Aspie in need of social worker (UK) - can you help me?
Hello,
I found a learning disability advocacy charity who were willing to help me try to get a social worker, since I can't look after myself very well. After a while they decided I wasn't learning disabled and told me not to contact them any more.
I need a social worker and a support worker, but I don't know how to do that. Has anyone here in the UK managed to get a support worker without having to be in prison or hospital? If so, would you be willing to share your story with me, either here or in a private message?
(My friend has Asperger's and he was in prison and hospital, and he has a support worker for 15 hours per week. His needs are very similar to mine, but I don't want to be in prison or hospital before I get the help I need.)
Cassian
KingdomOfRats
Veteran
Joined: 31 Oct 2005
Age: 40
Gender: Female
Posts: 4,833
Location: f'ton,manchester UK
I found a learning disability advocacy charity who were willing to help me try to get a social worker, since I can't look after myself very well. After a while they decided I wasn't learning disabled and told me not to contact them any more.
I need a social worker and a support worker, but I don't know how to do that. Has anyone here in the UK managed to get a support worker without having to be in prison or hospital? If so, would you be willing to share your story with me, either here or in a private message?
(My friend has Asperger's and he was in prison and hospital, and he has a support worker for 15 hours per week. His needs are very similar to mine, but I don't want to be in prison or hospital before I get the help I need.)
Cassian
hi cassian,
a social worker will be a difficult one to manage because they have very strict criteria to meet,they have made it tougher and tougher every year for people with moderate or mild needs under social services supports and many highly vulnerable people have ended up thrown off their books as a result, blame the idiots like david cameron and all the other lazy assed scumbags who have ruined and bled the countrys support system dry.
has an assessment of needs ever been done by social services? if not,ask them for one,by law it has to be done if a person requests.
however almost all boroughs are only accepting people whose assessment shows they have critical needs,this means they will have life threatening/fatal risk from being unsupported.
its possible will be able to get support though,contact national autistic society or a organisation like creative support as both of these will likely help with setting up the funding without having actual need for a social worker and also offer a lot of different support depending on the care package awarded by SS.
LD/learning disability has a different meaning in the UK to the US.
in the UK LD refers to intelectual disability,heres mencaps write up on the official definition- http://www.mencap.org.uk/definition
in america, LD refers to conditions such as dyslexia or ADHD;whereas in this country those are refered to as 'specific learning difficulties'.
social workers have such big caseloads they cant do any individual work with each client anymore,so theyre not worth it,am under the LD team and rarely see social worker-he just talks via email a lot with the residential home am in, he does fight for funding but arguably the other specialists and staff on the LD team do more fighting for it than he does and am visited by them every week.
the only times that used to see social worker was when had had major incidents or when previous residential homes were giving the 'emma is to challenging for this home and has to be moved in an emergency placement' meeting,this happened many times so had developed a phobia of seeing him as always felt was going to be moved when he appeared.
woud recommend aiming for an organisation that allows self referal instead,am aware from years ago when sister worked for them creative support allowed self referal and theyre all over the country now,worth a go because if they cant help am sure they will be able to refer onto someone who can-the same with the national autistic society,they have a help line.
_________________
>severely autistic.
>>the residential autist; http://theresidentialautist.blogspot.co.uk
blogging from the view of an ex institutionalised autism/ID activist now in community care.
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