sand pit full of fun loving nutters, quite therapeutic

Many half breed guys at the skatepark are super athletic and super healthy and skate their inner autistic honky into shape, lucky them and good motivators for me to get my inner autistic honky into shape too.....

Skating can teach some autistics a great deal.... sharing, patience, balance, safety, perfection thru repetition, hard lessons, learning to fall properly,.....

maybe more than a 'support group' making valentines day cards? that would freaken drive me batty