is a self-made autism alert card valid?

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Eloa
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27 Feb 2013, 11:47 am

A week ago I had to take the train for a longer trip.
After a while the police came onto the train to check my ID because people called them as they thought I was on drugs.
This might come from my stimming as taking the train is a stressful situation for me and I stim a lot then.
I got non-verbal but was still able to follow their orders and show my ID.
Then they left again and I felt even more stressed out, but went to sit on my hands to stim less.
Going back with the train a couple days later I ended up in the wrong train compartment as I had to change the train on a station I did not know and it was confusing to me and I mixed up the numbers of the ticket for reservation, as it was a train one can only board with a reservation.
I sat there down on the floor and then the conducter came tell me to move and I panicked.
It is not always possible that I have people to escort me, sometimes due to additional costs.
In a couple days I have to take the train for a longer trip again and then the plane.
At the airport of destination I will be met by people I know and they will accompany me on the flight back home, but the first way I have to do alone.
Now I wonder if an autism alert card could simplify the weird situations where I use get into and if it would make people understand better.
But I have no official autism alert card and my psychologist is on vacation, so I cannot ask her.
Is it valid to make one myself?
What specifics should I give?


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jamieevren1210
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27 Feb 2013, 11:54 am

I think that it shall serve the purpose of informing the police or whoever else of your condition, and in that sense, it really doesn't matter if yours is homemade or psychologist-issued. Good luck!


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Ettina
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27 Feb 2013, 11:55 am

Sure it's valid. It's just meant to replace you telling them verbally. You don't need any proof of autism (though it may be a good idea to list your psychologist as a contact if they want proof).

My guess is for you, you'd want to say something like:

'I have autism. I often show atypical motor mannerisms ([list some]) and when stressed I lose the ability to speak. If you are trying to communicate with me and I am not able to speak, please [list things that help you].'



Eloa
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27 Feb 2013, 12:12 pm

Thank you for replying.
So I will make one.
Thank you for the advice to list my psychologist and the given example, Ettina.
And a card won't bring me deeper into trouble as usual that people can think I make it up or that I am dangerous?
Is it a good idea to wear it visible?


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Ettina
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27 Feb 2013, 12:19 pm

Quote:
And a card won't bring me deeper into trouble as usual that people can think I make it up or that I am dangerous?


I'm guessing their reaction to autism will be more positive than their reaction to someone high on drugs, at least.

Quote:
Is it a good idea to wear it visible?


It's not necessary, you can just keep it available and bring it out to show if there's a problem. But if you're OK with everyone you meet knowing you're autistic, go ahead.



Eloa
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27 Feb 2013, 12:50 pm

Ettina wrote:
Quote:
Is it a good idea to wear it visible?


It's not necessary, you can just keep it available and bring it out to show if there's a problem. But if you're OK with everyone you meet knowing you're autistic, go ahead.


I guess in these circumstamces I am OK with people knowing as it seems a better option than the police coming or having to leave the train compartment or whatelse can occur.
In fact I don't really care what people think, I just want to be left alone on not attract any trouble.
Thank you for replying.


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AardvarkGoodSwimmer
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27 Feb 2013, 12:56 pm

If you keep your ID in your wallet, I recommend keeping the card immediately behind the ID so if needed you can hand both to a police officer at the same time.



AardvarkGoodSwimmer
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27 Feb 2013, 1:01 pm

Another possibility for a card might be this:

Quote:
I AM ON THE AUTISM SPECTRUM

I have sensory issues and processing issues.

I sometimes engage in repetitive movements known as "stimming."

I cannot always talk fluently.

I may not fully understand your questions.

When I need help, please contact:

_____________ at ___________________



Eloa
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27 Feb 2013, 1:07 pm

Thank you for the suggestion.

Quote:
I may not fully understand your questions.

Maybe adding: or have a delayed reaction to it.


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Sweetleaf
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27 Feb 2013, 1:08 pm

Wait people call the cops for someone appearing to be on drugs? lol that is weird to me, where I live only if someone appeared high on drugs and was causing problems would the cops be called otherwise people tend to mind their own business about that. Either way I could see how an autism alert card sort of thing could help, that way maybe cops wont assume your on drugs if your not and it would offer some explination for some of those weird awkward situations.


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Eloa
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27 Feb 2013, 1:18 pm

Sweetleaf wrote:
Wait people call the cops for someone appearing to be on drugs? lol that is weird to me, where I live only if someone appeared high on drugs and was causing problems would the cops be called otherwise people tend to mind their own business about that. Either way I could see how an autism alert card sort of thing could help, that way maybe cops wont assume your on drugs if your not and it would offer some explination for some of those weird awkward situations.


I was sitting in the train and stimming (like hand-fidgeting and rocking) and I guess that people get scared from it.
Anyway the police asked if I had taken drugs.


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Sweetleaf
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27 Feb 2013, 1:30 pm

Eloa wrote:
Sweetleaf wrote:
Wait people call the cops for someone appearing to be on drugs? lol that is weird to me, where I live only if someone appeared high on drugs and was causing problems would the cops be called otherwise people tend to mind their own business about that. Either way I could see how an autism alert card sort of thing could help, that way maybe cops wont assume your on drugs if your not and it would offer some explination for some of those weird awkward situations.


I was sitting in the train and stimming (like hand-fidgeting and rocking) and I guess that people get scared from it.
Anyway the police asked if I had taken drugs.


Hmm, I suppose I simply cannot understand the mentality some people have to be freaked out by abnormal but harmless behavior. I guess most people around here that would have that mentality drive and don't take the bus. It's also very unlikely a cop would show up if someone called them over someone fidgeting and rocking at a bus stop....I think you'd benefit more from an autism alert card than I would.


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AardvarkGoodSwimmer
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27 Feb 2013, 1:35 pm

Eloa wrote:
Thank you for the suggestion.
Quote:
I may not fully understand your questions.

Maybe adding: or have a delayed reaction to it.

That may be good, too. Just please don't make the card too long. For a police officer needs to be able to read/scan it as he or she also remains aware of their surroundings.



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27 Feb 2013, 1:40 pm

Ironically I had something similar happen last week. I was walking on dark road at the edge of town at like 4 am.

And when the cop pulled over and flashed his lights at me, I started get all twitchy and nervous.

He asked me what I was doing there, and in the back of my mind I knew his only assumption would be that I'm high.

So I proceed to explain that the truth that may sound crazy, which I guess it almost was, was that I was trying to live in a different time zone.

He got the hint that I'm just a bit off, but still it's hard when you don't wanna lie yet know you should.



Eloa
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27 Feb 2013, 6:35 pm

AardvarkGoodSwimmer wrote:
Eloa wrote:
Thank you for the suggestion.
Quote:
I may not fully understand your questions.

Maybe adding: or have a delayed reaction to it.

That may be good, too. Just please don't make the card too long. For a police officer needs to be able to read/scan it as he or she also remains aware of their surroundings.


Thank you for the advice.
It is possible I would write too many details onto it, now I am conscious about it.


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Callista
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27 Feb 2013, 10:56 pm

There's not really such a thing as an official alert card; just companies who make them. Have one that is easy to understand and durable enough to carry around, with only the absolute most important information on it, possibly including an emergency contact person who can explain things if you are unable to communicate effectively, or at least brief instructions as to what to do if you cannot communicate--things like, "I can communicate better if I am in a quiet, distraction-free place." Or whatever helps you. You could mention any particular medical conditions which affect you, such as epilepsy or a chronic illness, whether you use a communication device or sign language. If you live with family, have their phone number, if you have an aide, list them; if you live alone and without assistance, mention that ("Living independently"). If you tend to run or ignore danger while in a meltdown you could put that, though it may lead them to restrain or sedate you if you are not able to communicate well; or you could state that if you are unable to talk or overloaded, you need a quiet place to calm down; or you could mention things like touch or auditory sensitivity.

It all depends on how much information you want on there. Bare minimum, you could just put, "I have autism" and a contact number for somebody who knows about you, to use in case the police think you're high and try to arrest you.


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