Pain, on a scale from 0 - 10
Ok, so I was reading another thread and this was posted:
I don't like those papers they give out that ask people to rate their pain 1-10. It just blows my mind so i usually pick 3, as i love number 3
I don't love the number 3, but I have a hard time picking anything above a 6. In fact, the only time I've responded with above a 6 was a kidney stone (7)...I reserve 8 9 and 10 for really painful things that I am yet to experience.
Then you take my wife. I pinch her arm and on a scale of zero to 10, it's an 11.
The reason I ask, is lets say I have an ear infection (which I get quite a bit). I rarely feel them at all, but when I do, they shoot to a 6 immediately....and they wipe me out really quickly. But I go to the doctor and they ask if it hurts, and I tell them a 6, and they act like it's no big deal.
For me, 0-5 are things I do to myself. Hell, I could probably perform mild surgery on myself as long as I do breathing exercises....that doesn't mean it doesn't hurt though.
So do you have difficulty with the pain scale?
a bit, but not with putting numbers on the 'pain' i feel, it's the consistency.
i have had my thumb between a (locked) door and bumbed my head on a metal pole while cycling, yet those pains barely entered the scale, being 1's, maybe 2's (with sipping tea that's too hot being a 4), yet a nurse wiping sweat off my forehead during minor surgery, the sweatwiping was a 9, becouse it was doen carefully (the surgery itself was only about a 5), and the sound of a dying fluorescent tube or an old tv registrers a 12; boy do i love sensory integration disorder
For me level of pain and level of discomfort aren't completely synonymous. The sensation of being forced to hold my breath or drowning is probably worse than any pain I can imagine. Also, a constant medium grade pain like that from a sciatic nerve damage or dislocated joint can be worse than something more excruciating, like a kidney stone spasm, just because it lasts so much longer.
I've actually heard the worst pain known to human beings is that of a cluster headache. It's more likely to drive a person to suicide than any other kind of pain. Luckily I'm fortunate enough to have never experienced that.
Last edited by marshall on 26 Mar 2013, 4:07 pm, edited 1 time in total.
What most people would call "10" on this scale, I would call a 7 or 8.
10 is supposed to be the WORST PAIN IMAGINABLE. If I can imagine worse pain, it is not a 10.
This doesn't completely rule out me ever saying 11 or higher, though. It's possible that I could, at some point, get pain worse than I could have even IMAGINED before! That's when I'll say 11 or 12.
The worst pain I've ever felt to date? Probably about 8.
_________________
Your Aspie score: 98 of 200
Your neurotypical (non-autistic) score: 103 of 200
You seem to have both Aspie and neurotypical traits
AQ: 33
goldfish21
Veteran
Joined: 17 Feb 2013
Age: 42
Gender: Male
Posts: 22,612
Location: Vancouver, BC, Canada
This is a common AS trait of being either Hypo or Hyper sensitive to pain.
If you find your #/10 estimates to always be perceived as low, then you may have to increase your numbers to effectively communicate the actual amount of pain you're feeling relative to what NT's would report to a doctor.
While I tend to agree that 10 is reserved for something rather extreme, 8, 9, 10 shouldn't all be reserved for pain levels you've never experienced. I think the typical NT response would be to rate the pain from 1-10 on a scale of reference to their lifetime's experiences. So, if the worst pain you've ever experienced is something you'd report as a 7, most NT's would probably report it as a 9-10. Your 6 is probably more like an 8-9 etc.
If I were you, the next time I was asked this on a questionnaire I would bump the numbers up a bit even if it's very tolerable to you. This isn't just to get attention in a "woe is me, I'm in pain," sense, but rather to get proper medical attention you may need in terms of medication or other treatments, as if the pain you experience truly only feels like a 5 or 6 to you, and that number is an indicator to the doctor that nothing is wrong enough to treat with meds (besides painkillers, I'm talking infections.) or to further explore the issues for possible necessary medical intervention.
You may also want to explain this to whatever doctor you're seeing, as well, especially your regular doctor, as you may have been underreporting pain levels consistently due to not being able to perceive them stronger with the root cause being hyposensitivity to pain as an ASD trait.
I've read about some parents who's ASD kids are so oblivious to pain that they have to check on them regularly to ensure they're not in pain they're not aware of. ie There have been cases of males having twisted testicles that would cause excruciating pain for others, yet they had no idea since they don't feel pain.
On the other end of the scale, my sister is like your wife.. barely touch her and she'd be screaming bloody murder as a kid. We always just figured she was an overdramatic liar, but now I think she may have actually felt a really high level of pain from very small things & reacted the way she did because of it.
_________________
No for supporting trump. Because doing so is deplorable.
I also get bad earaches occasionally and they won't go away without the strongest possible antibiotic. It's not the worst pain imaginable but it's enough to make me pretty much non-functional if its hurting so much I can't concentrate on anything, can't enjoy anything, can't sleep, and find myself constantly having the urge to pace the halls all night long. At that point I might as well tell them its an 8 or 9 even if it isn't anywhere near the worst pain imaginable in any given instant. The point is I need something done about it NOW rather than later and I can't wait a week to see a doctor.
Verdandi
Veteran
Joined: 7 Dec 2010
Age: 55
Gender: Female
Posts: 12,275
Location: University of California Sunnydale (fictional location - Real location Olympia, WA)
I had one in November 2010. It was not fun and kept me in bed for a week. I went to the ER but they said it was anxiety.
As far as rating my pain, it seems it doesn't matter how I rate it, when I go to a clinic or the ER they interpret my pain as mild, possibly because I don't show many obvious signs of being in pain.
I had one in November 2010. It was not fun and kept me in bed for a week. I went to the ER but they said it was anxiety.
As far as rating my pain, it seems it doesn't matter how I rate it, when I go to a clinic or the ER they interpret my pain as mild, possibly because I don't show many obvious signs of being in pain.
I have this problem with pain. Even when I was having a baby I didn't scream or yell or swear like they do on TV. The only noise I made was to ask for something for the pain and they didn't understand how much pain I was in.
And as for rating pain on a scale from 1 to 10, it is so arbitrary and it's hard to figure out and then they make an assumption based on the number you give them. I think it would make more sense to ask in a more descriptive way such as a little pain or a lot of pain or unbearable pain.
Even then I would never say unbearable pain because no matter how bad it was, I was still bearing with it.
I had one in November 2010. It was not fun and kept me in bed for a week. I went to the ER but they said it was anxiety.
As far as rating my pain, it seems it doesn't matter how I rate it, when I go to a clinic or the ER they interpret my pain as mild, possibly because I don't show many obvious signs of being in pain.
I get similar. I suffer from migraine and my drs keep insisting the thumping stabbing left sided headache I get with visual disturbance and nausea is just a tension headache. I have to spend nearly a week in bed with those headaches too.
I am convinced my drs need to go back to medical school.
And what do they want me to do? Flail around screaming in agony or something before they will believe how much it hurts?
Verdandi
Veteran
Joined: 7 Dec 2010
Age: 55
Gender: Female
Posts: 12,275
Location: University of California Sunnydale (fictional location - Real location Olympia, WA)
And as for rating pain on a scale from 1 to 10, it is so arbitrary and it's hard to figure out and then they make an assumption based on the number you give them. I think it would make more sense to ask in a more descriptive way such as a little pain or a lot of pain or unbearable pain.
Even then I would never say unbearable pain because no matter how bad it was, I was still bearing with it.
I also have fibromyalgia and am in pain every day. Some days are worse than others and a lot of exertion (like walking across the yard) can leave me exhausted from the pain. My PCP told me my pain wasn't severe enough to be impairing, but she had no reason she was willing to explain, she just kept interrupting me.
i don't find my pain difficult to describe on a scale. i can easily say that my pain is a 4 or 5. but i've learned that what i call a 4 or 5 other people might call an 8 or a 9.
when i broke my collarbone in a car accident i wasn't going to bother going to the ER as i figured i'd just bruised it. i would describe that pain as a 2-3, maybe. i only went to the hospital for a ct scan to check for concussion (i'd scraped my face up pretty badly too -- didn't notice that until i looked in a mirror)... they did an xray there and discovered it was broken. made it through recovery without as much as a tylenol.
i've ended up with ferocious bruises from absentmindedly stimming -- not noticing the damage i'd done until much later. i used to self-harm by cutting - again, absentmindedly, and more for stimulation than anything - and when i was found out people were horrified at the depths of my cuts & the number of them -- i was quite surprised at their reactions because to me it was nothing -- it barely hurt at all...
i've playfully scratched and bitten partners and even when i think i'm being very gentle they tell me i am way too hard... and i tend to leave marks. it's kind of mystifying to me because my inner 'pain scale', so to speak, seems to differ so much from everyone else's, and what to me seems intuitively, obviously true -- "this hurts this much" -- is so wrong for most of the population.
until recently i'd considered myself lucky not to have any of the sensory manifestations of ASD -- but i've come to realize that i do, quite severely in fact. hyposensitivity can be insidious.
the only time i've experienced pain that i'd describe as severe is during bouts of abdominal distress - this pain can make my face contort, my eyes water, and force involuntary wails from my throat; it has made me come close to losing consciousness on several occasions. still i would only describe this as 7, maybe 7.5 -- because i can conceive of pain that is much worse and it would be wrong to say that this is close to the most severe pain. this is an example of literal thinking, i suppose. i don't think a 10 on the pain scale literally means that this is the worst pain your body is capable of experiencing -- saying your pain is 10/10 to a doctor is just a way of communicating that the pain is really bad. of course, such imprecise usage pains our pedantic minds.
the question at the core of the op is essentially: "why do we have difficulties expressing the level of pain that we experience?"
and i think that it is a combination of both sensory issues (as many previous posters have pointed out) and literal thinking/nonadherence to NT norms -- we don't like to think of the pain scale as a vague descriptor of distress but rather a precise measurement tool. we would prefer it if there were some mathematical equation to determine one's universal pain value to the fifth decimal place.
To me 5 on the scale of 1-10 is the benchmark for where the pain starts getting severe enough that I feel there is some urgency to have it relieved within hours or a few days or else life will constantly be unpleasant. And I have little hesitation describing a pain as 10 or close to 10 even if I may rationally think there are worse pains I could be in--maybe because I am on the hypersensitive side of things?? I know my hypersensitivity has something to do with why I recommend abolitionism. http://en.wikipedia.org/wiki/Abolitioni ... oethics%29
I don't like those papers they give out that ask people to rate their pain 1-10. It just blows my mind so i usually pick 3, as i love number 3
I don't love the number 3, but I have a hard time picking anything above a 6. In fact, the only time I've responded with above a 6 was a kidney stone (7)...I reserve 8 9 and 10 for really painful things that I am yet to experience.
Then you take my wife. I pinch her arm and on a scale of zero to 10, it's an 11.
The reason I ask, is lets say I have an ear infection (which I get quite a bit). I rarely feel them at all, but when I do, they shoot to a 6 immediately....and they wipe me out really quickly. But I go to the doctor and they ask if it hurts, and I tell them a 6, and they act like it's no big deal.
For me, 0-5 are things I do to myself. Hell, I could probably perform mild surgery on myself as long as I do breathing exercises....that doesn't mean it doesn't hurt though.
So do you have difficulty with the pain scale?
I don't like the pain scale at all. I understand what it is for, yet it just confuses me. One time i put a 3 down with atrophied neck muscle like whiplash since they gave me a collar and the dr at the time took note in the puter that my pain tolerance was high since it was bizarre to see a 3 there. I guess other people would have rated it differently? I hate having to pick a number and make a decision like that...
If i am truly in that much pain i'm probably stimming a million miles away in the eyes as well...
I think the issue is how do i compare this current pain to other pains and potential worse future pains and then number it? what they ask for blows my mind...
auntblabby
Veteran
Joined: 12 Feb 2010
Gender: Male
Posts: 114,569
Location: the island of defective toy santas
pain is a pain. the 1-10 scale needs an 11. nevertheless, i am fortunate in that i have never experienced "worst pain imaginable" for that is reserved for those tough souls called expectant mothers in the throes of childbirth. or those poor souls getting unanaesthetized chest tubes inserted for pneumothorax. THOSE are like being in a torture chamber.
I hate going to doctors and descriptions of pain is at the top of my list of why I hate going to see them. Sometimes I wish I could punch a doctor in the face and ask them to rate the pain so I can get an idea of what they consider pain to be because to me pain is like describing what the color green looks like.
Recently I’ve been coming to a conclusion that I’m probably experiencing more pain subconsciously, but it is just not registering consciously. I recently bought my first bottle of over-the-counter pills at the age of 33 because I promised my mother I would take an Advil for a sinusitis. A couple years ago I had a cavity in a molar and I felt it from time to time. I let it rot away for two years for complex reasons: part of me wanted to feel the pain because I was often depressed and it made me feel something and another part of me wanted to know and experience what happens when someone doesn’t have access to a dentist (the archaeologist in me). Eventually it cracked and my dentist had to pull it out because a crown and root canal would not likely save the tooth. He thought it should have hurt immensely. It hurt every now and then, but I suspect that it didn’t hurt as much as it would for an average person.
Most of the time I fear that the doctors think I’m a hypochondriac because I do not describe pain with my other symptoms. Maybe I should begin with a statement like "Just to let you know I'm intensely stoic when it comes to pain and because of my Aspergers I don't yet understand the normal conventions of exaggerating descriptions of pain so you will be able to understand them; just being here is painful enough, so even if I can't describe the pain I'm experiencing you can be assured it does exist or I wouldn't be here."
_________________
Self-diagnosed AS following psychiatrist's initial assessment. AQ 39/50; EQ 23/60; Aspie 150/200 NT 56/200.