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jcq126
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09 Dec 2013, 1:09 pm

Hey guys,

I am going to be creating a new documentary on ASD in adults, as I believe it is so unfair how we have slipped through the cracks or the attention is only on children. It's almost as if people think only children get ASD then stay a child forever, they forget about the adults; Especially the adults who missed being diagnosed as a kid like myself (diagnosed at 25). I'm starting the process now of getting ready to begin this documentary. I would like to know if anyone has suggestions of what they would like me to cover in the film? This will also help me brainstorm the structure of the video.

I plan on this being the darker side of ASD in adults and how serious it can be, such as leading to suicide and many other terrible things. I would love if you guys would help contribute to this film and would leave some suggestions of what you think would be great to feature in this documentary. Thank you so much.

Jcq



redrobin62
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09 Dec 2013, 2:55 pm

You have some good ideas. I'd imagine a documentary like that would include interviews with folks on the spectrum. You would also have filmed profiles of what their day to day life is like, with their challenges and difficulties shown or discussed.

I guess there'd also be a brief section of stats - % of population that is autistic, the 1 in 88 stat, and a rough number of the autistics in the world.

Your clients should range from people who are "obviously" on the spectrum as well as those who've masked so well over the years that they pass for normal.

Some of your clients can be living independently while others are institutionalized. If you can interview one or two that's in an institution that would be nice.

Here in Seattle there is Adult Autism Clinic that meets at Univ. of Washington Medical Center. Maybe you can get some insight from their clinicians or from others in your area.

Several meetup groups are geared towards adults on the spectrum. Maybe you can sit in a group or interview those guys if they don't mind.



jcq126
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09 Dec 2013, 3:21 pm

redrobin62 wrote:
You have some good ideas. I'd imagine a documentary like that would include interviews with folks on the spectrum. You would also have filmed profiles of what their day to day life is like, with their challenges and difficulties shown or discussed.

I guess there'd also be a brief section of stats - % of population that is autistic, the 1 in 88 stat, and a rough number of the autistics in the world.

Your clients should range from people who are "obviously" on the spectrum as well as those who've masked so well over the years that they pass for normal.

Some of your clients can be living independently while others are institutionalized. If you can interview one or two that's in an institution that would be nice.

Here in Seattle there is Adult Autism Clinic that meets at Univ. of Washington Medical Center. Maybe you can get some insight from their clinicians or from others in your area.

Several meetup groups are geared towards adults on the spectrum. Maybe you can sit in a group or interview those guys if they don't mind.


That is actually a great idea about going to a group meetup and maybe setting up some interviews with some of the people on the spectrum. I originally was going to do this documentary on my own life and ASD in general, rather than a public informational documentary, but more what it's look for someone who is HFA/ASD where you couldn't even tell by looking at them. Some people on the spectrum can clearly be pointed out, I am kind of wanting to bring attention to the people who have suffered in silence like myself because we don't "look disabled". It's going to be a pretty heavy film I believe, approx maybe 15-20 minutes long nothing too long, but we will see as it plays out if it takes on a life of its own. I appreciate the suggestions.



Marky9
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09 Dec 2013, 6:18 pm

I think it would be meaningful and helpful to further stratify based on the generally recognized stages of psychological development. ASD can impact each differently. A decent template might be Erickson's Psychosocial Stages: Young Adulthood (18-40), Middle Adulthood (40-65) and Maturity (65 to death).

Doing this would enable introducing the concept of age-related autistic burnout.


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AspieTurtle
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09 Dec 2013, 8:04 pm

Some ideas

Older adults dx later in their career/life
1. emotional challenges
2. relief of knowing?
3. anger or other emotions like shame prior dx
4. changes made after dx

Growing up AS in a world overflooded with information / forced sensory flooding such as dept stores.

Benifits of being AS in the internet age... such as this support forum.


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Sethno
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10 Dec 2013, 12:26 am

jcq126 wrote:
Hey guys,

I am going to be creating a new documentary on ASD in adults, as I believe it is so unfair how we have slipped through the cracks or the attention is only on children. It's almost as if people think only children get ASD then stay a child forever, they forget about the adults; Especially the adults who missed being diagnosed as a kid like myself (diagnosed at 25). I'm starting the process now of getting ready to begin this documentary. I would like to know if anyone has suggestions of what they would like me to cover in the film? This will also help me brainstorm the structure of the video.

I plan on this being the darker side of ASD in adults and how serious it can be, such as leading to suicide and many other terrible things. I would love if you guys would help contribute to this film and would leave some suggestions of what you think would be great to feature in this documentary. Thank you so much.

Jcq


Have you seen Alex Plank's short documentary "Autism Reality"?


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10 Dec 2013, 11:58 am

If you pm me I can talk with you about service dogs and the lack of them for adults


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Briarsprout
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11 Dec 2013, 11:34 am

Women's experience too if possible. They tend to go under the radar more.