Looking for advise
Hello everyone, I anm new here and just had a question. My
daughter is 2 years 10 months, and diagnosed Autistic. She is receiving
ABA therapy and boimedical treatments,as well as being on the GF/CF/SF
diet after we ran her blood allergy pannel. WE are seeing small
improvments but slow as expected. I have had this question bothering me
and I have yet been able to find any research regarding it. I was able to sit
through a talk with a Dr. Jerry Kartzinel recently and he said that he
beleives the main reason boys are having higher numbers in autism is
because the estrogen women have fight off toxins...so. Is there a way to
either test my daughters estrogen levels to see if they are low, or actually
give her estrogen? Is there side affects at such a young age? At this point I
am not going to sit around and wait for a doctor or scientist come up with
a cure, so i am reading everything I can, but also I dont want to cause
further damage to my daughter by " testing" things on her. I understand
everyone here is not a doctor and I only take your responses as opinions,
and appreciate anything I can get. Thank you for your time
Hi tizzykid! I have to say that your post pisses me off. For starters it's not cancer or a virus... there's no "cure" for it. Secondly, I don't really see a problem with a child being born different. You're talking about a 2 year old, so I guess she didn't color with appropriate Crayola . Running your child through these tests will cause much more 'damage' than what's really there to begin with (it did for me).
You need to stimulate her needs much more than "make her like everyone else". Help her pursue what she likes. We're all different in the aspie world and not one of us can give you proper answers on how to raise your child (neither can doctors). If you would really like to help your daughter... play with her, talk to her, love her. Don't try to alienate her and make her feel different. Why did you put her on a diet? That's ret*d. You're gullible if you think you can permanently change how your daughter's neurotransmitters fire off (for the better) because you DEPRIVE her of nutrition.
Now as a student (at a university) of neuroscience I'll explain something to you- psychology and psychiatry isn't science... it's a "practice". If you go to one doctor and get diagnosed with something you may very well get diagnosed with something different at another doctor (or you'll DEFINITELY get a different medication) because they don't use the scientific method, and this will blatantly demonstrate how terrible medical practice truly is (has nothing to do with science at all in any way). I've been on many anti-psychotics, anti-depressants, anti-seizure, anti-anxiety, and even homeopathic supplements... all for the same problems. I'm currently not taking anything at all and simply accept who I am... it's such a relief to not gobble pills in order to act like everyone else. Also as a side-note, don't trust your kids in the hands of a moron just because he has "Dr." in-front of his name and is published in the subject of autism. You have good intentions, but you need to really think about what you're doing, why you're doing it, and if you're doing it right (you aren't).
Back to lurking. Sorry if this bothered anyone.
“Autism, as I see it, steals the soul from a child; then, if allowed, relentlessly sucks life’s marrow out of the family members, one by one..” -Dr. Jerry Kartzinel
tizzykid....
Wowser... Don't let the initial outburst of the above post upset you... Aspies can be a bit "straightforward" in their wording. I'm sure upset (if any) wasn't meant.
Autism/Aspergers is a different set of brain wiring. There is no "cure". There is no magic bullet. There is, however, plenty of charlatans and snake oil pedlers trying to sell you miracle cures. I'm afraid that whatever you do you are in for a hard time with this. Like most issues, you the mother will be shouldering a heavy burden. (I'm assuming you are the mother not the father - you didn;t say)
But as stated above, this is not the end of the world. Don;t panic. Read and learn. Join groups of other mothers who have been through this before you. They will probably be able to help you better than we can as we only see things from inside our autistic boxes.
For the record, I once broke a guy's nose when he used "ret*d" out of context and in a derogatory way. I'm just saying.
You need to stimulate her needs much more than "make her like everyone else". Help her pursue what she likes. We're all different in the aspie world and not one of us can give you proper answers on how to raise your child (neither can doctors). If you would really like to help your daughter... play with her, talk to her, love her. Don't try to alienate her and make her feel different. Why did you put her on a diet? That's ret*d. You're gullible if you think you can permanently change how your daughter's neurotransmitters fire off (for the better) because you DEPRIVE her of nutrition.
Now as a student (at a university) of neuroscience I'll explain something to you- psychology and psychiatry isn't science... it's a "practice". If you go to one doctor and get diagnosed with something you may very well get diagnosed with something different at another doctor (or you'll DEFINITELY get a different medication) because they don't use the scientific method, and this will blatantly demonstrate how terrible medical practice truly is (has nothing to do with science at all in any way). I've been on many anti-psychotics, anti-depressants, anti-seizure, anti-anxiety, and even homeopathic supplements... all for the same problems. I'm currently not taking anything at all and simply accept who I am... it's such a relief to not gobble pills in order to act like everyone else. Also as a side-note, don't trust your kids in the hands of a moron just because he has "Dr." in-front of his name and is published in the subject of autism. You have good intentions, but you need to really think about what you're doing, why you're doing it, and if you're doing it right (you aren't).
Back to lurking. Sorry if this bothered anyone.
“Autism, as I see it, steals the soul from a child; then, if allowed, relentlessly sucks life’s marrow out of the family members, one by one..” -Dr. Jerry Kartzinel
_________________
NTs have issues, Aspies have characteristics.
CockneyRebel
Veteran
Joined: 17 Jul 2004
Age: 50
Gender: Male
Posts: 117,337
Location: In my little Olympic World of peace and love
You need to stimulate her needs much more than "make her like everyone else". Help her pursue what she likes. We're all different in the aspie world and not one of us can give you proper answers on how to raise your child (neither can doctors). If you would really like to help your daughter... play with her, talk to her, love her. Don't try to alienate her and make her feel different. Why did you put her on a diet? That's ret*d. You're gullible if you think you can permanently change how your daughter's neurotransmitters fire off (for the better) because you DEPRIVE her of nutrition.
Now as a student (at a university) of neuroscience I'll explain something to you- psychology and psychiatry isn't science... it's a "practice". If you go to one doctor and get diagnosed with something you may very well get diagnosed with something different at another doctor (or you'll DEFINITELY get a different medication) because they don't use the scientific method, and this will blatantly demonstrate how terrible medical practice truly is (has nothing to do with science at all in any way). I've been on many anti-psychotics, anti-depressants, anti-seizure, anti-anxiety, and even homeopathic supplements... all for the same problems. I'm currently not taking anything at all and simply accept who I am... it's such a relief to not gobble pills in order to act like everyone else. Also as a side-note, don't trust your kids in the hands of a moron just because he has "Dr." in-front of his name and is published in the subject of autism. You have good intentions, but you need to really think about what you're doing, why you're doing it, and if you're doing it right (you aren't).
Back to lurking. Sorry if this bothered anyone.
“Autism, as I see it, steals the soul from a child; then, if allowed, relentlessly sucks life’s marrow out of the family members, one by one..” -Dr. Jerry Kartzinel
Wow, yeah you need to calm down. I never said that I treated her differently or that there was anythign wrong with her being born differenty. You need to re-read my post then, calm down and think about what you are going to say before you talk. She is on no medicne at all, she only receives multi vitamens and probiotics to supplement her diet. She is ON the diet because she is severly allergic to the other foods. I have personally met childern that im my opinion have been cured from the fog they were once in. Going form sitting in the corner, to talking and interacting. I just want her to be able to express herself and just like your mother says " if you cant say nothing nice, dont say nothing at all"
Firsty, spacecadetdave, stop apologizing for snipes128 - the attitude displayed by the OP deserves to be chastised, its discriminatory and prejudicial.
tizzykid, as folks here are pointing out, autism isn't caused by vaccines, mercury in the water, or radiation bombardment from aliens. Anyone with any experience with the condition (who isn't an opportunistic quack) will tell you its almost certainly genetic, and that includes those of us who have it. The notion that hormones have any effect on autism whatsoever is ridiculous - if that were true, there probably would have been some sort of 'cure' or generally accepted treatment for it a long time ago, and there isn't - again, anyone who tells you they can treat or cure autism is lying to you, whether for gain, or because they are insane, they're 100% wrong.
For that matter, most of us who have survived the ravages of adolescence have come to accept our differences and don't feel that we need a 'cure'. In fact, its extremely insulting to talk about 'curing' an individual's entire personality. Our brains perceive and interpret differently than other folks' do, so we behave a little differently, but that doesn't make us horrible mutations that deserve to be exterminated. ABA may force a person to change certain behaviors, but that doesn't change the way their brain works, so forcing a child to behave against their nature is just cruelty, like beating them for being left-handed.
What your child needs is not to be 'cured' of who she is, but to be loved and accepted in spite of her differences.
_________________
"Strange, inaccessible worlds exist at our very elbows"
- Howard Phillips Lovecraft
thank you, I mean no offense when I use the word " cure" I am not trying to change who she is. I love her personality, and would never change that. I am just doing what any parent would do for their child. If you were born blind, but had the chance to take some vitamens and do some therapy that might be able to help you see, just a little would you do it. or just accept the fact that yor blind.
CockneyRebel
Veteran
Joined: 17 Jul 2004
Age: 50
Gender: Male
Posts: 117,337
Location: In my little Olympic World of peace and love
.
the "OP" is a worried parent of a young child. If I saw/heard someone reacting to a woman in the street like that then I would send that person home with their teeth in their pocket. Get me?
The reaction was wrong and the tone was appalling given the situation.
Having Aspergers is not an excuse to be an a***hole.
daughter is 2 years 10 months, and diagnosed Autistic. She is receiving
ABA therapy and boimedical treatments,as well as being on the GF/CF/SF
diet after we ran her blood allergy pannel. WE are seeing small
improvments but slow as expected. I have had this question bothering me
and I have yet been able to find any research regarding it. I was able to sit
through a talk with a Dr. Jerry Kartzinel recently and he said that he
beleives the main reason boys are having higher numbers in autism is
because the estrogen women have fight off toxins...so. Is there a way to
either test my daughters estrogen levels to see if they are low, or actually
give her estrogen? Is there side affects at such a young age? At this point I
am not going to sit around and wait for a doctor or scientist come up with
a cure, so i am reading everything I can, but also I dont want to cause
further damage to my daughter by " testing" things on her. I understand
everyone here is not a doctor and I only take your responses as opinions,
and appreciate anything I can get. Thank you for your time
Please, please, please don't mess around with hormones - especially considering that your just working off the belief of some doc with respect to autism rates in boys vs. girls. The idea of giving your daughter estrogen is just your own unprofessional interpretation with no scientific basis or testing. I don't mean this disrespectfully. I am also a parent of a child with autism and can understand your well intentions, but the risks could be huge. Just because something is naturally occuring, doesn't mean it is good. You could possibly damage her physical development as well as her reproductive system, and there's no scientific evidence that it could even possibly work. If we were talking about an immediately, life-threatening condition, then maybe such guinea pig experiments would be warranted - but that's certainly not the case. Try not to focus so much on cures and causes, but rather focus on helping, supporting, and loving your daughter (which I'm sure you do). I've heard some wonderful things about ABA therapy. Be careful of the negative connotation associated with "curing" that could translate to your daughter feeling bad about herself. I'm sure that's the last thing you (or your daughter) want. Good luck!
Some very good points, and thinking about it, if estrogen was a possibility surely it would have been tested?
Before I made my initial post I apologized if it offended anyone. I'm just throwing that out there.
You sure showed him how to act amirite!? -_- You wouldn't touch me irl lol. I'm just saying. You're a MMA and wrestling nut... that doesn't give you the ability to act aggressive and get away with it in the real world.
I don't need to calm down. People like you alienate people on the autistic spectrum with comments of "cures" and special diets to "fix" autistic traits. I understand that you're seeking help, but you're trying to make your daughter more like other kids and it will not happen- this isn't bad at all and you've got the mindset that it is. Look at it this way- giving your daughter a gluten free diet isn't going to raise or lower her IQ, much less rewire her brain to be more like yours. Growing up with severe autistic traits, I can tell you that feeling like I'm being treated differently was one of the few things that hit me hard. I have a strong suspicion that this very mind-set is what makes us so isolated in some scenarios. The latter was absolutely my opinion and isn't studied as far as I know of. I'll go ahead and inform you that there's some huge controversies if multivitamins are even useful, but you didn't know that and had it set in your mind that they're helpful. Have you even considered that her "fogginess" may be caused by an excessive intake of tryptophan decarboxylase and B6? This would cause SEVERE autistic like fogginess that your 'super-diets' and supplements may be antagonizing. Just a random example of how you're putting your daughter through things that you don't understand (and there are thousands more). That's why I seem to come off abrasive and harsh, it's nothing personal.
You're implying that a vitamin can "fix" autism. I think a better question would've been "If you were born blind, but had the chance to take some vitamens, see hundreds of doctors, become alien to the world around you, still never have friends, still cant see after decades of vitamins and doctors, never received the proper love from your parent(s) because they thought that there was something wrong with you even though you had elevated hearing and which your parents can't understand, and do some therapy that might be able to help you see, just a little would you do it. or just accept the fact that yor blind?".... I would rather be blind and love every moment of life living the way I was born instead of someone saying I need chemical assistance to function 'normally'. Music would become more than my world. We learn to adapt- always.
The reaction was wrong and the tone was appalling given the situation.
Having Aspergers is not an excuse to be an a***hole.
Trust me you wouldn't send me home with my teeth in my pockets lol. You'd mumble to yourself and stair at the ground. You're amazing if you can perceive tones from text (or much less irl considering aspergers). Having aspergers is NOT an excuse to be an as*hole, but a parent with an autistic child isn't an excuse to come to a dedicated forum for people on the autistic spectrum asking for a "cure" to "fix" something we all have and have had to deal with every single day of our lives. She didn't ask "Hey my baby's starting school soon. Any advice on what's hard with autism so she'll never feel the pains of being bullied?". She asked for a cure dude. I swear sometimes I feel like people are just introverts that don't have any friends, take an online quiz, and all of a sudden they've found their place in the autistic world and have a voice for them. You don't speak for aspies, nor autistics in general.
CockneyRebel
Veteran
Joined: 17 Jul 2004
Age: 50
Gender: Male
Posts: 117,337
Location: In my little Olympic World of peace and love
.
the "OP" is a worried parent of a young child. If I saw/heard someone reacting to a woman in the street like that then I would send that person home with their teeth in their pocket. Get me?
The reaction was wrong and the tone was appalling given the situation.
Having Aspergers is not an excuse to be an a***hole.
It's called Asperger's Syndrome, not jackass syndrome. I tried to make light of the situation with my first response, than I was more mature with my second response, but I would never respond in an abusive manner. The woman wants the best for her child. I might not agree with what it is, but I am learning to be more gentle towards her kind, with my responses.
_________________
The Family Enigma