trending on google news: big pharma is getting excited

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FunnyFaceKing
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25 Apr 2013, 12:25 am

New York Times:
“Autism spectrum disorder is the brave new world of medicine development, and most companies out there — despite a lot of the retraction you’re seeing — they do recognize autism as a clear area of opportunity,” said Mr. Ring, who serves on a committee that helps select which compounds the U.C.L.A. program will test.


Somebody send that dude a copy of Aldous Huxley's book. Stat!


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Verdandi
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25 Apr 2013, 12:32 am

Cutting corners on human trials when producing treatments for autism is nothing new. Parents and professionals successfully argued that the ethical requirement for proper human trials should be bypassed because an autistic child is essentially an emergency. This was with regards to ABA, but seeing similar protocols in place for medication is not surprising, although it is disturbing.



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25 Apr 2013, 9:51 am

Quote:

http://www.nytimes.com/2013/04/25/busin ... html?_r=1&

" . . . Although more cases are being diagnosed, no drugs are approved to treat the core symptoms of the disorders, which are characterized by delays in developing effective communication and social skills. . . "

Ah yes, the perspective from the outside looking in. Whereas what I think the main problem of autism is sensory issues.



Last edited by AardvarkGoodSwimmer on 25 Apr 2013, 11:31 am, edited 1 time in total.

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25 Apr 2013, 10:08 am

Here's one possibility from another article of what might be a cause of (some) cases of Autism Spectrum.

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http://www.economist.com/node/21560523

“ . . . many autistic people have a genetic defect which interferes with their sulphur metabolism. The Clostridia in their guts could thus be pushing them over the edge. . . ”

And as the theory goes, leaving too little sulphur for effective body metabolism, even though I think sulphur is only used in one or two of the twenty essential amino acids.



AardvarkGoodSwimmer
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25 Apr 2013, 10:15 am

And I'm an adult. If I'm going to change, it's going to be in a series of medium steps in ways of my own choosing.



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25 Apr 2013, 2:44 pm

AardvarkGoodSwimmer wrote:
And I'm an adult. If I'm going to change, it's going to be in a series of medium steps in ways of my own choosing.


hear, hear

they're not excited because they're going to actually be helping people

they're excited for the mullah!! !!


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Tyri0n
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25 Apr 2013, 4:22 pm

AardvarkGoodSwimmer wrote:
Quote:

http://www.nytimes.com/2013/04/25/busin ... html?_r=1&

" . . . Although more cases are being diagnosed, no drugs are approved to treat the core symptoms of the disorders, which are characterized by delays in developing effective communication and social skills. . . "

Ah yes, the perspective from the outside looking in. Whereas what I think the main problem of autism is sensory issues.


It's just like modern medicine to blast the symptoms (bad social skills) with dangerous drugs without getting at the root cause (sensory processing).



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25 Apr 2013, 4:24 pm

Verdandi wrote:
Parents and professionals successfully argued that the ethical requirement for proper human trials should be bypassed because an autistic child is essentially an emergency.


That is absolutely disgusting.



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25 Apr 2013, 4:45 pm

Nonperson wrote:
That is absolutely disgusting.


I think this is the article that describes it:

http://www.sentex.net/~nexus23/naa_aba.html

The author is autistic herself, and lost her job with the Canadian postal service after disclosing her autism. She works as a research assistant with a specialist in the autism field, or at least did for a time. I do not know if she still does.



AardvarkGoodSwimmer
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25 Apr 2013, 6:31 pm

I like myself as I am. And I wished 'schools' focused on what I can do rather than what I can't, and especially for workplaces.

At the same time, what is called 'ethics' in medicine is slow, timid, overcautious in a bad way, not for human welfare, but so the institution won't be blamed, and focuses obsessively on some things and then completely ignore other things. So there's definitely room for improvement.

And at the same time, parents and so-called 'professionals' focus on stimming as part of the problem when actually, stimming is part of the solution. Besides relieving tension and helping with concentration, stimming is just a lot of fun and adds vim and vigor and richness and color to life. :D But it's embarrassing to parents. Okay, I understand that. And it seems like the solution is to draw a distinction between private and public, and directly model public-appropriate stimming, which even 'normal' people do (no such thing as 'normal' anyway :jester:) So yes, there's a lot going on.



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25 Apr 2013, 7:36 pm

AardvarkGoodSwimmer wrote:
I like myself as I am. And I wished 'schools' focused on what I can do rather than what I can't, and especially for workplaces.

At the same time, what is called 'ethics' in medicine is slow, timid, overcautious in a bad way, not for human welfare, but so the institution won't be blamed, and focuses obsessively on some things and then completely ignore other things. So there's definitely room for improvement.

And at the same time, parents and so-called 'professionals' focus on stimming as part of the problem when actually, stimming is part of the solution. Besides relieving tension and helping with concentration, stimming is just a lot of fun and adds vim and vigor and richness and color to life. :D But it's embarrassing to parents. Okay, I understand that. And it seems like the solution is to draw a distinction between private and public, and directly model public-appropriate stimming, which even 'normal' people do (no such thing as 'normal' anyway :jester:) So yes, there's a lot going on.


I envy people for whom stimming is "fun."


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25 Apr 2013, 9:55 pm

With the sequester, I think all of the research places are trying to drum up more grants from drugmakers. This might be some of the PR effort right here.


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25 Apr 2013, 11:52 pm

Ugh. I am glad that I'm old enough to get to choose what drugs I do and don't take. I can't wait to see what kind of messed up drugs they come up with (which will be "clinically effective" because they reduce things that annoy NT's).

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Raziel
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26 Apr 2013, 12:01 am

I don't think that it'll be that easy to find a drug that can treat most autistics, because how it looks like there are several different reasons for ASD.


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