What help/support have you received since being diagnosed?

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I was wondering what help/support you have received since being diagnosed as I, not currently diagnosed, was wondering if there's a point. The waiting list is going to be really long and I'm not sure if it will really benefit me. I don't know what they could do.
I'm 13 (nearly 14) so was also wondering what the school could do. If any users have experiences of what schools do, that would also really help.
Sorry if this doesn't really make sense, I'm not very good at getting my points accross.

well, i tried to have employee accommodation assistance from an outside company...but i feel they didn't help me at all. and that was the only time i tried to use any help/support. i would like a service dog...but i doubt i'd even qualify for one--and i know it would take me forever to even raise the money it takes to get one. you'd think that instead of everyone donating to autism speaks... they should donate to the service dog "charities"... that way...they'd already have the money and ready to personalize train dog... it would probably cut down the waiting time, in which the person needing the dog would be getting worse and worse.

there is no point in trying to get support from school;In fact, using what they call "support" will give people a reason to bully you and hinder your social life, knowledge etc in the long run. I suggest that you don,t tell your school about your diagnosis (autism?) or they,ll send you to special ed and dump you with kids who are classified as "ret*ds",you will then get bullied and have your self esteem lowered. schools have classes that are supposed to teach you social/life skills but you will learn nothing from them as they are dumbed down (they teach things that a 3 year old would know) and they are taught in a way that wont help you in real life. also If you are in special ed, you will fall behind in school because of the amount of time youll spend "getting support". read my post about why I hated special ed/ "support" viewtopic.php?t=300537

If you want help,you should see a psychologist/therapist outside of school.

What support have I gotten by society? None.

What support have I gotten having being aware of this condition? Well, that it exists and that I may be one of the unfortnate ones.. I brought it up to my doctor, like he even cared about it.

I was surprisingly shocked at first thinking I had no future or hope for myself. So for a few days I was absolutely devastated b/c the condition seemed to match my symptoms and read there's nothing that could be done about it since it's a life time condition.. Then I started doing research on controversial cures and treatments I'm still working on. I'd say I swing back and forth between neurotypical and autistic every few days..

Thank you for your help. I'm not sure if I should go through the road of receiving a diagnosis.

I'm currently receiving support from an autism charity and a university enabling service to help me get back into my old university, i made a bit of a mess of my degree the 1st time, but time will tell if it is successful or not. At the moment things look positive but I don't have an offer yet....

help at uni was one of the main reasons i chose to get diagnosed so if this falls through then it was a waste of time...

@ indiekid, bear in mind you are not obliged to tell anyone about your diagnosis, you can keep it private and use it help yourself solve your own problems, the validation that you are correct about yourself helps a lot.

don't be afraid of the stigma, if you feel you need help then seek it, if you are vulnerable people will abuse and a diagnosis wont change that...

Other than more understanding from my parents as they can see what I am struggling with is not as a result of an attitude problem but rather autism, as well as more understanding from certain healthcare workers, I have not had any access to any support so far. I am trying to get access to a government funded social group for those on the spectrum but the group is awaiting this year's funding approval still, so they can't start until they get that money. Most of all the autism resources here are directed towards children and those with IQ under 70.

Thank you. I don't feel like I need a diagnosis because as much as autism affects my life, I don't feel like they could do anything about it. I feel quite content with my life right now so I think I'll leave it.

I have taken informal IQ tests through school and I have an IQ of 145 which I guess is pretty high. I do okay in school but I can't exactly claim that I'm exeptionally clever. I'm of an average intelligence at best. I guess I'm just good at figuring stuff out which is basically what an IQ test asks you to do.

no, that score means you are gifted, you are capable of things most people are not. IQ test are not a complete measure of intelligence but they are a measure of a small part of it and when it comes to that part, you kick arse...

Thanks! I was diagnosed with mild dyslexia but it only really affects my spelling (you have no idea how much I have to re-read and spell-check every single one of these posts!) and reading (I do really badly in tests at school). My maths skills and pretty much everything else is un-affected. I find working things out pretty easy, meaning that I apparently have a high IQ. I know lot's of autistic people have specific talents but I don't feel I'm particularly academic. I'm very musical so I feel like that's my talent, rather than academics.

Depending on the IQ test given, you sir are in the top 2 percentile!

I too am/was in that category.. Also will note when test was done at school and results were given, i was made to do the test again as the staff did not believe that it was correct in my case, even went so far as to say it is the first time in 50 years that the test was wrong for me! Talk about feeling more alienated than i already felt! yes, i didn't do that great in class for a number of reasons, however in art and sports science i excelled as i was interested in it! Bottom line, i did test again and got same scores! instead of pat on back ended up getting more ridicule! and much harder to cope with as i was at boarding school 7 days a week... But the tests only proved what i already knew within myself, and thats what was important to me... in effect it doesn't really mean too much to me these days... However you have the potential to do/be whatever your heart desires! Energy and motivation is the key! Find what you love, whatever it may be!

Don't feel bad. My IQ was 154 and I still ended up in special ED. The bad thing about scoring high on an IQ test is that those damn NT's expect you to perform up to standards. It's the "if you can do this, then why can't you do that." thing all over again.

I had a teachers aide in high school. You'd think that would make me a target for more bullying but he was such a cool guy the other kids loved having him around.

Apart from that...lots of therapy, speech therapy, behavioural therapy, occupational therapy like right up until I was 17. My country's autism support network ran workshops for teens and I attended some of those. (They also do adults ones which I haven't been to but have been meaning to check out.)

This is all since being diagnosed at age 12. I would recommend pushing forward with seeking a diagnosis, it's a long process but there are services available to you. You have to seek them out though

If you're getting good marks in school and are "successfully" involved in extra-curricular activities, than a dX would probably do little good.

Ultimately depends on what your goals are though. If you intend to excel socially, maybe some pro coaching would help you. Otherwise continue to work toward things that look good on paper so universities and prospective employers will be impressed.