zer0netgain wrote:
I'd like them to keep it.
AS is not the same as just being HFA. Maybe it's a fine line, but I don't think most people would look at me and associate me with "autism" as it is classically understood.
But others of us could be poster children for high-functioning autism in an Asperger's-is-not-a-299-series-condition world. Not caricatures, but real faces of what laypeople with rudimantary knowledge might realistically expect adult HFA to look like. Anyone who knows me well would probably agree that it would be almost ludicrous to say, for example, that I am not autistic simply because (as best I can remember) I was able to use expressive language at age three. Even today, while well capable of speaking, I find thought organisation in general, and describing things like emotions in particular, to be quite difficult, and I am conspicuously non-verbal in many situations where most people would be much chattier.
Having been diagnosed in Europe, outside of DSM territory, the diagnostic decision tree was along these lines: first establish that you have any degree of clinically significant autistic characteristics (i.e. you are on the spectrum); then whether you have a sufficiently complete profile of impairments (i.e. you are autistic) or not (you have "atypical autism", roughly equivalent to PDD-NOS); finally, if so inclined, which broad category of autism will we say that you have (Asperger's or Kanner's [HFA or LFA]). Even the diagnosing professionals will tell you that the last step is somewhat arbitrary for high-functioning people, while the first steps are much more serious. [I don't know where Rett's and CDD fit into this scheme, as they were not relevant to my assessment.] My assessment report has page after page of discussion of evidence that I am autistic, and one sentence arbitrarily kicking me over into the Aspie bucket. So, as confirmed by my assessment, I consider myself autistic first; the subgroup to me is generally irrelevant.