Macrocephaly ?

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Do some of you have macrocephaly ? (It means having a unusually large head.)

I read it is often correlated to autism, and I have been wondering about myself. My head does not look unusually large, but I know it is larger than average. I like hats but in 95% of times where I see one I like I can't find the right size for me, all those in stock are too small. (I could find one without any problem by going to a fancy expensive hat shop, but the ones in regular clothes shops are always too small.) Also I have taken part to research experiments using EEG and MRI and my unusually large head gave problems to the experimenters (in one occasion I could barely put the EEG cap on, and for MRI the researchers had to spend 10 minutes removing most of the foam padding blocks in the machine and finding a way to wedge my head in there with other stuff.)

Macrocephaly looks easy to diagnose, you have it if your head circumference is more than 2 standard deviations above the mean for your age, sex and ethnicity. But I could not find any table with such data except for small children.

My head head circumference was in the >90th percentil as a little kid.
It seems that the physician didn't care, because macrocephally must be in the >97 percentil.

I know where the OP is coming from. I have a very large head - I need at least a 63cm size hat which is just about the largest size hat made anywhere and then they are only available in a limited number of styles from the posh hat shops. There is absolutely no point in me looking at hats from the high street. I hate it when people try to force Christmas cracker hats/Santa hats etc on me because they don't come close to fitting and everyone laughs.

I also have problems getting glasses frames that will fit me properly, again because of the size of my head/face. Again there are a limited number of styles and they're expensive.

I know that hats aren't essential but for me glasses are. (I have a very strong prescription and have been advised against contact lenses).

It's just one more thing that makes me different from everyone else - I can't dress like them or how I want to. I would love to get more involved in cosplay (yes, even at my age ) but anything that involves a mask, a hat, glasses etc is a problem.

yeah i have a large head. I'm sure when I am fully grown my hat size will be XL.
I remember a lot of the autie kids i was in school with had large heads too.
idk if i was dx with macrocephaly tho.